Jan 03, 2011 - 6:34 pm
Every bit of news I get about this terrible cancer is bad. Has anyone with NF survived an MPNST for more than 5 years?
My son had a very aggressive 11.5 cm tumor removed from his pelvis. They are going to re-scan his lung today to find out if a spot they found is a met.
I am so scared! Please, if anyone has had a good outcome, please let me know.