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luv2cut1's picture
luv2cut1
Posts: 287
Joined: Oct 2010

Hi Pam,

I am sorry your PET results did not come back as good as you had hoped. I was wondering why you hadn't posted the results, because I know you had your CT about the same time Pat had his PET. I was very worried and checked often for your results. I wanted to ask you, but figured that if you wanted to tell us, you would. You are a wonderful member of this board and are always giving a lot of love and support to others. I hope that now you will accept our love and support for you.

Just to let you know, Pat had stage II supraglottic cancer in 2008. He was treated with chemo radiation. He got the all clear in December 2008. In February of 2009, he noticed a lump on his neck. Sure enough, it turned out to be cancer. He ended up having involvement in four lymph nodes and there was extracapsular spread. He had a radical neck dissection (positive margins) along with chemo reirradiation. His 14 month PET in November came back good. So - I know that a neck dissection is not a pleasant thing and is not what you had hoped for, but there is great hope that it will get the cancer once and for all. Pat is doing very well and his quality of life is good. We never know what tomorrow holds, but we are hoping and praying for good results for you. You will get through this and we will all be here to help and support you.

Please take care and keep us posted.

Love,
Myka

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Myka,
Thank you for your well wishes and prayers - it matters.

I am sorry I did not post my results sooner. I was hoping my scan was lost in the shuffle, and no one would notice that I hadn't reported. Part of the time, something nagged me to post "You should post - you would want to hear from others, whether it was good or bad". Finally, when Vivi asked if anyone else did "wait and watch", I had to speak up.

Very glad Pat is doing well. I fully expect to have a smooth recovery from the procedure - I'm sturdy. when I was about 12, I fell down a full flight of stairs (carrying my family's only TV); when I landed in the entryway of our duplex, my mother (who had run to the entry) asked "Is it broken?" She said "You could fall off a house and be OK". For the record, the tv was fine - I had my arms wrapped around it, and curled my legs up in the fall.

How long after the dissection did Pat start chemo rads? Was he able to eat after the dissection? I didn't give it any thought, thinking that the nodes aren't inside my throat, so I'll be able to swallow, then a cousin expressed concern that I wouldn't be able to do the family Christmas gorge-fest (well, it's watered down now, too - it's probably just a pig-out now). I have the surgery the 21st - will be home the 23rd or Christmas Eve. I'll be OK if I have to miss another Christmas feast, but I get the feeling it matters to my family.

thanks again for letting me know you were thinking of me. Hope you and yours are prepping for a wonderful Christmas.

alwaysforhim
Posts: 14
Joined: Jul 2010

Hi Pam, My spouse had stage IV with mets to the lymph nodes. In May he did the 35 radiation treatments, while enduring the cisplatin chemo. We were hoping beyond hope we would get a clean scan in Sept since he was still pretty well beat up. It didn't come back clean. He went in for a modified neck disscetemy on Sept 3. He is doing great. He was able to eat as soon as he was released. Slowly and lots of water, but he did eat. His only complaint was major stiffness on the left side of his neck. In Nov. we finally got that no evidence of disease we were hoping for. I have no doubt you will be doing the ned dance on New Year's Eve!

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Glad to hear your hubby's doing so well, alwaysforhim (and not just because I'm following in his treatment footsteps, but there's that, too). Thanks for teh good word.

kingcole42005's picture
kingcole42005
Posts: 177
Joined: Oct 2010

I had a neck dissection and I don't think it will effect your eating too much. My problem was my cancer was in the floor of my mouth and I had to have it packed with guaze for days. But as soon as they took out the all the tubes (feeding, drainage)and guaze I could get stuff down fine. Good luck to you, your going to have a GREAT Christmas!!! Shelly

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

I'm thinking I'll be eating just fine, thanks. If you could, I should really be fine, since I won't be undergoing anywhere near what you did. I think I will have a great Christmas - you have the same.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

I'm thinking I'll be eating just fine, thanks. If you could, I should really be fine, since I won't be undergoing anywhere near what you did. I think I will have a great Christmas - you have the same.

Hondo's picture
Hondo
Posts: 5932
Joined: Apr 2009

Keeping you in all my prayers Pam

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Hondo,
As always, thank you.

rush1958's picture
rush1958
Posts: 201
Joined: Jul 2010

Pam,

I'm sorry you need a little follow-up, but this may be the thing that does the trick.

I had the neck dissection up front along with laser surgery on the BOT tumor. I was able to swallow within a day or two. It was by far these easiest part of the treatment process. Having my tonsils removed for biopsy was horribly worse.

You'll be fine for a Christmas feast!

Rush

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Rush,
Thanks for the boost. I really appreciate the comparison to the tonsillectomy (mine didn't have cancer, but went anyway); that was a miserable time for me.

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Right beside you all the way Pam. Praying you up big time.

Bob

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Thank you, Bob - big time. Funny - past few days, I think about you when I'm dry.

luv2cut1's picture
luv2cut1
Posts: 287
Joined: Oct 2010

Hi Pam,

As you well know now, your scan results did not get lost in the shuffle and I am so glad you did post. I realize this is a very private battle for us all and did not want to intrude. I hope you know that there are many people here thinking about you and praying for you - always.

Pat had a radical neck dissection with over 60 lymph nodes removed. He then had a pectoral flap reconstruction. He was in the hospital for a week. I hope your procedure is not as extensive, but Pat could eat after the surgery. He was on so many pain meds and was on a ventilator for a couple of days so he didn't really feel like eating, but his throat was fine. I have no doubt as sturdy as you are, you will do just fine. Pat started his chemo/rads 7 1/2 weeks after his surgery. We were told that they like to start them within 6 weeks, but we were getting second and even third opinions because his prognosis was not great. When we finally got our third opinion at the University of Colorado hospital, they told us that it was much more important to have a good plan 7 1/2 weeks out than it was to have a hurried plan sooner. If you have to have chemo/rads I hope they can start yours within the six weeks. I really hope that you don't need the chemo/rads, but if you do, please know it is not easy, but it is doable. For someone that can fall down the stairs with a TV and not even break the TV, much less your own body, you will be able to handle it. Pat did treatment both times without a feeding tube and now he can eat almost anything he wants. He is more sensitive to spicy foods than he used to be, but other than that he really has no problems. He just eats a little slower than he used to.

If you have any questions at all or if we can be of help in any way, please let us know. My email is mykalandry@gmail.com. Know that all of us are thinking of you and praying for you. We are all looking forward to the NED report that will be coming soon.

Take care and please keep us posted when you feel like it. Prayers for you every day and especially on the 21st. You will have a wonderful Christmas.

Love,
Myka

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I'm so sorry to hear your scan results were not as good as you, and all of us here, had prayed for. You've always been so strong for us and helped many of us through our treatments so now we are here to help you be strong.

You say "I'll be OK if I have to miss another Christmas feast, but I get the feeling it matters to my family." But I respectfully disagree, your family will be so happy to have you there with them whether or not you eat.

You will continue to be in my daily prayers and I will be sending positive energy and additional prayers on the 21st.

Stay strong,
Glenna

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Glenna,
Thanks for the prayers and energy sent on my behalf - it matters. You're right - even if I couldn't eat (but I will be able to), my family would rather have me there. Last year (when I missed Christmas - in hospital), my cousin did say that even though I was obviously feeling bad Thanksgiving, at least I could be there.

arjenkins's picture
arjenkins
Posts: 36
Joined: Nov 2010

Will be keeping you in my prayers. Look forward to hearing good news from you

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

Pam, this will get it once and for all. Just a little setback. I have rad moe posts whee people opted to have the rads and Chemo first, only to have it come back to the neck and the eventual Neck Dissection solved the issue for good.

My thoughts and payes are with you tonight.

BE STONG!!!!

Mike

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Mike, thanks for the positive thoughts. Naturally, since it's me involved, I'm like "this is why everyone has the dissection up front". Thanks for helping me be strong - instead of needing to pump iron for my muscles, I'm pumping posts for my resolve. I'm getting beefy.

donna340
Posts: 72
Joined: Nov 2010

Sending lots of prayers!

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Praying that all goes well for you. I am so sorry that it didn't turn out perfect for you. Thank you for all the support that you give to us here. It's time for us to give it back to you.

Hugs,

Sweet

staceya's picture
staceya
Posts: 704
Joined: Jan 2010

Dear Pam,
I am sending you lots of love and positive energy.
You have been there for us as we are now for you.
Stacey

don62
Posts: 25
Joined: Sep 2010

Pam, your in my prayers.
Don

rozaroo
Posts: 667
Joined: Apr 2010

Sorry your scan was not what you hoped for. You are such a positive & upbeat lady & are alway's such a help to us all. Now it is our turn to be there for you. Many thought's & Prayer's are headed your way.
God Bless
Roz

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Appreciated!

D Lewis's picture
D Lewis
Posts: 1547
Joined: Jan 2010

We're here for you. Sending strengthening thoughts.

Deb

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

Positive thoughts, good vibes and prayers headed your way, Pam.

--Jim in Delaware

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

You know, I'm feeling the positive thoughts, vibes and prayers. Feels good.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Team,

Your posts are so touching. I had to back off for a while before I could reply. I can say I know I'm not heartless; reading your kind words made my heart ache, it was so full. Argh - now it's doing it again while I'm thinking about it. If you tell any of my totally pragmatic Irish/Dutch family members that I was mushy, I'll have to pretend I don't know what you're talking about (if not, they'll stage an intervention). But I won't forget. Thank you. I'll take you all to the hospital with me; I've not been in this one, but heard the food's good, so you'll be well fed and my son will put up a Christmas tree. Well, maybe it'll be best if I take you with me in spirit. Thanks for giving me strength and optimsim.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Double Post - I really mean it

greg from pa
Posts: 86
Joined: Jun 2010

Positive thoughts and fervent prayer for you as you go through one more step toward recovery.I will be looking for that NED report soon! we are all pulling for you! Greg

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

Pam,

You should do fine and I will keep you in my prayers.

Best,
Steve

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Pam,

You're one tough cookie. You'll do great! Keep those warm and witty posts coming.

Positive thoughts headed your way!!

Greg

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