Jan 16, 2011 - 4:15 am
Hello everyone!! we just got home about 2 days ago after having surgeons remove my baby's left kidney do to a growing tumor which is called a Wilm's Tumor. We are getting ready for tuesday for her first appointment with Oncologists. Yet I have a concern. We have some paper work that they would like us to fill out called study title: AREN03B2, Renal Tumors Classificatiton,Biology and Banking Study. I understand that they can research more about the tumor and the links of genes. It seems as if my baby could benefit if we signed her tumor away for more research. I know they can come up with a better treatment options for her. Yet I also understand that they can always come back and tell Physician that they feel that a different treatment would be more beneficial for her than standard treatment. But what if she is injured or maybe they want to see how this subject reacts with some new modern cure that they have came up with. Pls....I'm very confused and need guidance. not sure if I should turn in these papers in on tuesday or research some more. Parents out there if you have experienced dealing with a similar story like mine pls do reply. diagnose wilm's tumor, removal of left kidney do to growing tumor, 3year old baby and favorable histolagy stage 1 with Lymphnodes clear. I need any advice I can get please help. how many of you out there have signed up for this research?? Ty....and I look forward to reading similar stories. also what should I expect during our monitoring visits once a week with Oncologists???