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Medullary Cancer Rise in Calcitonin

emiller
Posts: 2
Joined: Nov 2010

HI:

My Mom was diagnosed with Medullary Cancer in 2009 almost one year ago. She had a complete throidectomy and neck dissection as well as 35 external beam radition treatments. The medullary had only spread to two lymph nodes. She had been doing great until her calcitonin level came back and it was 104. 3 months ago it was 54 so it has gone up. Has anyone had any experience with there calcitonin levels going up and did it mean reoccurence?

piment
Posts: 1
Joined: Dec 2010

Hi!

Is your mother still being followed by her doctor because an elevation of the calcitonin is a sgn of recurrence so make sure the follow up is being done. Mine is still in evolution coming from 89-98-191-298 so you have to keep following

piment

DARTSMITH's picture
DARTSMITH
Posts: 1
Joined: Dec 2010

Dude mine was 70,000 now down to 8000 on Vanetinib ie Caperlsa ....good stuff 14yrs still killin it

attitude is everything never never give in to it

THYGUY
Posts: 4
Joined: Oct 2014

Well each one it appears to have their own highs and lows.  I at one time had over 3,000 count and then down to 330 now back up to over 600 and thats after two surgeries over 200 lymphnodes removed and complete neck dissection.  I am confused as it appears there is no measurement of what should be happening as some live with higher numbers and some can't.  You are not alone we all struggle with this uncommon cancer.  Good luck as I am still learning about my Cancer 3 years later as Docs don't offer much insight.

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