My husband has been on the liver transplant list since mid-December. After having his third TACE procedure last month he had a CT scan last week. They were treating an active stable tumor but ended up finding three more very small tumors in his CT scan.
Our CA Dr. needed to send a CD of the scan to Kansas Dr. for review and to compare the other scans. It has taken full week for the CD to be sent and now we are sitting here waiting to hear from anyone!!!! It has been the most frustrating emotional week. Not knowing has been horrible. We are afraid he may be outside of criteria now and be taken off the list. This was his only hope.
Does anyone have any suggestions as to how to communicate with the Doctors and not be a pest? I have emailed, called and left messages with the coordinators but can't seem to get anyone to call us back which only makes us think it's bad news!