Dec 06, 2010 - 2:16 pm
Decided to make this a separate one time posting.
All i can do is gasp in awe at how you all got through the H&N, RT hell.
I understand that coupled with the rads itself, is surviving the rad effects as time goes on.In any case,it is a celebration , for want of a much better word, that this is behind you all and you can all share your experiences . KC, be encouraged by this.
My wife is fighting successive stubborn scc in throat and neck. She's about to have her 4th surgical procedure. Doing everything possible to avoid RT. I read all your posts , with the dread that we'll need to backtrack and read it through in the near future. I fear that if she chooses RT, recommended as a very bad (because of Fanconi Aneamia)but the only alternative around, her base start is a compromised one because of everything she's been through to date.
She has a healthy resillient spirit and her every minute, like many on this site is the work of breathing, eating and attempts towards normalization . Symmetry and life balance are important to her; like others here have suffered as a consequence of successive surgeries and treatments.
The accumulative weakening effects of so many surgeries clearly challenge her resilience.
Very soon, she will have to make the inhumane wretched decision, by herself, to undergo RT and play guinea pig.
We're going to need you folk in the future.
SWEETB: Great to hear you're doing ok.