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One more "You can call me Ned"!

Bigfuzzydoug's picture
Bigfuzzydoug
Posts: 154
Joined: Jul 2010

Sweet! This morning I got the word and joined the club, the NED club! Call me survivor. Call me bad-ass. I kicked this cancer thing's butt big time!

Just over 9 weeks post-treatment and I am pain-free and eating totally normally again. My voice is 50%, but I never could sing to begin with, so that's no big deal. Slight issues with dry mouth, but sipping water throughout the day fixes that and keeps me hydrated. Energy levels are at about 80% and my stamina is shot to hell. Tried a 1-hr mountain bike ride the other day and it kicked me so much harder than just not training over the last 6 months. Something else at work here. I'm going to have to start at base 1 again. Oh well.

New goal: Another Ironman triathlon in 2013! This time wearing the yellow for real. I AM A SURVIVOR!!!

Common gang! Let's ALL call ourselves Ned!!!

terryscarlett's picture
terryscarlett
Posts: 143
Joined: Aug 2010

Wonderful News, couldn't be happier for you. Hope Dave gets to join that club too. Got his first pet/ct scan follow up this morning and will know the results this coming Wednesday. I hope he gets to meet NED also. Have a big celebration tonight and I will be thinking of you. Wow great news.
Terry

rush1958's picture
rush1958
Posts: 197
Joined: Jul 2010

Doug,

Congrats! Always good to hear a NED story. Time to do the happy dance!

Rush

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

Wow, you got a PET scan that fast? That's awesome. I get my first one in February. I am 7 weeks post right now.

BEST!!

Mike

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

Wow, you got a PET scan that fast? That's awesome. I get my first one in February. I am 7 weeks post right now.

BEST!!

Mike

Jimbo55's picture
Jimbo55
Posts: 572
Joined: Jun 2010

Doug, Way to guy buddy. Did you have a PET or CT scan? Not to worry, the stamina will come back slowly but surely.Keep training!! Cheers

Jimbo

Bigfuzzydoug's picture
Bigfuzzydoug
Posts: 154
Joined: Jul 2010

PET and CT with contrast. The PET still shows slight glowing yellow all around the area and your can see the swelling from the radiation damage. The throat looks like a bean rather than a circle and the vocal chords aren't as symetric as in the first PET - the reason for the voice. They knew 8 weeks out would show some types of uptake, but at least no bright glowing white spots that clearly indicate a tumor.

Here's the before and after where you can really see it!

http://www.caringbridge.org/tres/images/photos/2/0/2/9/202994/l.vgPFBNOlDihmwRLv.jpg (and of course there's supposed to be a dot jpg after the RLv in the link.)

P.S. You can literally see where I lost some weight outta my fat ass as well! ;-p

rozaroo
Posts: 667
Joined: Apr 2010

Congratulation's on your great scan! Plus you are doing fantastic!

Hondo's picture
Hondo
Posts: 5881
Joined: Apr 2009

Welcome to the NED club, I am doing the dance tonight for you my friend

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Well done Doug. It took me 6 months to even think about getting to where you are now so you are doing great. You might find you will do a Lance Armstrong trick and your biking will improve well past your previous life - after the de-porking and slight change in body shape.

Welcome to the land of NED.

Scam

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

I'm so glad to hear it.
Wear your yellow with pride.

--Jim in Delaware

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Awesome.

Best,

Mick

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Always good to hear another NED. Way to go Doug!

Skiffin16's picture
Skiffin16
Posts: 8100
Joined: Sep 2009

Glad to hear...you go.

Best,
John

D Lewis's picture
D Lewis
Posts: 1545
Joined: Jan 2010

Congratulations upon becoming a member of Club NED! We'll be at the sidelines in our yellow shirts, cheering you on at that Ironman Triathlon in 2013!

Deb (aka NED)

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Big Fuzzy NED,

Very good to hear the great news. Keep kicking butt.

areomech's picture
areomech
Posts: 33
Joined: Sep 2010

Great news Bigfuzzydoug! Congrats!!

adventurebob's picture
adventurebob
Posts: 691
Joined: Jun 2010

You are a bad-ass survivor Doug. No doubt you can do everything you aspire to. So happy to read your news. Keep on kicking ass.

Bob

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Doug, great news! Congrats!

Noellesmom
Posts: 1312
Joined: Aug 2010

That's just great news!

scottied's picture
scottied
Posts: 37
Joined: Nov 2010

That is great news, Congrats and keep on rolling!!!!!!!!!!!!!!

Joel4's picture
Joel4
Posts: 209
Joined: May 2010

Great news, very happy for you man!!

greg from pa
Posts: 86
Joined: Jun 2010

WAY TO GO DOG! That is fantastic NED. Thanks for sharing the great news. Greg

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