D & C again (just had 6mths ago)

disneyfan2008
disneyfan2008 Member Posts: 6,583 Member
edited March 2014 in Breast Cancer #1
Due to tamoxofin had one D & C 6mths ago...and just had one this week. MORE thickening of uterus (had some in one yr of meds and more in last 6mths) so after my procedure next week i'll know if I will need hystertomy!...

Does increase of thickening ( i know expected) in such short time on med avg? I thought it would have been much slower over the 5 yrs of med..I know we are all different...just cruious!
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Comments

  • DebbyM
    DebbyM Member Posts: 3,289 Member
    I don't know disneyfan, but,
    I don't know disneyfan, but, I am sure some of the other sisters in pink will be able to help you with info.


    Hugs, Debby
  • SIROD
    SIROD Member Posts: 2,194 Member
    Uterus Thickening
    Dear disneyfan2008,

    I had one D&C for the wonderful gift that Tamoxifen gives or leaves. I had thickening of the uterus for over 6 years before it really was really necessary to perform a D&C. My cells were turning into cancer.

    What does the pathology report state? Are the cells normal or are they in the process of changing or have they changed?

    Perhaps your oncologist can prescribe an aromatase inhibitor for you instead of the drug Tamoxifen. A lot of women do go on AI's after a time on Tamoxifen. I would think this would be a better solution than having an invasive procedure such as a hysterectomy.

    Have a second opinion from another gynecologist and certainly include your oncologist before proceeding.

    Best to you,

    SIROD
  • cahjah75
    cahjah75 Member Posts: 2,631
    Disney fan
    my sister took Tamoxifen 9 years ago for 5 years. She had one D & C done during that time. She was in her late 40's and approaching menopause. Has not had any other problems since completing. Wishing you well.
    {{hugs}} Char
  • Marcia527
    Marcia527 Member Posts: 2,729
    I started spotting and I had
    I started spotting and I had to have a D&C after 9 months on Tamoxifen but don't know if it contributed to it or not. I had polyps. But the onc determined I was in menopause and switched me to Aromasin because of family history (I had a sister who had uterine cancer).
  • Alexis F
    Alexis F Member Posts: 3,598
    cahjah75 said:

    Disney fan
    my sister took Tamoxifen 9 years ago for 5 years. She had one D & C done during that time. She was in her late 40's and approaching menopause. Has not had any other problems since completing. Wishing you well.
    {{hugs}} Char

    I've never had a D& C done,
    I've never had a D& C done, but, I want to say good luck to you. I am sorry that this even happened.

    Hugs, Lex
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    Marcia527 said:

    I started spotting and I had
    I started spotting and I had to have a D&C after 9 months on Tamoxifen but don't know if it contributed to it or not. I had polyps. But the onc determined I was in menopause and switched me to Aromasin because of family history (I had a sister who had uterine cancer).

    menopause same time as cancer
    So all at once...and also my Ulcertive colitis was at it's worst in 17 yrs...but the tamoxofin put that in remission..so one good thing came of this..

    GYNO said polyups-once pathology i'll know if need surgery...

    I LOVE MY dr...have gone to him for almost 20 yrs..and trust...

    I am sure my oncologist will have an opinion..(having results sent to her as well)

    thanks for info..
  • crselby
    crselby Member Posts: 441
    first d&c ever after less than a year on Tamoxifen
    I've been on Tamoxifen about as long as you, Disneyfan. My onc said uterine ultrasounds were not needed as spotting would be the sign that there was endometrial cancer and we could just do a hysterectomy to cure that. Whattttt?????

    So I found a gyn who is NOT an Ob and specializes in older women (I'm 59). She recommended a baseline ultrasound a year ago. In October the annual (second) ultrasound showed thickening. Had very uncomfortable and expensive hysteroscope that showed 2 polyps. Then had (knocked out for) expensive hysteroscopic endometrial polypectomy basically, a D & C) 3 weeks ago. Healing fine now. Path report showed everything benign. Am having reports sent to onc. Will see him next month. If I don't like what he has to say this time, I'm changing oncologists. He's far too flipant with my health.

    I wonder what's down the road for us?

    ~~Connie~~
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    crselby said:

    first d&c ever after less than a year on Tamoxifen
    I've been on Tamoxifen about as long as you, Disneyfan. My onc said uterine ultrasounds were not needed as spotting would be the sign that there was endometrial cancer and we could just do a hysterectomy to cure that. Whattttt?????

    So I found a gyn who is NOT an Ob and specializes in older women (I'm 59). She recommended a baseline ultrasound a year ago. In October the annual (second) ultrasound showed thickening. Had very uncomfortable and expensive hysteroscope that showed 2 polyps. Then had (knocked out for) expensive hysteroscopic endometrial polypectomy basically, a D & C) 3 weeks ago. Healing fine now. Path report showed everything benign. Am having reports sent to onc. Will see him next month. If I don't like what he has to say this time, I'm changing oncologists. He's far too flipant with my health.

    I wonder what's down the road for us?

    ~~Connie~~

    wow...thanks for info
    MY Gyno said he normally does not do these test unless and issue. (he did ask discharge (very little) or spotting (NONE)-

    When at oncologist she said you need the test..I said I JUST had one..she said should do every 6mths...my GYN iffy but said IF she insists I'll do it. (I am 51)
  • VickiSam
    VickiSam Member Posts: 9,079 Member

    wow...thanks for info
    MY Gyno said he normally does not do these test unless and issue. (he did ask discharge (very little) or spotting (NONE)-

    When at oncologist she said you need the test..I said I JUST had one..she said should do every 6mths...my GYN iffy but said IF she insists I'll do it. (I am 51)

    Connie and Diseynfan2008 .. Thank you BOTH ..
    for this posting -- I am having the same difficulties .. only now after all my chemo therapy .. what the helll???? I am ready to scream, but I will reframe until January - when I go back .. did I mention the abnormal cells also found ...? Oh well - I would of thought all the flippin chemo would of kill any wayward cancer cells ..

    Thank you for the food for thought .. and the possiblilty of finding another OBYN ..


    Stength and Courage

    Vicki
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    VickiSam said:

    Connie and Diseynfan2008 .. Thank you BOTH ..
    for this posting -- I am having the same difficulties .. only now after all my chemo therapy .. what the helll???? I am ready to scream, but I will reframe until January - when I go back .. did I mention the abnormal cells also found ...? Oh well - I would of thought all the flippin chemo would of kill any wayward cancer cells ..

    Thank you for the food for thought .. and the possiblilty of finding another OBYN ..


    Stength and Courage

    Vicki

    If your have abnormal cells, see a gynecologic oncologist
    for a second opinion. They are the experts. Yes, a hysterectomy is major surgery, and it was much more frightening to me than breast surgery. And no, I wouldn't have one on a whim, but I was scared enough by the word cancer not to give it a second thought. My biopsy showed atypical hyperplasia and areas that were suspicious for adenocarcinoma. I was immediately referred to a gynecologic oncologist. He took this very seriously and he performed the hysterectomy (DaVinci robotic assisted laparoscopic hysterectomy). And it was cancer. And it had grown into the wall of my uterus 1/3 of the way. Lucky for me, it was early stage and grade 1, and I didn't need adjuctive therapy, but I have pelvic exams and Pap smears every 4 months. I had no symptoms - endometrial cells showed up on a routine Pap smear. Ultrasound showed the lining of my uterus to be 9 mm, then the biopsy.

    I've been wondering with so much media about unnecessary hysterectomies, how many women will go on to develop endometrial cancer and if the rate of postmenopausal endo cancer will increase - simply because they still have a uterus for it to grow in.

    I asked whether I would reap a double benefit from the chemo I received for breast cancer just in case there was an endo cancer cell floating around somewhere. Oncologist said no, the chemo for bc is not effective for endo cancer. Different cocktail.

    What can be effective for both, tho, is aromatase therapy. Interesting. I start that next week for my breast cancer. I may not need adjunctive therapy for my endo cancer, but it does sort of give me a sense of security (false or not) that I'm doing something that might also keep the endo ca at bay.

    Suzanne
  • Heatherbelle
    Heatherbelle Member Posts: 1,226 Member
    uterine ablation & Tamoxifen
    I'm glad you all have commented on this, it reminded me that I need to call my gyno next week. A few months back I had a uterine ablation done (basically removing the lining of my uterus), due to excessive bleeding & painful periods since I had my youngest daughter 2 yrs ago. I no longer have periods, just a day or so of very light spotting.
    I started Tamoxifen a month ago. I wonder how or if it will affect me since I had the ablation done. Anyone else have this done and been on Tamoxifen?
    Thank you & hugs!
    Heather
  • jo jo
    jo jo Member Posts: 1,175

    uterine ablation & Tamoxifen
    I'm glad you all have commented on this, it reminded me that I need to call my gyno next week. A few months back I had a uterine ablation done (basically removing the lining of my uterus), due to excessive bleeding & painful periods since I had my youngest daughter 2 yrs ago. I no longer have periods, just a day or so of very light spotting.
    I started Tamoxifen a month ago. I wonder how or if it will affect me since I had the ablation done. Anyone else have this done and been on Tamoxifen?
    Thank you & hugs!
    Heather

    Ablation & Tamoxifen
    Hey Heather i had the abaltion done too about 3-4 years ago and ive been on Tamoxifen now since i think May of this year. After awhile you will stop spotting altogether...its been a long time since i have even spotted. Since i have been done with chemo and started tamoxifen my hotflashes have been really bad but im really not complaining when the weather is this cold...hehe!
  • Heatherbelle
    Heatherbelle Member Posts: 1,226 Member
    jo jo said:

    Ablation & Tamoxifen
    Hey Heather i had the abaltion done too about 3-4 years ago and ive been on Tamoxifen now since i think May of this year. After awhile you will stop spotting altogether...its been a long time since i have even spotted. Since i have been done with chemo and started tamoxifen my hotflashes have been really bad but im really not complaining when the weather is this cold...hehe!

    Yay JoJo! I was hoping there
    Yay JoJo! I was hoping there was someone else out there who had the same procedure as me. Was/is your gyno concerned with the Tamoxifen side effects (thickening of uterine lining, uterine cancer increase) - do you have to have a pap more often than once a year? I haven't met with my gynecologist since I've started Tamoxifen, but I need to have an appt just to get all my questions cleared up. Once you've had the ablation, does that mean the lining CAN'T grow back & therefore we don't have to worry about that side effect of the tamoxifen?
    I hear ya on the hot flashes - mine were REALLY bad the first week I was taking it, but that could have been leftover chemo causing them too. I take mine before i go to bed now so they're not so bad during the day. My hot flashes now are to the point that they were MUCH WORSE during chemo than they are now.
    And it's cold here too, really cold lol. But I have to dress in layers now, because it never fails im in the middle of the grocery store or something and I get a hot flash & have to start peeling off layers lol....I'm forever wearing hoodies &tee shirts because i have to dress in layers :)
    Thanks for replying!!
    *hugs*
    Heather
  • jo jo
    jo jo Member Posts: 1,175

    Yay JoJo! I was hoping there
    Yay JoJo! I was hoping there was someone else out there who had the same procedure as me. Was/is your gyno concerned with the Tamoxifen side effects (thickening of uterine lining, uterine cancer increase) - do you have to have a pap more often than once a year? I haven't met with my gynecologist since I've started Tamoxifen, but I need to have an appt just to get all my questions cleared up. Once you've had the ablation, does that mean the lining CAN'T grow back & therefore we don't have to worry about that side effect of the tamoxifen?
    I hear ya on the hot flashes - mine were REALLY bad the first week I was taking it, but that could have been leftover chemo causing them too. I take mine before i go to bed now so they're not so bad during the day. My hot flashes now are to the point that they were MUCH WORSE during chemo than they are now.
    And it's cold here too, really cold lol. But I have to dress in layers now, because it never fails im in the middle of the grocery store or something and I get a hot flash & have to start peeling off layers lol....I'm forever wearing hoodies &tee shirts because i have to dress in layers :)
    Thanks for replying!!
    *hugs*
    Heather

    Heather
    I told all my doctors about the ablation and they all never said anything about it so i assumed it didnt have any affect with the BC treatments and of course mine was 3-4 yrs ago and yours is pretty recent. I do know that having the ablation puts you in premature menapause...i think i had my first hotflash after about a year after the ablation procedure.
    Now since the BC treatments like chemo and tamoxifen...while i was on chemo the hotflashes werent to bad for the most part (they did get bad at times -but it wasnt consistant)...then when i got on the tamoxifen they were tolerable for the first month or two...now holy cow, my hotflashes are in full force...they are worse than they ever been. IT SUX! They are more intense and last longer.
    My doc said i need to have a pap once a year to check for cancer along with an ultrasound cuz one tests for uterine cancer and one tests for ovarian cancer.
    When i had my ablation done i do remember him telling me that the lining can get thick again in rare cases...but i dont remember the details of it...its been to long ago and my brain doesnt function well enough to remember that far back. I do remember that i spotted for a short time after the procedure but once i got passed that the doc said if i ever spotted again that was a bad sign and to be aware of it.
    It would be interesting to know what your gyn says about it and youll have to fill me in on it and once i get my insurance again maybe i will bring this up to my docs as well.

    I know what ya mean about dressing in layers and its funny when your out somewhere you cant take off your layers...like being in a car with your seatbelt on its not worth all the trouble to take everything off only to have to put it right back on again cuz after all the sweating and being outside the sweat turns cold and the next thing you know your freezing....beside when im in the car i just stick my head out the window to get some relief...just like a puppy would do...hehe!
  • DianeBC
    DianeBC Member Posts: 3,881 Member

    menopause same time as cancer
    So all at once...and also my Ulcertive colitis was at it's worst in 17 yrs...but the tamoxofin put that in remission..so one good thing came of this..

    GYNO said polyups-once pathology i'll know if need surgery...

    I LOVE MY dr...have gone to him for almost 20 yrs..and trust...

    I am sure my oncologist will have an opinion..(having results sent to her as well)

    thanks for info..

    Let us know what your
    Let us know what your oncologist says disneyfan. I hope you don't have to have a hysterectomy, but, if you do, good luck to you.

    Hugs, Diane
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member

    If your have abnormal cells, see a gynecologic oncologist
    for a second opinion. They are the experts. Yes, a hysterectomy is major surgery, and it was much more frightening to me than breast surgery. And no, I wouldn't have one on a whim, but I was scared enough by the word cancer not to give it a second thought. My biopsy showed atypical hyperplasia and areas that were suspicious for adenocarcinoma. I was immediately referred to a gynecologic oncologist. He took this very seriously and he performed the hysterectomy (DaVinci robotic assisted laparoscopic hysterectomy). And it was cancer. And it had grown into the wall of my uterus 1/3 of the way. Lucky for me, it was early stage and grade 1, and I didn't need adjuctive therapy, but I have pelvic exams and Pap smears every 4 months. I had no symptoms - endometrial cells showed up on a routine Pap smear. Ultrasound showed the lining of my uterus to be 9 mm, then the biopsy.

    I've been wondering with so much media about unnecessary hysterectomies, how many women will go on to develop endometrial cancer and if the rate of postmenopausal endo cancer will increase - simply because they still have a uterus for it to grow in.

    I asked whether I would reap a double benefit from the chemo I received for breast cancer just in case there was an endo cancer cell floating around somewhere. Oncologist said no, the chemo for bc is not effective for endo cancer. Different cocktail.

    What can be effective for both, tho, is aromatase therapy. Interesting. I start that next week for my breast cancer. I may not need adjunctive therapy for my endo cancer, but it does sort of give me a sense of security (false or not) that I'm doing something that might also keep the endo ca at bay.

    Suzanne

    gynecologic oncologist
    I never heard of gynecologic oncologist-good to know...thanks for all the info..
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member

    Yay JoJo! I was hoping there
    Yay JoJo! I was hoping there was someone else out there who had the same procedure as me. Was/is your gyno concerned with the Tamoxifen side effects (thickening of uterine lining, uterine cancer increase) - do you have to have a pap more often than once a year? I haven't met with my gynecologist since I've started Tamoxifen, but I need to have an appt just to get all my questions cleared up. Once you've had the ablation, does that mean the lining CAN'T grow back & therefore we don't have to worry about that side effect of the tamoxifen?
    I hear ya on the hot flashes - mine were REALLY bad the first week I was taking it, but that could have been leftover chemo causing them too. I take mine before i go to bed now so they're not so bad during the day. My hot flashes now are to the point that they were MUCH WORSE during chemo than they are now.
    And it's cold here too, really cold lol. But I have to dress in layers now, because it never fails im in the middle of the grocery store or something and I get a hot flash & have to start peeling off layers lol....I'm forever wearing hoodies &tee shirts because i have to dress in layers :)
    Thanks for replying!!
    *hugs*
    Heather

    once a year pap / annual visit the same
    only reason I go not every 6mths is for internal ultra sound (dont' know offical name) at the request of my onologist...other wise my GYNO says see you in a year..
  • crselby
    crselby Member Posts: 441
    jo jo said:

    Ablation & Tamoxifen
    Hey Heather i had the abaltion done too about 3-4 years ago and ive been on Tamoxifen now since i think May of this year. After awhile you will stop spotting altogether...its been a long time since i have even spotted. Since i have been done with chemo and started tamoxifen my hotflashes have been really bad but im really not complaining when the weather is this cold...hehe!

    ablation
    Hi Heatherbelle and jo jo.

    Before I had the endometrial polypectomy 3 weeks ago I asked if ablation would be a good idea since I am on Tamoxifen (4 years to go) and still have my uterus. My wonderful gynocologist said not to do it. It would make things worse. Instead of endometrial cancer perhaps forming (thank you Tamioxifen), it would most likely be uterine cancer. Endometrial cancer would likely be found before it has spread. Not so with uterine cancer.

    So, consequently, I'll go for (and pay for) more frequent uterine ultrasounds (caught these 2 polyps that formed in under a year) and pap smears.

    ~~Connie~~
  • jnl
    jnl Member Posts: 3,869 Member
    VickiSam said:

    Connie and Diseynfan2008 .. Thank you BOTH ..
    for this posting -- I am having the same difficulties .. only now after all my chemo therapy .. what the helll???? I am ready to scream, but I will reframe until January - when I go back .. did I mention the abnormal cells also found ...? Oh well - I would of thought all the flippin chemo would of kill any wayward cancer cells ..

    Thank you for the food for thought .. and the possiblilty of finding another OBYN ..


    Stength and Courage

    Vicki

    Really great post and information. Thank you!


    Leeza
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    jo jo said:

    Heather
    I told all my doctors about the ablation and they all never said anything about it so i assumed it didnt have any affect with the BC treatments and of course mine was 3-4 yrs ago and yours is pretty recent. I do know that having the ablation puts you in premature menapause...i think i had my first hotflash after about a year after the ablation procedure.
    Now since the BC treatments like chemo and tamoxifen...while i was on chemo the hotflashes werent to bad for the most part (they did get bad at times -but it wasnt consistant)...then when i got on the tamoxifen they were tolerable for the first month or two...now holy cow, my hotflashes are in full force...they are worse than they ever been. IT SUX! They are more intense and last longer.
    My doc said i need to have a pap once a year to check for cancer along with an ultrasound cuz one tests for uterine cancer and one tests for ovarian cancer.
    When i had my ablation done i do remember him telling me that the lining can get thick again in rare cases...but i dont remember the details of it...its been to long ago and my brain doesnt function well enough to remember that far back. I do remember that i spotted for a short time after the procedure but once i got passed that the doc said if i ever spotted again that was a bad sign and to be aware of it.
    It would be interesting to know what your gyn says about it and youll have to fill me in on it and once i get my insurance again maybe i will bring this up to my docs as well.

    I know what ya mean about dressing in layers and its funny when your out somewhere you cant take off your layers...like being in a car with your seatbelt on its not worth all the trouble to take everything off only to have to put it right back on again cuz after all the sweating and being outside the sweat turns cold and the next thing you know your freezing....beside when im in the car i just stick my head out the window to get some relief...just like a puppy would do...hehe!

    ablation
    what exactly is ablation ?