IT started.....

ccincin
ccincin Member Posts: 82
edited March 2014 in Breast Cancer #1
My scalp has burned/tingled since last night. Just put hands through hair and it's coming out....reality is setting in. I am a cancer patient and pissed off about it.
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Comments

  • Boppy_of_6
    Boppy_of_6 Member Posts: 1,138
    So sorry
    Use that anger to your advantage to fight the beast!! I know it is so hard sometimes, I am at the stage of the hair coming back. I have been going with out any head covering for about a month now so you will get there too! Some of the positives no shaving your legs or underarms for a while now, I enjoyed that part of it. Prayers for you. God Bless
    (((Hugs))) Janice
  • ccincin
    ccincin Member Posts: 82

    So sorry
    Use that anger to your advantage to fight the beast!! I know it is so hard sometimes, I am at the stage of the hair coming back. I have been going with out any head covering for about a month now so you will get there too! Some of the positives no shaving your legs or underarms for a while now, I enjoyed that part of it. Prayers for you. God Bless
    (((Hugs))) Janice

    Oh I will...
    I'm buying the shirt that says cancer picked the wrong b**ch. It's on now!!
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    I remember this phase all to
    I remember this phase all to well. Losing my hair was the hardest part of this journey. Everytime you look in the mirror, the reflection back says it all. I am now way past this stage and am getting hair cuts every 5 weeks. You too will get there!! I borrowered one of Chen's mantras to get me through and I'm sure she wouldn't mind if you used it too. It goes like this.....Be Stronger Than, Not Angry At. You are a strong woman and you will come out on the other side. We will be with you for the entire journey.
  • mwallace1325
    mwallace1325 Member Posts: 806
    As my husband
    pointed out to me the morning I cried on his shoulder because mine had started to come out -- "that means it's working".

    You'll get thru this as awful as it seems right now. Enjoy the no shaving part, and just know we're all with you.

    marge
  • QuiltingMama123
    QuiltingMama123 Member Posts: 124
    I'm sorry.
    Although I am almost militant about NOT wearing any scarves, hats, etc. (unless I'm cold), the stage where you are is miserable. After about three weeks, I decided to wear my new "style" as a badge of honor. If people stare at me, I assume they are saying a silent prayer for cancer patients, or that they are making a mental note to have that mammogram they have been putting off. That was very freeing for me. I am usually very self conscious, but now I just don't care. I do what is comfortable for me.

    I'm not saying the decisions I am making are good for anyone else but me, but try to remember that you are a remarkable, magnificent human being and SOOO much more than your hair!
  • ccincin
    ccincin Member Posts: 82

    I'm sorry.
    Although I am almost militant about NOT wearing any scarves, hats, etc. (unless I'm cold), the stage where you are is miserable. After about three weeks, I decided to wear my new "style" as a badge of honor. If people stare at me, I assume they are saying a silent prayer for cancer patients, or that they are making a mental note to have that mammogram they have been putting off. That was very freeing for me. I am usually very self conscious, but now I just don't care. I do what is comfortable for me.

    I'm not saying the decisions I am making are good for anyone else but me, but try to remember that you are a remarkable, magnificent human being and SOOO much more than your hair!

    I like that thinking!
    Hopefully it will get a prayer or a mamo out of it!
  • mollyz
    mollyz Member Posts: 756 Member
    ccincin said:

    I like that thinking!
    Hopefully it will get a prayer or a mamo out of it!

    I remember
    That was the worst for me to,I had a mastectomy which was OK i thought no pain,I was excited about when i was going to start chemo well that finally came and boy that's when it went down hill for me because just like everybody else in about 14 to 21 days after my first chemo it started (the hair) OMG that was the worst i thought i would cry i made myself stop and said a prayer,you have kids wait until they give you their opinion my boys are 13 and 19 and that age they find the fun in everything well i joined them and haven't stopped yet,it really will get better i couldn't stand to look at myself in the mirror at first and then i wouldn't let my husband or boys see it for a long time until i got used to it and then i let them see it i never shaved my head i couldn't bring myself to do it, I've finished my aggressive chemo and I'm only on taxotere now and I've noticed my hair is actually growing I massage it every night with olive oil.just know we're here for you and your not alone,get signed up for the look good feel good seminar they offer them just about in every city,they teach you how to put on your makeup and show you how to Tye scarves and they give you a bag full of make up you'll get to meet some more bald sisters . we're all here to love on you. MollyZ
  • Jean 0609
    Jean 0609 Member Posts: 2,462
    ccincin,
    Yes, cancer sucks. Also, you know that it's better to be pissed off than pissed on! Hang in there! Hugs, Jean
  • Jean T. Szabo
    Jean T. Szabo Member Posts: 193
    Jean 0609 said:

    ccincin,
    Yes, cancer sucks. Also, you know that it's better to be pissed off than pissed on! Hang in there! Hugs, Jean

    Your expression
    Love your expression "better to be pissed off than pissed on"...made me laugh. Using all of my anger against this beast. Lost my hair just before my grand-daughter's birthday. Wore a bright Chemo cap donated by volunteers and wore a black sweatshirt that was decorated with the same color of candies in wrappers. She turned 8 and though I looked beautiful. Wear scarfs indoors if company comes and wear hats for outside. Like the fact that I don't have to fix my hair before leaving the house and not having to shave; was bad at doing that anyway. Told my Onc. that "Chemo Sucks!!" at a visit with side effect complaints. Saw him today for #3 Chemo. He said that will happen again, it is an emotional roller coaster. Hang in there, it does get better! Hair grows back!
  • missrenee
    missrenee Member Posts: 2,136 Member

    Your expression
    Love your expression "better to be pissed off than pissed on"...made me laugh. Using all of my anger against this beast. Lost my hair just before my grand-daughter's birthday. Wore a bright Chemo cap donated by volunteers and wore a black sweatshirt that was decorated with the same color of candies in wrappers. She turned 8 and though I looked beautiful. Wear scarfs indoors if company comes and wear hats for outside. Like the fact that I don't have to fix my hair before leaving the house and not having to shave; was bad at doing that anyway. Told my Onc. that "Chemo Sucks!!" at a visit with side effect complaints. Saw him today for #3 Chemo. He said that will happen again, it is an emotional roller coaster. Hang in there, it does get better! Hair grows back!

    I know the feeling
    I really hated looking in the mirror and being reminded--YOU HAVE CANCER!!! As if I needed one more thing to remind me. BUT, I got used to it. I didn't take well to wearing wigs--I bought one and got one at chemo from the American Cancer Society. I think I only wore them once or twice (I'm donating them both back). I felt like I was wearing a Halloween costume in them. I wore mostly scarves and got pretty creative with them. As soon as I had some hair, I went au naturel and was not self-conscious at all. Like one of the other girls said--I felt liberated.

    Anyway, it stinks for sure, but it is only temporary and that chemo is working!

    Hugs, Renee
  • sea60
    sea60 Member Posts: 2,613
    Oh I know...
    It's like "Don't mess with my hair"...but that certainly is when it all becomes real.

    Not to worry Sister...it will grow back!

    Blessings and hugs to you,

    Sylvia
  • Kat11
    Kat11 Member Posts: 1,931 Member
    sea60 said:

    Oh I know...
    It's like "Don't mess with my hair"...but that certainly is when it all becomes real.

    Not to worry Sister...it will grow back!

    Blessings and hugs to you,

    Sylvia

    I hated my hair falling out.
    I hated my hair falling out. Mine blew out in the car on the way to the hospital for treatment. The air in the car was on and all of a sudden we noticed hair blowing around. Yep it was mine, worse than a dog in the car. As I ran my fingers through my hair it was coming out in chucks. When I got home my son shaved my head. That was so hard to do cried my eyes out. Hated the new look, but you get use to it. Wigs are hot, I did have one. Found hats and scarfs worked better for me. A great site to find what you need is www.headcovers.com . Hang in there, it does come back even though it seems to take forever.
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
    Kat11 said:

    I hated my hair falling out.
    I hated my hair falling out. Mine blew out in the car on the way to the hospital for treatment. The air in the car was on and all of a sudden we noticed hair blowing around. Yep it was mine, worse than a dog in the car. As I ran my fingers through my hair it was coming out in chucks. When I got home my son shaved my head. That was so hard to do cried my eyes out. Hated the new look, but you get use to it. Wigs are hot, I did have one. Found hats and scarfs worked better for me. A great site to find what you need is www.headcovers.com . Hang in there, it does come back even though it seems to take forever.

    so sorry
    I hate the no hair part too! We are women hair is our thing!!! I so miss my hair, although I get ready so much faster now!

    This is my 2nd go round with no hair, it was just growing back then the neuro shaved it off again :(
  • Marsha Mulvey
    Marsha Mulvey Member Posts: 597 Member

    so sorry
    I hate the no hair part too! We are women hair is our thing!!! I so miss my hair, although I get ready so much faster now!

    This is my 2nd go round with no hair, it was just growing back then the neuro shaved it off again :(

    fight/anger
    Keep up the fighting attitude, it will help along the way. BUT...try hard to overcome the anger as it is more a hindrance than a help. Best wishes.
    Marsha
  • Texasgirl10
    Texasgirl10 Member Posts: 668

    fight/anger
    Keep up the fighting attitude, it will help along the way. BUT...try hard to overcome the anger as it is more a hindrance than a help. Best wishes.
    Marsha

    I'm sorry
    I am so sorry that you are going through this. The hair loss and the surgery the two thiings that I am dreading the most. I'm sending you hugs over the internet. Keep your chin up and stay strong :)

    Dawne
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    so so sorry to hear
    I did not go through that..but with other issues with cancer...i used 2 journals...I dindt 'think at the time I was writing in them it helped..but now when I look back...it was a huge help...calming even at the bad times...just to vent..I had many friends and family but the journal...was GOOD...for me at least
  • Ritzy
    Ritzy Member Posts: 4,381 Member

    so sorry
    I hate the no hair part too! We are women hair is our thing!!! I so miss my hair, although I get ready so much faster now!

    This is my 2nd go round with no hair, it was just growing back then the neuro shaved it off again :(

    I was so lucky and didn't
    I was so lucky and didn't have chemo, so, no hair loss. I am sorry that this is even happening to you.

    Sending a big hug for you,


    Sue :)
  • Angie2U
    Angie2U Member Posts: 2,991
    ccincin said:

    Oh I will...
    I'm buying the shirt that says cancer picked the wrong b**ch. It's on now!!

    Janice is right, turn the
    Janice is right, turn the anger into a fight against the beast! We all have been there unfortunately. It will get better ccincin!


    Hugs, Angie
  • I'm just a week behind ya
    I'm just a week behind ya Luv... ready to break out the clippers and crack open a bottle of wine... sometimes the anticipation is worse than the deed (hopeful thinking I know ha!)

    Hopefully, you are rocking the bald like I know you can!! Get sassy and find yourself a bright red sequined cabby cap for the holidays... pair it with a fab pair of red patent leather boots and call yourself Santa Baby!!! How many others are lucky enough to have the perfect excuse to do the absolute UNPREDICTABLE this season???

    Blessings and hugs and knuckle bumps for getting over the hump!!!

    Stace
    xo
  • lanie940
    lanie940 Member Posts: 490
    ((((HUGS)) I am so sorry you
    ((((HUGS)) I am so sorry you are going through this! I opted not to have chemo with my breast cancer. I had a lumpectomy last July. Having chemo would have only lessened my odds of re-occurance by 2-3 %. I then in October had hernia surgery, much harder pain-wise than the lumpectomy. Anyways,found out after 2 stays in the hosp, total of 13 days(around Holidays) Found out I had Celiac disease. Well, I have read a lot of books on cancer and celiac! One said Celiac is not as difficult to handle as having Cancer! Well, I had both! Anyway, I wanted to tell you this, I met a friend this past October when my hubby and i were on a mini vacation, he had continuing credits to get for his job, while there, I met another wife who was there with her husband taking the same course for credits. Turns out she is a breast cancer patient/survivor. She had a lumpectomy this past August and is still having Chemo. But, she had a wig on, and honestly,I had NO IDEA it was a wig, she looked that good. She was at the SAME stage you are now, with her hair falling out all over the place, We have kept in touch with each other through e-mails. This is a great forum to get support from others going through what you are going through. Take care----YOU will make it through this!