CSN Login
Members Online: 16

always something

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey guy's, funny story, I'm at work and my Onc. calls me and tells me she is very sorry.... I'm thinking this can't be good....she proceedes to tell me that when I had my lumbar puncture, I should have received intrathecal chemotherapy.... ARE YOU KIDDING ME!!!!!!!! anyway, I have to go thru another lumbar puncture next week.......... ok it's not really a funny story, but if I'm not laughing I'm crying! LOL Vinny

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Vinny,
I can not believe this with all the crap you went thru with the migraines and all. Now its all over again.I just can't believe that the god,I mean Dr. made that mistake. You have no choice in this matter,so make sure you lay on your back for at least 24 hours following this messup. I just don't see how they could have forgotten this step as IMPORTANT as it is.John(FNHL-1-4A-5/10_

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Geez Vinny..un-frickin-real!!!! I'm tellin you...you sure wouldn't want me going with you to your next appointment with that doctor!!! This really pi$$es me off. Just when you are back to work and thinking you can get on with life and then to get slammed with this news!!!! Ok..I'm not going to say anymore, except...I'm soooo sorry, my heart truely hurts for you and I'll be putting you at the top of my prayer list. Of course it goes without saying that I'll continue to think only positive thoughts also. Awww man..this is such a bummer. Love...Sue

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

You sound like my wife Sue! hahahahaha It's not the worst thing that could have happened. Like I tell everyone, got to just DO IT! Hope you are making out well!!!!! Vinny

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Crazy John, my Onc. said that she just recieved the letter from the Univ. of Penn. three weeks after the last lumbar puncture! I'm at a lost for words, I guess that its better to be safe then sorry, I really don't want to do it!!!! hahahahaha

truckingalong
Posts: 444
Joined: Aug 2010

Sorry, Vinny to hear about the weird setback but what is intrathecal chemotherapy? I thought you are done with treatment?

All the best,
Liz

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Liz what they do is... do the lumbar puncture, while the needle is in, my Onc. dispenses in heavy dose of Chemo in the spinal fluid, it then "kills" any cancer cells that may be lurking in the spinal fluid. These types of cells don't always show up in a PET Scan........ Vinny

truckingalong
Posts: 444
Joined: Aug 2010

Wow - my initial report shows that I have cancer here and there and at the tail bone area. Good grief! I will have to ask the onc about this next Tuesday - thank you for explaining this procedure. I will receive results of my scans from yesterday. You are right - always something to deal with!! On the positive side, we have each other to lean on!

Liz

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Having a great support group really does help! Thanks Liz

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

So sorry Vinny. I am confused. Wasn't this discussed with you prior to the LP? If not then why would that be? Mary

onlytoday's picture
onlytoday
Posts: 601
Joined: Jun 2010

Vinny,

Well, I'm glad you're back at work. How is that going for you?

But... concerning the phone call and the screw up with your lumbar puncture, well my God. It just leaves me speechless. I mean we are not talking about forgetting to weigh you or something dumb. This is a HUGE stupid mistake. Oh it makes me so mad that this has happened to you. Well, thank goodness for your sense of humor and grace. You can do this (of course). I just hate what we all have to go through and then to have to do this twice...

My thoughts and prayers are with you, as always. Let us know when you get rescheduled.

Donna

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Mary that was my point exactly!!! Univ. of Penn suggested it, then they send a letter saying it should be done! Donna you are right, I have to have a sense of humor, better to be happy then sad! I will let you guys know........

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

This leaves me speechless(and that's saying a lot). But at least somebody realized that you didn't get it. I know what intrathecal is but don't know much about it as far as side effects etc. Has anyone talked with you about that? What to expect? I would be interested to know. As always good luck and keep us posted. Mary

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Vinny,
Just another bump in the road as we say,huh? In this game those bumps can really throw us off.If anybody can keep a positive outlook it is you. Remember the ducks treading water on the pond? I am sure it pertains here too. I know it would be with me. You will do fine,but as Mary was saying just check on any side effects so you will know what to expect. Good thoughts. John(FNHL-1-4A-5/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Vinny,
Just another bump in the road as we say,huh? In this game those bumps can really throw us off.If anybody can keep a positive outlook it is you. Remember the ducks treading water on the pond? I am sure it pertains here too. I know it would be with me. You will do fine,but as Mary was saying just check on any side effects so you will know what to expect. Good thoughts. John(FNHL-1-4A-5/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Vinny,
Just another bump in the road as we say,huh? In this game those bumps can really throw us off.If anybody can keep a positive outlook it is you. Remember the ducks treading water on the pond? I am sure it pertains here too. I know it would be with me. You will do fine,but as Mary was saying just check on any side effects so you will know what to expect. Good thoughts. John(FNHL-1-4A-5/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Vinny,
Just another bump in the road as we say,huh? In this game those bumps can really throw us off.If anybody can keep a positive outlook it is you. Remember the ducks treading water on the pond? I am sure it pertains here too. I know it would be with me. You will do fine,but as Mary was saying just check on any side effects so you will know what to expect. Good thoughts. John(FNHL-1-4A-5/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

What the heck?????

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

What the heck?????

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

What the heck?????

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

What the heck?????

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

I am sorry John but this just cracks me up.

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Mary,
Trying to figure out how to make it work with $20 bills. John

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Mary,
Trying to figure out how to make it work with $20 bills. John

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Mary,
Trying to figure out how to make it work with $20 bills. John

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Mary,
Trying to figure out how to make it work with $20 bills. John

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

I would be on board with the 20.00 bill thing thou. Mary

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Mary,
It seems to only do it in the morning. Guess I will have to post later in the day from now on. I posted a couple of other things this morning and it did it again,so I just deleted everything. Later in the day all goes as it should. My luck if I figure out a way with the 20's I'll have the SWAT team around my house before the ink drys. HAHAHAHA!!! John

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

LOL, when you figure it out on making 20's John let me know!!! Vinny

onlytoday's picture
onlytoday
Posts: 601
Joined: Jun 2010

John,

Listen, I say we go for the gold 50's or 100's would make for lighter work!!! hahahaha

Love you guys,

Donna

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Donna,
You are so right.I think I am still suffering from a lttle chemo brain. What was I thinking....mere 20's. hahahaha!!!!!!!!!! John (FNHL-1-4A-5/10)
Seriously though,I do believe the chemo brain does linger for quite a while. Maybe some of the ones that have been in remission for a while can shed some light on that.

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Donna,
You are so right.I think I am still suffering from a lttle chemo brain. What was I thinking....mere 20's. hahahaha!!!!!!!!!! John (FNHL-1-4A-5/10)
Seriously though,I do believe the chemo brain does linger for quite a while. Maybe some of the ones that have been in remission for a while can shed some light on that.

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi John,
Your computer is doing better...only 2 repeat posts this time! Just about the time you figure out how to profit from this, it will stop doing it! hahaha! I cracked up yesterday when your posts kept repeating themselves...sorry..I figured you weren't laughing, but my warped brain thought it was hilarious.hahaha!...Sue

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010
COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Sue,
I think if I wait till after 3pm est then I won't have any problem. At least I don't think I will anyway. I was saying to Donna that the chemo brain must still be here because I was talking about 20's and should have been talking about 50's and 100 dollar bills. Then again, I AIN'T gready.HAHAHAHA John

truckingalong
Posts: 444
Joined: Aug 2010

Seriously!!! I've been really uptight today anticipating about tomorrow when I will find out about my results of my scans. Then I saw your repeated posts - that made me laugh hard!

To be continued... (wink)

Liz

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Liz,
You will be fine with the results tomorrow. They didn't schedule mine that way. I had to come in at a different time and day for my scan. It was the same for the last scan. Then I had to come back for the results of that. I was too weak to get the results beforehand. I just dragged into the Dr. office for the results. I usually would go to the lab the next day and see the results myself. I did get a copy of them though. I got a copy of all my reports. I tell everyone to make sure to get copies. You never know when you will need them. I go over them so much I just about wear all the ink off them. make sure you give us those positive results tomorrow. John(FNHL-1-4A-5/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Liz,
You will be fine with the results tomorrow. They didn't schedule mine that way. I had to come in at a different time and day for my scan. It was the same for the last scan. Then I had to come back for the results of that. I was too weak to get the results beforehand. I just dragged into the Dr. office for the results. I usually would go to the lab the next day and see the results myself. I did get a copy of them though. I got a copy of all my reports. I tell everyone to make sure to get copies. You never know when you will need them. I go over them so much I just about wear all the ink off them. make sure you give us those positive results tomorrow. John(FNHL-1-4A-5/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Liz,
You will be fine with the results tomorrow. They didn't schedule mine that way. I had to come in at a different time and day for my scan. It was the same for the last scan. Then I had to come back for the results of that. I was too weak to get the results beforehand. I just dragged into the Dr. office for the results. I usually would go to the lab the next day and see the results myself. I did get a copy of them though. I got a copy of all my reports. I tell everyone to make sure to get copies. You never know when you will need them. I go over them so much I just about wear all the ink off them. make sure you give us those positive results tomorrow. John(FNHL-1-4A-5/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Do you believe this s**t????

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Do you believe this s**t????

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Do you believe this s**t????

merrywinner's picture
merrywinner
Posts: 620
Joined: Aug 2009

I certainly believe it now!!

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Poor John.... ha!ha!ha!
Sue

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network