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My mouth is so dry

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

How dry is it? It's so dry that......

I sneezed earlier and sand sprayed everywhere.
I was looking at the sores in my mouth and saw an oasis but it turned out to be a mirage.
I went to brush my teeth and a dead camel fell out.
I got a piece of water stuck between my teeth.
I've been using it at night to make beef jerky and banana chips.
The homeless have been using it to take shelter from the rain.
I have to prelube my dental floss with vaseline.
I thought I had a piece of food stuck in my throat; it was a cactus growing there.
Israel is sending firefighters just in case.

Seriously though. Very dry. But; only 2 and a half more weeks of radiation. Almost there!

Bob

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Bob,
I've got that "The Way We Were" song in my head. For the non-antiques out there, the song starts out "Memories . . . " But not missing the desert-mouth days.

Soldier on, Bob. And know that post treatment, I'm sitting here, eating some Chex Mix (yeah, without soaking it in chicken stock or something til it's mush - I had popcorn a few days ago). Last night, like every night, I did not wake up at all because I was dried out and had to drink. And there are some things the lovely sample people at Sam's Club offer me that I actually accept and eat even if I have no water on me (because I sometimes walk in without a water bottle clutched in my hand - got that? - my hand is not permanently shaped in the "c" position because I don't always hold a water bottle any more). OK, it's not perfect. It's not like pre-cancer days. But it's soooo much better than it was - you'll get there too (yeah, I know that's little consolation when you're getting up five times a night to gulp water, but you've got better days ahead). Do well.

D Lewis's picture
D Lewis
Posts: 1547
Joined: Jan 2010

M&M's wouldn't melt in my mouth... Gummi Bears would adhere permanently... I could store my cotton balls in there... It's hard to do the "queen wave" with my right hand stuck in that water-bottle-clutch position... Still buying water by the case. Have to keep two water bottles in my purse.

Thanks for the inspiration, Pam. I guess there is still some hope, although I did get hit hard on BOTH sides by the rads.

Deb

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Sounds so good yet so impossible right now. Excited for when it comes back. Thanks for reminding me that this is temporary. Next drink of waters for you Pam.

Bob

Hondo's picture
Hondo
Posts: 5936
Joined: Apr 2009

It is good to know that we can still laugh through the trials

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

That was classic. I am right there with you. My mouth is so dry, I have to dry heave to bring up the little bit of mucous that is stuck way down in my throat.

It has changed the time in the morning when I Tube feed. If I feed just after I wake up, I have ended up vomiting up everything I just pumped in. It seems to start out as a dry heave to cough up a little mucous / saliva.

Any advice or suggestions??

Take Care

Mike

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Biotene makes a gel/paste that is long lasting. I read about Sweetblood doing it and tried it. It works well. I wake up much less dry than normal. It is kinda nasty tasting to me right now so it doesn't work well during the day. Might be just the thing for you Mike. Good luck.

Bob

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Yeah I have my biotene spray bottle next to my bed right now because I'm out of my GC Dry mouth gel. That GC stuff tastes gross to me still. :p

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Laughed so hard I had tears in my eyes. I'm 15 months post treatment and still sip water 24/7 but I wouldn't describe my dryness quite as bad as yours. Hopefully when you have finished radiation you will start to see improvement. It may take some time and will only improve a little at a time but you will improve.

Stay well,
Glenna

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Hey, at least you guys have two salivary glands!

I always say my mouth is so dessert dry, I could spit rattle snakes.

Hondo's picture
Hondo
Posts: 5936
Joined: Apr 2009

Now that is dry

All the best to you sweet

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

I'll add it to the list. That's great Sweet!

Bob

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

My pleasure to make you laugh Glenna. Feels good doesn't it. Keep laughing.

Bob

kingcole42005's picture
kingcole42005
Posts: 177
Joined: Oct 2010

I describe it as my mouth is as dry as the Sahara desert. I am now a Biotene addict. 2.5 more weeks I'm so jealous!! I have 9 days down out of 33. Your almost there!! Good luck to you. Shelly

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Ah the Sahara... a rainforest compared to the desolate wasteland that is my mouth. You're at 10 today. Almost a third done! I'll wait for you at the finish line with nice cold glass of biotene on the rocks with a splash of caphosol.

Bob

kingcole42005's picture
kingcole42005
Posts: 177
Joined: Oct 2010

LMAO!! Love, love, love your humor! Keep it coming, we need to laugh!!! 10 down 23 to go!

charles55's picture
charles55
Posts: 87
Joined: Aug 2010

My mouth is dryer than a popcorn fart.

I eat grapes with everything. They are like little water bombs.

rozaroo
Posts: 667
Joined: Apr 2010

Thank you for my morning chuckle lol! Oh & popcorn fart! I love that one lol!

Hondo's picture
Hondo
Posts: 5936
Joined: Apr 2009

A popcorn fart, I am rolling over with laughter

kingcole42005's picture
kingcole42005
Posts: 177
Joined: Oct 2010

Popcorn Fart!! Too funny! Good tip on the grapes.

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

That is some funny stuff. Kinda gross too. I like it! Grapes, yes. I think I can do that. Thanks for that tip.

Bob

Bigfuzzydoug's picture
Bigfuzzydoug
Posts: 154
Joined: Jul 2010

Just last night I was in deep concentration in my office working. My 6-yr old walks in, asks me a question and when I went to answer, I realized my dry lips had fused together. Damn that sucks! Dry mouth like you've got Crazy Glue on your lips. He was cracking up laughing and called to my wife and daughter to come watch daddy try and open his mouth. It took some effort and I put on a good show for them.

kingcole42005's picture
kingcole42005
Posts: 177
Joined: Oct 2010

Yeah I guess smoking pot is out of the question for head and neck patients. Can you imagine cotton mouth on top of Sahara Desert mouth! That would be just terrible!! No I don't smoke pot, and I plead the fifth if I've ever tried it!

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

Just yesterday I went to pull my mouthguard out after rads and my tongue came out with it. Then my lips were stuck in that position until I could make it to my water. Same show as yours for the rad techs.

Bob

kingcole42005's picture
kingcole42005
Posts: 177
Joined: Oct 2010

Sorry my computer was freaking out and posted this 3 times?

kingcole42005's picture
kingcole42005
Posts: 177
Joined: Oct 2010

You know what I've been doing before rads is squirting a little biotene gel in to make it more comfortable. It helps a little, but I didn't ask if it was ok to do that, I guess I should, huh? Shelly

D Lewis's picture
D Lewis
Posts: 1547
Joined: Jan 2010

You might want to double check that. I used aquaphor and Biafine creams on my exterior skin, and was told that neither should be applied for four hours before each radiation session. I'm wondering if an application of moisturizer to the interior would be subject to the same limitation?

Deb

kingcole42005's picture
kingcole42005
Posts: 177
Joined: Oct 2010

You know what I've been doing before rads is squirting a little biotene gel in to make it more comfortable. It helps a little, but I didn't ask if it was ok to do that, I guess I should, huh? Shelly

Hondo's picture
Hondo
Posts: 5936
Joined: Apr 2009

I know the feeling, I was working outside one day and my wife came up as said you have white lipstick on or something, it was dry spit and had my lips stuck together. I headed inside really fast when she went for the water hose.

ekdennie's picture
ekdennie
Posts: 231
Joined: Aug 2010

my kids keep asking me if I have had something to eat and they want to know why mommy has suddenly become a messy eater. I hate to tell them that it isn't food, but dry mouth. I am so busy drinking water all day and I was drinking non-stop through radiation that when the doctor asked if I had dry mouth I said, I don't think so...then I went 10 minutes without my water...it left me with a kitty litter feeling in my mouth...I still wake up at 3 am and drink 3 glasses of water...then again at 6 to get the kids up and my husband still hasn't caught on that I am crank because I haven't had my water and my tongue is sticking to my teeth and my mouth piece! My mom noticed the pile of glasses next to my side of the bed and asked me if I really needed for giant cups of water...I replied, if you want me to try to eat then yes. when I go out to eat I love watching the waiters get me glass after glass of milk and water without ice! They get good tips...I want to try to eat like a normal person...I just need tons of fluids to sort of do it! :)

Hondo's picture
Hondo
Posts: 5936
Joined: Apr 2009

I am not sure if you can but try using a mouth spray at night, I use stoppers 4 it works really good for me. Instead of having two big bottles of water by the bed I now only have a small ½ way filled bottle. When I go our to eat I too order a large glass of water with lemon and no ice please, they always give me that funny look.

Take care and keep posting
Hondo

ekdennie's picture
ekdennie
Posts: 231
Joined: Aug 2010

thanks I will give it a try!

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

I have used Stoppers4 for at least 8 years, after trying everything else I came across it. Have not even tried anything since, it is a huge relief.

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

I have just had serious dry mouth the last week, why it suddenly kicked in, I would sleep at night and have build up of phlem that turn crusty around my mouth, Now its turns real dry and scary at times. I can feel the build up in my throat till I break it loose, I have gotten up a few times a night and got my Biodene spray...ala...sweetblood, I also notice i am sleeping longer, hours, is it because of restless sleep or lack of oxygen...I will ask My Cancer Doctor coming up. Thanks. Dennis

MJ70
Posts: 65
Joined: Nov 2010

Never tried that one...used all the products Biotene makes...also like oasis made by Sensidyne but have not been able to find it any more...'saw a new one on the shelf they make that is for dry mouth but have not been able to find it now that i need it ...One thing for all the dry mouth folks is to use the anti cavity non alcoholic mouth every day religiously along with fluoride jell ...Had a Dentist that does reconstructive jaw surgery tell me i needed about $10,000 worth of cavities refilled that where under my crowns...Shocked me...went to my regular Dentist and he did them for $2000...This happened in only 4 months from my last check up and cleaning ...I now live on anything Fluoride... almost...And slowed it down ... Also Checked out Neutrasal that was suggested on the Board but the cost was $877 for one months supply...I think it was primarily used during the treatment time to help mouth sores...but was good for dry mouth too..

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Hang in there Dude! Only 2 weeks, yeah!! Can't wait for your recovery so we can set up a hike somewhere!!

Positive thoughts!

Greg

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