My sister has anal cancer. Just started treatment. Can you individually share with me the size of your tumor and the stage you had?
Her doc said they weren't sure about the stage which I thought was strange after all her tests. So she asked "what he thought" and he said a stage 3.
Whoops....my name is Candy!
Hello Candy. My tumor was quite large 5.5cm (and I believe was larger as when I had my hemi surgery and they found the tumor, the surgeon removed 3.3cm and thought he got it all-yet when they did my PET CT it showed 5.5 at its largest and that is what was left!) and I had what they thought was node involvement (but minimal) so I was staged at T3N1M0. I had to ask a few times what stage I was at and they said that plus IIIa. If you go into nccn.org and sign up, you can view the guidelines for anal cancer and how they 'stage' someone as well as the treatment protocol. I printed it out and brought it with me to my dr appts. I hope this helps you. Sorry to hear about the anal cancer diagnosis. The group in here is wonderful for advice and guidance and caring. I finished treatment in August and am waiting to hear about further scan results in a few weeks. Best wishes and good luck. Come in here for questions or concerns or simply to vent. Marilyne
The tumor was staged as IINOMO anal verge cancer. I believe the tumor was about 2.5 cms and was moderatly differentiated. The best scenerio if there can be one, is for it to be well differentiated, as the cells are clearly seperated from the normal cells, whereas, poorly would mean its hard to define the normal from cancer cells.
If you go to the NCCN guidelines it will explain the stage by tumor size.
My tumor was 2.6 cm and I had two perirectal lymph nodes involved. I was staged at T2N2MO and classified as state 111a. Mine was also moderately differentiated.
There are many survivors on this site. This cancer can be beat and we all know that is not the case with many other cancers. It's not an easy battle by any means, but we have hope and a cure rate that is high. For that I know we are all grateful.
I have a question about 'differentiated' - I looked at my scan results and my tumor was moderately differentiated. what does this mean exactly. I've heard it mentioned something about the edges. Can someone explain this in more detail? Thanks. Marilyne
Marilyne--please see the above post by Lori. She has explained this very well. Moderately would be somewhere in the middle.
Thank all of you for your reply. It was very helpful. Sounds like my sis should get copies of her reports.
Hugs to you all,
Candy--Your sister should get copies of EVERYTHING--scan reports, lab results, etc.