MD Anderson Tomorrow

Hondo
Hondo Member Posts: 6,636 Member
edited March 2014 in Head and Neck Cancer #1
Hi Everyone

Appointment at MD Anderson tomorrow to see another new ENT about this Mastoid Infection I have been fighting for the passed 7 months, just hope I can finally get some help with it this time.

I have been having a lot of side affects and not sure if it is from the Radiation treatment or from the infection. Most of the problems just started a few months ago so I can only think it is because of the Mastoid infection.

Another side affect just started two weeks ago, extreme Hi Blood Pressure, some times 224 over 124, at night while trying to sleep I feel my heart beating so hard it wakes me up. My heart doctor put me or two type of meds but the problem is the blood pressure goes from hi to extreme Low 81 over 42 and I start to feel faint.

It is terrible to be 90% deaf, going blind, can’t speak, can’t swallow, hi and low BP, and having a lot of pain in the head all at the same time.

like everyone I have my good and bad days, Other then that I am doing very Well and yes I enjoy life.

I will let you all know how the MD Anderson visit goes

All the best to all of you.
«13

Comments

  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #2
    sending them
    prayers that you get some relief and quality for the future.

    Let us know how it goes

    John
  • DJG1
    DJG1 Member Posts: 121
    #3
    Prayers with you
    Hondo,
    I will say extra prayers for your visit to MD Anderson, in hopes of some relief. Good Luck to you.
    Deb
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #4
    Thoughts & Prayers
    Sent your way buddy....
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #5
    prayers lifted, Hondo
    Praying you find the right doctor who will really listen to what you are saying and understand the impact this is having on your life.

    Hugs.
  • dennis318
    dennis318 Member Posts: 349 Member
    #6
    Noellesmom said:

    prayers lifted, Hondo
    Praying you find the right doctor who will really listen to what you are saying and understand the impact this is having on your life.

    Hugs.

    thoughts as well
    I know your agony, thoughts with you, and hopefully he can give you the relief you seek Hondo...Dennis in tn.
  • Carolinagal
    Carolinagal Member Posts: 91
    #7
    Thinking of you
    I am hoping this new ENT will have the answers for your problem and that you will get some much needed relief! You are in our prayers!
  • MarineE5
    MarineE5 Member Posts: 1,030 Member
    #8
    Hoping for a solution
    Hondo,

    I hope that the Doctor is able to pin point what is causing you all this pain and discomfort.

    About the blood pressure issue. Have you changed the medicines at all in the recent past? I only ask because for years, my pressure had been under control with what I was taking. In the last 6 months, I started having headaches again and I checked my pressure several times a day to get my reading and they were all over the place. Talked with my family Doctor and she had me try different doses of different blood pressure medicines. We finally have the right ones and I am now back on track with my pressure under control once again.

    My Best to You and Everyone Here
  • susan0803
    susan0803 Member Posts: 90
    #9
    MarineE5 said:

    Hoping for a solution
    Hondo,

    I hope that the Doctor is able to pin point what is causing you all this pain and discomfort.

    About the blood pressure issue. Have you changed the medicines at all in the recent past? I only ask because for years, my pressure had been under control with what I was taking. In the last 6 months, I started having headaches again and I checked my pressure several times a day to get my reading and they were all over the place. Talked with my family Doctor and she had me try different doses of different blood pressure medicines. We finally have the right ones and I am now back on track with my pressure under control once again.

    My Best to You and Everyone Here

    sending you thoughts of strength
    Hondo,
    I am so sorry to hear of your continued pain and frustration with your latest medical issues. You're posts show that you are such a strong, positive person. I hope you can continue to be happy and free of pain soon!
    Sending you positive thoughts your way and good luck with MD Anderson.
    Suzanne
  • Hondo
    Hondo Member Posts: 6,636 Member
    #10
    MarineE5 said:

    Hoping for a solution
    Hondo,

    I hope that the Doctor is able to pin point what is causing you all this pain and discomfort.

    About the blood pressure issue. Have you changed the medicines at all in the recent past? I only ask because for years, my pressure had been under control with what I was taking. In the last 6 months, I started having headaches again and I checked my pressure several times a day to get my reading and they were all over the place. Talked with my family Doctor and she had me try different doses of different blood pressure medicines. We finally have the right ones and I am now back on track with my pressure under control once again.

    My Best to You and Everyone Here

    Hi Marine

    This is my first time on BP meds in about 10 years. When I was overweight I had a little problems with PB but not bad. I think this is all part of the infection I have in my head, just hope to get some help tomorrow.

    Thanks
    Hondo
  • Fire34
    Fire34 Member Posts: 365
    #11
    Hondo said:

    Hi Marine

    This is my first time on BP meds in about 10 years. When I was overweight I had a little problems with PB but not bad. I think this is all part of the infection I have in my head, just hope to get some help tomorrow.

    Thanks
    Hondo

    Wishes & Prayers your way
    Hondo
    Praying that this is the time when you find out something,again more prayers headed your way
    Dave
  • MarineE5
    MarineE5 Member Posts: 1,030 Member
    #12
    Hondo said:

    Hi Marine

    This is my first time on BP meds in about 10 years. When I was overweight I had a little problems with PB but not bad. I think this is all part of the infection I have in my head, just hope to get some help tomorrow.

    Thanks
    Hondo

    BP
    Hi Hondo,

    Yes, the blood pressure thingy can be tricky at times. My one sister is lean and mean, but recently her blood pressure has been taking of to some pretty high numbers. I personally think that her job has created extreme stress on her. There is no fat on her and she exercises daily. She never had this problem before.

    I hope that your new Doctor can figure this out for you.

    My Best to You and Everyone Here
  • SIRENAF42
    SIRENAF42 Member Posts: 202
    #13
    MarineE5 said:

    BP
    Hi Hondo,

    Yes, the blood pressure thingy can be tricky at times. My one sister is lean and mean, but recently her blood pressure has been taking of to some pretty high numbers. I personally think that her job has created extreme stress on her. There is no fat on her and she exercises daily. She never had this problem before.

    I hope that your new Doctor can figure this out for you.

    My Best to You and Everyone Here

    MD Anderson
    I visit MDA every 6 months. I am amazed at that place everytime I go. How is your doc Hondo?
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #14
    SIRENAF42 said:

    MD Anderson
    I visit MDA every 6 months. I am amazed at that place everytime I go. How is your doc Hondo?

    Hondo
    Sending out extra prayers for you. I really hope that they can get you straightened out and relieve your symptoms and get to the root of your problems and fix them.
  • Kimba1505
    Kimba1505 Member Posts: 557
    #15
    sweetblood22 said:

    Hondo
    Sending out extra prayers for you. I really hope that they can get you straightened out and relieve your symptoms and get to the root of your problems and fix them.

    Sending good vibes...
    ...to you as you head to MD Anderson. You are a patriarch on these boards. We rely on you wisdom, your experience, and always your encouraging words. Take some from us this time. We are with you.
    Kim :)
  • mixleader
    mixleader Member Posts: 267 Member
    #16
    Best Wishes
    Hi, Hondo. All my best wishes and prayers headed your way. I sure hope you can get some relief from the new ENT. It sounds really tough, but it also sounds like you are one tough guy and you are obviously fighting your way through this. I can only hope that I will have this kind of tenacity and courage as I continue my struggle.

    Roger
  • rush1958
    rush1958 Member Posts: 221 Member
    #17
    Well Wishes
    My thoughts and prayers are with you.

    Rush
  • Pumakitty
    Pumakitty Member Posts: 652
    #18
    Hi Hondo
    Hondo,

    I am thinking of you and sending prayers your way. I hope they soon figure out what is going one. Lot of love coming your way.

    Kathy
  • Pumakitty
    Pumakitty Member Posts: 652
    #19
    Hi Hondo
    Hondo,

    I am thinking of you and sending prayers your way. I hope they soon figure out what is going one. Lot of love coming your way.

    Kathy
  • Pumakitty
    Pumakitty Member Posts: 652
    #20
    Hi Hondo
    Hondo,

    I am thinking of you and sending prayers your way. I hope they soon figure out what is going one. Lot of love coming your way.

    Kathy
  • CajunEagle
    CajunEagle Member Posts: 408
    #21
    Good luck, Hondo.
    It's time to get rid of that on-going problem. My prayers and hopes are with you.

Discussion Boards