Nov 27, 2010 - 8:52 pm
Hi I'm new here and desperately need some advice. In June my son had a tumor that he had been covering up on his arm almost the size of a softball removed and it was sarcoma. They removed it immediately and the Dr. mentioned he had 2 small nodules in his lungs that they would keep an eye on. He went through radiation just fine (6 weeks) and now his last CT was a week ago and after being very persistent about asking what stage he is I was told Wed. that he was stage four and they want him to start chemo this Tues. with Doxorubicin and some experimental drug that only 60 people in the entire U.S. have agreed to try. Other than having nuerfibromotosis he is extremely healthy and has never been on meds. Why do they want to have him in an experiment with very bad side effects and no proof of working at all? What are the other treatments and is surgery an option? He has one nodule in each lung. One is 12.4 x 12.8 mm in diameter and the other 3.9 mm in diameter. Am I even making any sense? My husband died last year and now this! My heart is bleeding for him. But 10 yrs ago I was told he had a huge inoperable tumor on his brain stem and cried for 3 days and then just prayed and it stopped growing and is still there and so is he. Thanks for listening.