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Pain in the Head HONDO Up-date 12-16-10

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

As survivors we need to be on watch about possible infections that can happen at anytime and to any one of us. As most of you know I have been having very bad pain in my head for the passed many months, I have seen 2 different Oncal doc’s and 3 ENT’s about the pain and none of them could find anything wrong. Well never give up is what I always say. My wife and I found another 4th ENT doc at the Houston Medical Center; I told him nothing at first about me having Cancer because I needed him to give me an open opinion about my pain.

After he looked into my ear he realized that there was a lot more to the story and so I told him yes I had Cancer at one times in my life but on my last PET at MD Anderson I showed that I was Cancer free.

After he finished his examination he told us that I have a very bad Bilateral Mastoid Infection, I ask him to explain what he was talking about, and he did a very good job at that.

Most if not all of my pain in the head for the passed many months could be coming from this Infection. He has me on some very strong antibiotics trying to kill the infection. I am glad that we were persistence and did not give up when first told possible just more side affects of your treatment.

If any of you are suffering with pain in your head get your ENT to check you for possible Mastoid Infection and don’t give up until you are satisfied that you have an answer. I know that as a survivor my life has pain in it that I must learn to live with; I just don’t need any additional pain.

Take care my friends, I am hopping for the pains to start to ease up some over the next few days.

MJ70
Posts: 65
Joined: Nov 2010

Great Job on getting to the right Doc...In my 30 years in the medical equipment marketing business (retired) I know they are out there...and it sounds like this one might be it for you.....Good Luck.

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

Hopping for some relieve soon,

Thanks my friend

MJ70
Posts: 65
Joined: Nov 2010

Great Job on getting to the right Doc...In my 30 years in the medical equipment marketing business (retired) I know they are out there...and it sounds like this one might be it for you.....Good Luck.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Hoping the antibiotics beat down the pain soon, Hondo. Glad this doc didn't see cancer and assume cancer treatment side effects.

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

hat sound like great news Hondo and I hope the pains goes as soon as the infection is knocked out.

Amazing how that could have been missed ! I do hope we hear your NO PAIN note very soon big brother Hondo.

Scam

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

What we found is that once a doctor hears the word Cancer that is what they start looking for. So this time we said nothing about Cancer until asked by the doctor and then he started asking me questions about my ear and pain that is when he told us about the infection. Having tubes in both ears he said just one little drop of water can cause terrible problems and infection for the inner ear.

All the best to you my friend

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

Just knowing that you are praying for me helps keep the pain down, and remember I too have your name taped to my wall in prayer.

May God watch between us in our prayers

MarineE5
Posts: 760
Joined: Dec 2005

Hondo,

This sounds promising to say the least. I hope that in a few days you are back here telling us that the med's are working. I truely hope so as you have been through enough as it is.

You Take Care of Yourself, I'm sure you will because you don't give up and have that CAN-DO attitude...

My Best to You and Everyone Here

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

You are so right, but it is not me, it is the Wife behind me.

Yep I really love her now, hope to post on how the pain is in a few days

Take care my friend

DrMary's picture
DrMary
Posts: 527
Joined: Nov 2010

My brother-in-law the doctor/researcher recently reminded me that medicine was an art and not a science (otherwise, we could use computers now). I'm glad you seem to be on the right track for your head pain. Infections can be difficult, and picking the right antibiotic can be tough without a culture. Make sure you take the antibiotic prescribed exactly as directed so that the doctor will be able to make good choices in a day or two if it does not seem to be helping (one of the doctors' biggest questions can be: is the drug not working or is the patient just not taking it consistently?).

Good luck!

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

Good advice I am just glad my Wife keeps track of stuff like that for me

I am too forgetful my self

Thanks and all the best to you

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

I am hoping that this is finally an answer to out prayers to get you to pain free.

meinken's picture
meinken
Posts: 38
Joined: Jan 2010

I kept this quote in mind when dealing with my doctors. A little more doctor intervension was needed this time but I still feel there is a great deal of truth in this little quote.

The art of medicine consists in amusing the patient while nature cures the disease.
Voltaire

skipper85's picture
skipper85
Posts: 231
Joined: Sep 2010

Sounds like you're on to something. Hoping you're relieved from your pain soon.

(((HUGS)))

Skipper

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

Hondo,
Hoping for the best my friend.

Steve

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Hondo,

Glad you found someone to help alleviate your pain. Here's hoping the new drugs do the trick!

Positive thoughts!

Greg

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

Seems like doctos all think in just one diection if you give them too much infomation to start with. "Oh you have or had Cancer,then there is a pre scripted path to follow."

It is sad that you have to leave out such a huge piece of your histoy to force the doctor to think outside of the box.

Anyway, it may have been fustating, but you finally got the answer to a long sought after issue.

BEST

Mike

Clearblue
Posts: 188
Joined: Apr 2010

Good for you Hondo, 4 ENT's! I will keep this story in mind.
You are not just a believer , you are a doer.

Look forward to hearing your progress.

Take care as always
Clear

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

Here is the up-date, my Pain for the last 6 months has been between 7 & 8 I am one week into using antibiotic to treat this Mastoid infection and the pain is now down between 2 & 3 which is normal pain for me. I am just glad I finally found a doctor to hear what I was telling him.

Another problem that is just now coming about and I don’t know if it has anything to do with the infection is my eye sight. For the last few weeks I have been getting darkness in my eyes it is more on the left side where the Mastoid was infected but the eye doctor is concerned because I have it in both eyes. So here we go again I just hope the darkness goes away once the Mastoid infection clears up.

But the good part is that the Pain is down.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Well I'm glad that your pain has decreased but I don't like to hear about the problem with your eyesight. Hoping that the pain continues to lessen and the eyesight returns to normal.

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

I am like Old Man River I will just keep rolling along. I am just at that 5 years mark and being I had Radiation twice to the head I can only expect things like this to happen. My spirits are good about it so no matter what the outcome I will be just fine with it.

Thanks

luv2cut1's picture
luv2cut1
Posts: 287
Joined: Oct 2010

Hondo,

So happy to hear that the pain is better! I hope your eyesight problem is just temporary and due to the infection and treatment. You have such a great attitude about everything. I hope I can learn from you.

Good luck with the eyesight and please keep us posted.

Love,
Myka

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

Sometimes life is like a train, there are a lot of stops along the way and this is just one more of them

Thanks my friend

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

What a relief that must be for you Hondo. So glad to read it. Concerned about the darkness though as you are definitely a child of the light. Maybe you need to go to an optometrist and not tell them about the cancer. Praying for your eyesight. May the scales fall away.

Bob

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

Thanks I need the prayers, the optometrist ordered an MRI so I will have that done on Monday. Just hoping it too is all part of the infection

Vivi C's picture
Vivi C
Posts: 70
Joined: Jul 2010

So so happy for you! Way to go. God Bless,
Viv

colinc1
Posts: 14
Joined: Jun 2010

Hi Hondo

I am going through the same sort of thing at the moment,and may have to do the same thing,see a doctor who does not know my history,once they know, they assume too much,rather than go through a process of elimination.

I am having some shocking pains shooting into my ears and a lymp glan under my chin on the right side that is swollen most of the time,and also get huge swelling around my adams apple when i wake up in the morning, which fades away after an hr or so,my operation was only 5 mths ago.

I had a cat scan with a biopsy on the swollen glan done recently, the result was, a possible stone blocking the glan, and no cure or remedy suggested.

I also went to the cancer hospital dentist, who said i could possibly have an infection, but did not offer any suggestion or referral to see someone else about it.

I guess i am going to have to try my luck with a doctor outside the cancer scene,and hopefuly get a course of antibiotics to see if it helps

Cheers

Colin

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

You need to find a good ENT, I am not sure where you live but look on the internet, what I did was to find an older ENT doc who’s been around and seen most everything.

Wishing you the best my friend, never give up

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Hey Hondo glad for the news and thanks for showing us how to self-advocate!

Best,

Mick

ratface's picture
ratface
Posts: 1254
Joined: Aug 2009

and prospero ano.

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

Thanks and you guys have a happy hoilday

timreichhart
Posts: 195
Joined: Aug 2010

hondo I have to ask you did you have any ear infection before you had your cancer treatments or not? I dont know if you remember how I found out my cancer but I can say I had a massive ear infection that lead upto my NPC and when I see my ENT doctor again I am going to ask him if I would have more common ear infections after year or so after all treatments stop. Because right now I only have one tube in my ear and that is in the right ear and the radiation doctor could not believe that my left ear didnt get a ear infection during and after treatment. But its good to hear that you ENT doctor found this.

Hondo's picture
Hondo
Posts: 5887
Joined: Apr 2009

No I did not have any infections that I can remember, I lost hearing in the right ear then about 4 months later they found the NPC cancer. I too got tubes put in, at first just on the right ear but after a year I had to get them put into both ears. And yes that is when I started having a lot of ear problems and infections that hurt like hell.

Take care my friend, life is great and a blessing everyday to be alive

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