New to the board with Inflammatory Breast Cancer

Texasgirl10
Texasgirl10 Member Posts: 668
edited March 2014 in Breast Cancer #1
Hello, I was diagnosed with stage 3 Inflammatory Breast cancer last Tuesday. I will have my first chemo treatment next Tuesday, Dec 7. I am finally coming to terms with this diagnosis and my attitude is positive, but I am terrifed!
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Comments

  • Alexis F
    Alexis F Member Posts: 3,598
    Hi and Welcome!
    Welcome Texasgirl to the club no one wants to join. You will find a wealth of strength and support here amongst your sisters in pink.

    Please stay positive and come here if you need to vent or just to say how you are feeling.

    Good luck with your chemo treatments.

    Hugs, Lex
  • Texasgirl10
    Texasgirl10 Member Posts: 668
    Alexis F said:

    Hi and Welcome!
    Welcome Texasgirl to the club no one wants to join. You will find a wealth of strength and support here amongst your sisters in pink.

    Please stay positive and come here if you need to vent or just to say how you are feeling.

    Good luck with your chemo treatments.

    Hugs, Lex

    Thank You
    Thank You Lex. I have always been a supporter of bc awareness and never in a million years did I ever think that I would go through this. Everything just feels so unreal right now. I'm scared about the chemo. I'm scared about surgery. I've read a lot of the posts on the board and I think everyone here are the bravest and strongest people in the world. I'm thankful for this board already, I just wish that there was not a need for any of us to have to use it.
  • hopefulwhumor
    hopefulwhumor Member Posts: 45

    Thank You
    Thank You Lex. I have always been a supporter of bc awareness and never in a million years did I ever think that I would go through this. Everything just feels so unreal right now. I'm scared about the chemo. I'm scared about surgery. I've read a lot of the posts on the board and I think everyone here are the bravest and strongest people in the world. I'm thankful for this board already, I just wish that there was not a need for any of us to have to use it.

    I understand the "never in a
    I understand the "never in a million years" thought. I started my chemo Nov 1st. Was scared beyond words, but making it though. It gets a little better as you go, maybe because you start to have an idea of what to expect. What type of chemo are you taking? How often? Once you get some of that info, you might go back and finish your about me page... it helps others to know some of that stuff, but not something that you have to do.
    Keep in touch here, this is a wonderful site, with GREAT support.
    Keeping you in my thoughts and prayers,
    Hugs,
    Kristi
  • heidijez
    heidijez Member Posts: 441
    inflammatory breast cancer too!
    i was diagnosed december 10, 2009, started chemo on december 16. everything happened so fast that i didn't have time to think about being terrified. i just wanted to fight this with every ounce of my being!!! and boy, have i fought!!

    the good news is that you found this board so early in your diagnosis - i was almost done with the first course of chemo before i stumbled across this amazing website. the women (and some men) are an incredible source of information and support.

    so if you have questions, or need to vent, we are here to share and to care.

    ♫♥´¯`•.¸¸.♥♫ Hugs from Heidi ♫♥´¯`•.¸¸.♥♫
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    Welcome, Texasgirl! I think
    Welcome, Texasgirl! I think we were all in the same place you are now when we were first diagnosed. It is terrifying and something I thought would never happen to me. But, it did and I have finished all treatments that included, surgery, chemo and rads. So, it is scary now but before you know it you will be through your treatments as well. You have an amazing support system here. I don't have the same type of bc but there are several sisters here who do. Continue to ask questions and someone will come along to provide their experience and help you. Good luck and let us know how things go. (((Hugs)))
  • Boppy_of_6
    Boppy_of_6 Member Posts: 1,138
    MyTurnNow said:

    Welcome, Texasgirl! I think
    Welcome, Texasgirl! I think we were all in the same place you are now when we were first diagnosed. It is terrifying and something I thought would never happen to me. But, it did and I have finished all treatments that included, surgery, chemo and rads. So, it is scary now but before you know it you will be through your treatments as well. You have an amazing support system here. I don't have the same type of bc but there are several sisters here who do. Continue to ask questions and someone will come along to provide their experience and help you. Good luck and let us know how things go. (((Hugs)))

    From another Texas girl
    Welcome to the board. Sorry that you need to be here at all but you will be glad you found it. There are so many wonderful people here willing to share all they have learned on this journey. My cancer was IDC so different type from you. I have been through the surgery (lumpectomy) chemo and rads. I am now on month 4 of tamoxifen. I remember the fear but, it is all doable. You will find strength you did not know you had. Please drink lots and lots of water before during and after chemo it helps a lot! Feel free to ask anything someone always has an answer. God Bless
    (((Hugs))) Janice

    I am in the central part of TX, what part of the state are you in?
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    IBC stage 3 also
    There are a few of us with IBC here, mine is also triple negative. My final chemo is scheduled for Dec 9th. I get TAC on a 3 week rotation.

    Everything moved so fast for me in the first few weeks after dx, I didn't take the time to be scared. Except at night, when I couldn't sleep. So yeah, I do remember being terrified, still am sometimes. But with the help of all the remarkable people here, I've learned a lot about fighting this battle and dealing with the emotional side effects. This is a great place to get support, compassion, strength, and encouragement. So use it, ask questions and share your stories, there will be someone with the right words to help you.

    a big hug,

    Linda
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    sorry...
    I have not had chemo-but still thinking of you...sending good thoughts your way..the unknown if hard...any support groups around local? therapist avaiable to you? Journals really helped me...when I was given them from 2 diff. people I thought wont' help..I didnt' think they did UNTIL everything settled down and re-read some. My fears ( I Kept much to myself-so not to worry older kids still at home)

    so maybe try journal...can't hurt...i kept one in my car...on my lunch break etc I would jot things down..other one at home..used more then I ever thought
  • Megan M
    Megan M Member Posts: 3,000
    MyTurnNow said:

    Welcome, Texasgirl! I think
    Welcome, Texasgirl! I think we were all in the same place you are now when we were first diagnosed. It is terrifying and something I thought would never happen to me. But, it did and I have finished all treatments that included, surgery, chemo and rads. So, it is scary now but before you know it you will be through your treatments as well. You have an amazing support system here. I don't have the same type of bc but there are several sisters here who do. Continue to ask questions and someone will come along to provide their experience and help you. Good luck and let us know how things go. (((Hugs)))

    Hey Texasgirl! You are just
    Hey Texasgirl! You are just like all of us were when we first heard those 3 terrible words, you have cancer. Being scared is just a part of it. But, you have all of us here to hold your hand and to help through your treatments.


    Hang in there!


    Big hugs, Megan
  • mwallace1325
    mwallace1325 Member Posts: 806
    Welcome and so sorry
    you have to be here. Under the circumstances, this is the best place to be. I don't think there are a more supportive group of women and men in the world.

    As scary as it is, you'll get through it. After the first chemo, you'll no longer fear the "unknown", and as much as this sucks and it does, it's doable.

    Feel free to be here whenever you need to for advice, questions, or just to vent. We're here for you and we'll be there (in spirit) with you on Tuesday.

    marge
  • missrenee
    missrenee Member Posts: 2,136 Member

    Welcome and so sorry
    you have to be here. Under the circumstances, this is the best place to be. I don't think there are a more supportive group of women and men in the world.

    As scary as it is, you'll get through it. After the first chemo, you'll no longer fear the "unknown", and as much as this sucks and it does, it's doable.

    Feel free to be here whenever you need to for advice, questions, or just to vent. We're here for you and we'll be there (in spirit) with you on Tuesday.

    marge

    You're in the right place, TexasGirl
    This board has been a Godsend for me and so many others. We all know the fear you're experiencing right now. I am a year post-diagnosis and there are still times (less and less)that I think, "is this really happening?!" You WILL get through this. Latch on to whatever comforts you--be it family, friends, prayer, music, yoga, and this board. Take all the help that is offered. I found through my journey that people can be so helpful and comforting--and, they really want to help. I think it's their way of coping with your diagnosis--just feeling as if they're doing something for you.

    I'm sending you so much positive energy today and many prayers. Chemo was a very scary thought for me--I'm the girl who won't even take an aspirin. But, guess what--I had 6 rounds of Taxotere, Adriamycin, Cytoxan (a very agressive treatment) and it wasn't nearly as bad as I imagined. Everyone is different and there are many side effects--but it's very likely that your side effects will be minimal and manageable.

    Good luck on your journey. Stay in touch with this board--it really helps. No question is off limits and you can feel free to vent, rage or just tell us how you're doing.

    Hugs, Renee
  • missrenee
    missrenee Member Posts: 2,136 Member

    Welcome and so sorry
    you have to be here. Under the circumstances, this is the best place to be. I don't think there are a more supportive group of women and men in the world.

    As scary as it is, you'll get through it. After the first chemo, you'll no longer fear the "unknown", and as much as this sucks and it does, it's doable.

    Feel free to be here whenever you need to for advice, questions, or just to vent. We're here for you and we'll be there (in spirit) with you on Tuesday.

    marge

    You're in the right place, TexasGirl
    This board has been a Godsend for me and so many others. We all know the fear you're experiencing right now. I am a year post-diagnosis and there are still times (less and less)that I think, "is this really happening?!" You WILL get through this. Latch on to whatever comforts you--be it family, friends, prayer, music, yoga, and this board. Take all the help that is offered. I found through my journey that people can be so helpful and comforting--and, they really want to help. I think it's their way of coping with your diagnosis--just feeling as if they're doing something for you.

    I'm sending you so much positive energy today and many prayers. Chemo was a very scary thought for me--I'm the girl who won't even take an aspirin. But, guess what--I had 6 rounds of Taxotere, Adriamycin, Cytoxan (a very agressive treatment) and it wasn't nearly as bad as I imagined. Everyone is different and there are many side effects--but it's very likely that your side effects will be minimal and manageable.

    Good luck on your journey. Stay in touch with this board--it really helps. No question is off limits and you can feel free to vent, rage or just tell us how you're doing.

    Hugs, Renee
  • fauxma
    fauxma Member Posts: 3,577 Member
    missrenee said:

    You're in the right place, TexasGirl
    This board has been a Godsend for me and so many others. We all know the fear you're experiencing right now. I am a year post-diagnosis and there are still times (less and less)that I think, "is this really happening?!" You WILL get through this. Latch on to whatever comforts you--be it family, friends, prayer, music, yoga, and this board. Take all the help that is offered. I found through my journey that people can be so helpful and comforting--and, they really want to help. I think it's their way of coping with your diagnosis--just feeling as if they're doing something for you.

    I'm sending you so much positive energy today and many prayers. Chemo was a very scary thought for me--I'm the girl who won't even take an aspirin. But, guess what--I had 6 rounds of Taxotere, Adriamycin, Cytoxan (a very agressive treatment) and it wasn't nearly as bad as I imagined. Everyone is different and there are many side effects--but it's very likely that your side effects will be minimal and manageable.

    Good luck on your journey. Stay in touch with this board--it really helps. No question is off limits and you can feel free to vent, rage or just tell us how you're doing.

    Hugs, Renee

    Sorry that you had to come
    Sorry that you had to come here but you will get a wealth of support, information and love.
    Take each step one at a time and ask questions of us, your doctors, and your surgeon. It's a bumpy ride but it is doable.
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    MyTurnNow said:

    Welcome, Texasgirl! I think
    Welcome, Texasgirl! I think we were all in the same place you are now when we were first diagnosed. It is terrifying and something I thought would never happen to me. But, it did and I have finished all treatments that included, surgery, chemo and rads. So, it is scary now but before you know it you will be through your treatments as well. You have an amazing support system here. I don't have the same type of bc but there are several sisters here who do. Continue to ask questions and someone will come along to provide their experience and help you. Good luck and let us know how things go. (((Hugs)))

    Saying hi and welcome to you
    Saying hi and welcome to you too! Post whenever you want here. We are open 24/7!

    Good luck,


    Diane
  • roseann4
    roseann4 Member Posts: 992 Member
    fauxma said:

    Sorry that you had to come
    Sorry that you had to come here but you will get a wealth of support, information and love.
    Take each step one at a time and ask questions of us, your doctors, and your surgeon. It's a bumpy ride but it is doable.

    This is my favorite site but...
    you can check out breastcancer.org. They have a thread for your specific type of cancer and you may find it helpful. I wish you the very best and hope you keep us posted on your progress

    Roseann
  • Annette 11
    Annette 11 Member Posts: 380
    Hello
    Hi Texasgirl, Welcome but sorry to hear of your BC. Don't be too terrified. You may do Ok...many of us do. Or you may have just a few side effects or It may be hard but doable.
    We want you to keep us posted. We are here for you! If you can't sleep check in, chances are a few may be logged on so we are here 24/7. So try not to be afraid, most of us have done chemo so if you have any side effects or concerns, ask and I'm sure there will be many sister to give you an answer or help you to get through this.
    Hugs
    Annette
  • sea60
    sea60 Member Posts: 2,613
    We all hear you Pink Sister
    and we so understand what your feeling. We are all in this together no matter the distance. This place just brings us all together like some "cyber" living room where we can vent, cry, laugh, share and just be there for one another. So never forget, you're just a "send" button away from us.

    God bless you!

    What part of Texas are you from?

    Sylvia
  • Katz77
    Katz77 Member Posts: 598
    Welcome
    Sorry that you had to join us,but glad you're here. We have a few ladies that have inflammatory breast cancer. Come here for questions, concerns, venting, jokes and everything that you need to ask. No questions to large or small. Cyber hugs and positive energy, Katz
  • Kat11
    Kat11 Member Posts: 1,931 Member
    Welcome Texasgirl
    Sorry for the reason your here. I understand the fear.So glad you found us.Here you will be with a wonderful group who can understand everything your about to go through. We will be with you every step of the way. Stay positive, it really helps. Hugs
  • cahjah75
    cahjah75 Member Posts: 2,631
    Hi Texas girl
    you've come to a good place for encouragement and support. Ask questions when you want and post often. BC is scary especially about the unknown. Will keep you in my thoughts and prayers.
    {{hugs}} Char