Jan 03, 2011 - 10:20 pm
First we waited for test results. Then we waited for referrals. Then we waited for more test results. Then for all infections to clear. Now we wait for transplant.
Met with the transplant coordinator today. They don't think my husbands health will hold out for more than a few weeks while waiting for a donor.I'm staring at my cell phone obsessively willing it to ring. The average wait for a transplant is over 300 days. Still, I'm a believer in miracles, after all, we've come this far and he is sick enough to be at the top of the list for his blood type. He is in a regular hospital room and out of ICU, responding well to dialysis, and is 70% mentally clear with 30% active hallucinations from the toxins in his blood. (got some interesting stories, for sure)
I find myself out of patience with him when he's lucid because he's been such a PIA when he's not. Then I immediately feel guilty, and selfish, because I know so many of us are going thru this with our loved ones, and so many more of us have lost our loved ones to this terrible disease.
The statement that cancer sucks is beyond inadequate!