Jan 20, 2011 - 2:41 pm
I’ve been a member for awhile but have not posted until recently. I joined right after I was diagnosed with papillary carcinoma in April of 2010. Had a TT May 10, 2010, and radioactive iodine treatment (150) at the end of June. They did find a lymph node with cancer during the surgery. They also found that the original tumor had multiplied in different areas on the right side of the thyroid.
First thing I was told by my doctor was that this was going to be easy, the best cancer to have if you have to have cancer. I think that all doctors are given that script to repeat to their patients. As most of you all have shared, the statement is so frustrating. I wish this was easy. I wish all it took was a simple surgery and a small dose of radiation. But neither the surgery nor radiation are easy.
What they don’t share is that these so called simple steps may not work the first time around. That’s my case, it is still there somewhere. And I’ve read on here how others are still fighting with this cancer years later. I’m just looking for support and advice from everyone on the best way to handle all this. I know that we need to be our own researcher and to stay on top of things. But people around me keep telling me I’m doing too much research, to just listen to whatever the doctor has to say.
My TG levels started to go down after radioactive iodine in June but now it is on the rise. Before radiation and off of T4 it was 83 or 88. After and back on T4 it went to 3.7, then 2.8, back to 3.7, up to 4.0 and the last in December it was 4.5. My next lab work is due on 2/1/11 and I may not know anything until the 10th. I’m really concerned that it may have gone up a lot since the last one. I try to talk to others (non thyroid cancer individuals) about this and no one seems to understand my concern and fear of the rising TG numbers. I know stressing over it doesn’t make it better but the thought keeps sneaking back into my head.