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21 Year Old NSMLC Adenocarcinoma Stage 4

stayalive
Posts: 24
Joined: Nov 2010

Hi All,

I need any info and help you can offer ... we just found out last week that my 21 year old son has Adenocarcinoma NSMLC Stage 4. There's a mass in his lower left lung and mets to his lymph nodes and heart. There's fluid in his heart and upon testing the fluid it contains cancer cells. He's starting chemo this Thur. He never smokes, is in perfect health prior - he was a diver in the marine and now he's in first year college and started a cough 4 months ago and we just found out about the Stage IV lung cancer. Please help. What can we do? Diet, supplements, etc etc? Would a miracle happen? He's so young and he didn't want to go. I would really hate to see him in pain. Please help.

medi_2's picture
medi_2
Posts: 506
Joined: Aug 2009

The only kind of supplements you will need are drinks like Ensure, Boost, Carnation Instant Breakfast etc. Don't try to load him up with antitoxidants; they will help the cancer cells grow too. He may lose his appetite, so let him eat anything he can get down and keep down. He is young and strong, he can do it! I beat it and I am 53. I didn't have the heart complications but I had the chemo and rads and I have no evidence of disease for 2 years now. I never stopped running while in treatment. I don't consider it a miracle because for some odd reason I felt like I was in control. Good luck to you and your son and keep writing! We will help.
Cheers
Medi

stayalive
Posts: 24
Joined: Nov 2010

Thank you Medi for sharing your story. It is very encouraging. We want to be strong but sometimes the unknown can be very intimidating. We will continue to think positive and pray for the best.

NayPaul's picture
NayPaul
Posts: 231
Joined: Oct 2010

When my wife wwas diagnosed stage iv. On september 10.... we went into shock. Now... 2 months later the chemo has done wonders,, no cough, no wheezing, no pain meds (except after the chhemo tratments).... she is keeping a full schedule, and this last week has walked several miles each day. And....as she points out, she no longeer needds to color ber hair. :)

Your sons youth makes a diagnosis extra tragic...... but it is also that youth that will help him endure treatments, and speed recovery.

stayalive
Posts: 24
Joined: Nov 2010

Hi NayPaul,

Thank you so much for responding to my post. I really need any kind of support I can get at this time. My family is still in shock and I'm already feeling the heartbreak of seeing my son suffer through the process. I'm trying to stay postive but the unfortunate is the heart has been invaded and I'm worried. We were told that the chemo will be 6-8 months and I just pray and hope that it will all go well. It is really great hearing about your wife. I send you my best thoughts.

phelangelica
Posts: 17
Joined: Nov 2010

Medi, im sorry to say much of that information is incorrect. Sugar feeds cancer, so products like ensure boost and carnation instant breakfast are the worst thing a cancer patient could consume. Antioxidants are your friends. They are very important and that has been proven repeatedly in cancer research.

A book that I highly recommend is How To Prevent and Treat Cancer With Natural Medicine http://www.amazon.com/Prevent-Treat-Cancer-Natural-Medicine/dp/1573223433/ref=sr_1_1?ie=UTF8&s=books&qid=1289582420&sr=8-1

There are a zillion books on the subject of cancer and nutrition, and I read half of them. They all say a lot of the same stuff: Cut out sugar completely. Supplement with Curcumin, Vit C, Quercitin, Maitake D Faction, fish oil, inositol etc etc but I found the murray book above to be so useful because he streamlines down to the best of the best natural remedies and supports his recommendations with research and he makes specific suggestions for cancer types, he also includes a letter to your oncologist and strives to be really compatible with allopathic treatment.

I also like this cookbook, the cancer fighting kitchen, http://www.amazon.com/Cancer-Fighting-Kitchen-Nourishing-Big-Flavor-Treatment/dp/1587613441/ref=sr_1_1?ie=UTF8&qid=1289582506&sr=8-1 which has a great index of ingredients that counter inflammation and a million tips on how to adjust flavors and textures to support cancer patients through treatments.

You are correct though that exercise is very important. I wish the best to you all and your family!

medi_2's picture
medi_2
Posts: 506
Joined: Aug 2009

I've read arguments for both sides and have come to my own conclusions but will not venture to say what is 'correct' and 'not correct', I only know what works for me and when I see someone 50 or more pounds under their ideal weight, I don't think instant breakfast is going to do much harm. Also the 'sugar feeds cancer' debate rages on but I think people are taking it too literaly (H & S, where are you? ;)). But as all cancers are not alike, so all treatments are not alike and different strokes for different folks (oh gosh I sound like a dork). Welcome to our site and we look forward to hearing more from you!
Medi

phelangelica
Posts: 17
Joined: Nov 2010

Sorry if it seemed very disrespectful to say that. My experience is only relatively recent, and im a caregiver, not a survivor. So whatever has worked for you is what is "correct" for you. But my comments were blurted hastily because of conviction and passion to help someone else embarking on this journey. For three months I've immersed myself thoroughly in as much material as humanly possible with the crazed enthusiasm of someone trying to save the life of someone i love. And its a recurring theme that sugar and highly processed foods are on the "avoid" side of the cancer menu. Yes i'm skeptical of mainstream commercial processed food products even before the diagnosis, but im not a wingnut. After three years going through the wringer of law school, I'm pretty good at sussing out the legitimacy of my resources and am not so desperate that i'd cling to quackery for hope. Even if you still have a kernel of doubt about the value of the studies that show negative impact of sugar, I dont think that extra sugar in the diet does anyone enough good to make it worth taking the risk of guzzling it in the form of commercial processed-to death products like ensure that have no relation to real foods that grow out of the ground. I mean, Certainly for the pleasure of living its worth having pleasures of favorite food items that may contain sugar. Savor a creme-brulee if that feels good. But drinking ensure? Doesnt seem worth it. So processed and sweet. Long shelf life usually means a food product is not great for human bodies. Commercially prepared drinks are convenient but should not be the cornerstone of a cancer diet. How about chicken broth? theres a wonderful hydrating nourishing and affordable alternative. Given a diagnosis like this, why not go for passionately learning about how to care for a body with great living foods. whats the downside?

NayPaul's picture
NayPaul
Posts: 231
Joined: Oct 2010

Agree with most of what u say, healthy diet serves a purpose...... and I agree that cancer utilizes sugar....as do all cells.

But the body will synthesize the sugar it needs. The brain is the most metabolically active portion of the body consuming massive amounts of glycogen. Hence that is the reason that pet scans are done on the body... but not the head. The head "lights up" like the sun. So would consuming sugar enhance brain activity... doubtful.

Your final statment is...what's the downside...speaking from experience as a caregiver... it rapid weight loss. If chemo/cancer patients are having a tough time eating various things, then they should eat what they want in order to keep an acceptble weight, or even pack on a few lbs if on the skinny side.

We eat lots of brocoli, tomatos, veges in my family. That should be part of a well balanced long term diet, and I believe too may prevent cancer.... but the proverbial horse is out of the barn... my opinion... also based on research, is that sugar consumption is really only an issue when blood sugar levels cannot be regulated. If that is not a concern, then patients should eat what provides calories.

....the debate rages on.....;) fueled by sugar.

phelangelica
Posts: 17
Joined: Nov 2010

As a general rule we observe a diet low in sugar and high in whole grain foods between chemo rounds. But the week after chemo, your stomach cant work that hard to digest whole grains etc. So processed or overcooked or juiced or pureed foods may be the best way to keep something down. Once G is back on his feet we resume a healthful diet.

Also I've seen first hand the benefits of having G supplement with ginger twice a day for three days before chemo. For G it has meant the difference between functionality and total abject misery. it cuts the nausea immensely in combination with the nausea meds.

We did two rounds without ginger and two rounds with ginger. He will never agree to chemo without the ginger protocol again. I will post the abstract of the study findings lower on the thread.

phelangelica
Posts: 17
Joined: Nov 2010

I can respect your journey Medi. very much. And still, in the interest of being helpful to the orginal posters others I can thorougly disagree with you and try to debunk the advice that the Carnation Instant Breakfast is the "only kind of supplements you will need" and that "antioxidants will help the cancer cells grow" Thats misinformation.

Antioxidants do not help cancer cells grow. Theres a lot that stay alive can do to help her son! And carnation instant breakfast is not "the only supplement" of value to anyone diagnosed with cancer. In fact theres plenty to indicate that the inverse is true.

If the discussion is instead about what tastes good to you or the effect of chemo on tastebuds, then i certainly cannot disagree with you about what you liked to drink after chemo.

My life as a caregiver is largely compassion driven, i dont need the guilt-trips to spur my involvement research and concern.

stayalive
Posts: 24
Joined: Nov 2010

Hi RoseP,

Thank you for your advice about finding a good hospital & oncologist. I agree that finding the best medical care definitely helps, if anything, the confidence and assurance that we are in the best hands. Our struggle is also to start the treatment as soon as possible as we were told that's critical.

I'm sorry that your mom's chemos did not go well. I will pray for your mom ... I do pray that you will find an option that will work for your mom. I surfed the internet as well and there are so many recommendations ... we won't know if we didn't try. Thank you for responding to my post. It makes me feel I'm not alone.

phelangelica
Posts: 17
Joined: Nov 2010

im sorry to say much of that information which Medi posted is incorrect. Sugar feeds cancer, so products like ensure boost and carnation instant breakfast are the worst thing a cancer patient could consume. Antioxidants are your friends. They are very important and that has been proven repeatedly in cancer research.

A book that I highly recommend is How To Prevent and Treat Cancer With Natural Medicine http://www.amazon.com/Prevent-Treat-Cancer-Natural-Medicine/dp/1573223433/ref=sr_1_1?ie=UTF8&s=books&qid=1289582420&sr=8-1

There are a zillion books on the subject of cancer and nutrition, and I read half of them. They all say a lot of the same stuff: Cut out sugar completely. Supplement with Curcumin, Vit C, Quercitin, Maitake D Faction, fish oil, inositol etc etc but I found the murray book above to be so useful because he streamlines down to the best of the best natural remedies and supports his recommendations with research and he makes specific suggestions for cancer types, he also includes a letter to your oncologist and strives to be really compatible with allopathic treatment.

I also like this cookbook, the cancer fighting kitchen, http://www.amazon.com/Cancer-Fighting-Kitchen-Nourishing-Big-Flavor-Treatment/dp/1587613441/ref=sr_1_1?ie=UTF8&qid=1289582506&sr=8-1 which has a great index of ingredients that counter inflammation and a million tips on how to adjust flavors and textures to support cancer patients through treatments.

You are correct though that exercise is very important. I wish the best to you all and your family!

NayPaul's picture
NayPaul
Posts: 231
Joined: Oct 2010

Enough with the sugar feeds cancer... glycose feeds all cells, and your body will produce it.... again .... I don't disagree that cancer utilizes sugar.... but so do all cells, and the brain is the most metabolic of all....

So tell your son to eat what he wants while in chemo..... or just ask your doctors advice on this one.

stayalive
Posts: 24
Joined: Nov 2010

Thank you NayPaul. I think it is a good advice to have my son eat whatever he can keep down. He is starting his first chemo tomorrow so we will see how it is affecting him. We did talk to the doctor and his advice is it is best not to take any chinese herbs/supplements that may interfere with the drugs but of course we are not clear what those are that may interfere. Thank you for your advice. Having folks out there to just share is very encouraging.

stayalive
Posts: 24
Joined: Nov 2010

Thank you Phelangelica. I will look up the books on Amazon.com, they are most helpful. Thank you also for your well wishes. We are going to do any little thing that will help.

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

I'm not sure why you keep harping on the idea that sugar feeds cancer. There is no real and substantiated science supporting that position. A person can eat healthily without cutting out sugar (and cutting out all sugar can be very harmful, actually). TOO much sugar can cause the body to produce too much insulin, which is what can make cancer cells grow. If a person eats a balance of things, including fiber and protein, there's no need to cut out sugars, and their insulin level stays in balance. And furthermore, as Medi said, most oncologists ask that their patients not load up on antioxidants and supplements during treatment, as the antioxidants protect the cancer cells as well as the healthy cells. Not exactly the point of treatment!

*my last rant on this subject*

Stayingcalm

shaun65
Posts: 8
Joined: Aug 2010

hola my name is shaun i am from barcelona spain, i read your story of your son and i feel your pain. your son seems like a very strong and active man and has faced many hard things in his career and i think this good, he will fight this and he has the beautiful love from his mother and family . that is the most important your son has and he will beat this i am sure. my mother was told she had lung cancer in august she has just had surgery, she told me to tell you we will light a candle for you and your son at our church this night. take care and please forgive me for my bad english spelling. shaun

stayalive
Posts: 24
Joined: Nov 2010

Hola Shaun. Thank you so very much for thinking of us and lighting a candle for us. We do appreciate it very very much. My son is going for his 2nd chemo session tomorrow, then he's off for 1 week before he starts another round of treatment. We are praying and hoping that he will respond to the drugs. He has lost much weight and we are spending as much time with him and continuing to keep him positive. Thank you all for your prayers.

By chance can anyone tell me when would one normally start losing hair during the chemo treatments? For e.g, would it be after the 1st, 2nd, 3rd, etc cycles?

Thanks much to all for your support.

NayPaul's picture
NayPaul
Posts: 231
Joined: Oct 2010

It is kind of dependent on the person, type and quanity of chemo...my wife is on taxol and did not start losing hers until five weeks in.

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

I was on cisplatin and vinorelbine and was told that I would lose my hair fairly quickly. I went to the hairdresser and she cut it short in anticipation of the hair loss...guess what?? I didn't lose a hair on my head! I had purchased my wigs and some snazzy scarfs and didn't get to wear them. My hair grows very slowly so perhaps the chemo did not recognize my hair cells as "rapidly" dividing cells. I was worried that it meant the chemo might not be working, but was reassured that it was.

stayalive
Posts: 24
Joined: Nov 2010

Thank you NayPaul and Mamacita for sharing about hairloss. My son is on gematamine and cisplatin. Thank you for all the useful info.

HeartofSoul's picture
HeartofSoul
Posts: 732
Joined: Dec 2009

Scary claims circulate on the Internet that everyday objects and products, such as plastic and deodorant, are secret cancer causes. Beyond being wrong, many of these myths may cause you to worry unnecessarily about your own health and the health of your family.

Before you panic, take a look at the facts. Here, Timothy Moynihan, M.D., a cancer specialist at Mayo Clinic, Rochester, Minn., takes a closer look at some popular myths about cancer causes and explains why they just aren't true.

Myth 1: People with cancer shouldn't eat sugar, since it can cause cancer to grow faster.

Fact: Sugar doesn't make cancer grow faster. All cells, including cancer cells, depend on blood sugar (glucose) for energy. But giving more sugar to cancer cells doesn't speed their growth. Likewise, depriving cancer cells of sugar doesn't slow their growth.

This misconception may be based in part on a misunderstanding of positron emission tomography (PET) scans, which use a small amount of radioactive tracer — typically a form of glucose. All tissues in your body absorb some of this tracer, but tissues that are using more energy — including cancer cells — absorb greater amounts. For this reason, some people have concluded that cancer cells grow faster on sugar. But this isn't true.

phelangelica
Posts: 17
Joined: Nov 2010

Well, I must say I find it interesting that you were so quick to broadcast the study that showed effectiveness of diabetes drugs in preventing the spread of cancer but then would poo-poo the notion that sugar influences the spread of cancer.

Since diabetes medications regulate sugar processes in the body is it such a stretch for you to imagine the benefits of a person regulating their own sugar intake as a preventative measure instead of purchasing pharmaceuticals to do it for them??

phelangelica
Posts: 17
Joined: Nov 2010

One of several such studies reported in Science Daily - dated Feb 6 2010
below exerpt from http://www.sciencedaily.com/releases/2010/02/100205112105.htm

Suspecting that the sugar known as O-GlcNAc might play a role in cell division, the Johns Hopkins team devised a protein-mapping scheme using new mass spectrometric methods. Essentially, they applied a combination of chemical modification and enrichment methods, and new fragmentation technology to proteins that comprise the cell division machinery in order to out and analyze their molecular makeup, identifying more than 150 sites where the sugar molecule known as O-GlcNAc was attached. Phosphates were found to be attached at more than 300 sites...

....Using a standard human cell line (HeLa cells), the scientists discovered abnormalities when they disrupted the cell division process by adding extra of the sugar molecule O-GlcNAc. Although the cell's chromosome-containing nuclei divided normally, the cells themselves didn't divide, resulting in too many nuclei per cell -- a condition known as polyploidy that's exhibited by many cancer cells...

As important as the discovery is to a deeper understanding of cell division, Hart says, this extensive cross talk between O-GlcNAc and phosphorylation is paradigm-shifting in terms of signaling. Signaling is how a cell perceives its environment, and how it regulates its machinery in response to stimuli. The new sugar switches reveal that the cellular circuitry is much more complex than previously thought, he adds.

The research was funded by the National Institutes of Health.

Johns Hopkins authors on the paper are Zihao Wang, Chad Slawson, Kaoru Sakabe, Win D. Cheung and Gerald W. Hart. Other authors are Namrata D. Udeshi, Philip D. Compton, Jeffrey Shabanowitz and Donald F. Hunt, all of the University of Virginia.

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

Please read other articles about this, you'll understand that O-GlcNAc is not the same as the sugars in food ;-)

** Now, let's give Stayalive her thread back, please.**

phelangelica
Posts: 17
Joined: Nov 2010

Hey grumpy smurf, This is a discussion board and my replies are my partcipation in a discussion. Secondly, my replies are appropriate to a thread and directly respond to the post which asks for "any info and help you can offer.... What can we do? Diet, supplements?"

It pains me to read your defensiveness and to be treated like an intruder for sharing information that i've culled from so many sources that are specificlaly intended to be helpful to people who have cancer to live and live well.

It is my belief that when someone asks for what they can do proactively for their health in the face of such a terrifying diagnosis, suggesting carnation instant breakfast is not empowering them with information.

Telline people it doesnt matter what they eat or what they do, that passively taking synthetic pharmaceuticals and "instant foods" is their best bet, well, to me thats not only untrue, its disempowering and depressing. Theres a lot people can do for their health. Staying positive and getting exercise are paramount. So is eating foods that would rot or sprout if left out for a while - rotting or sprouting is a good sign they might actually digest in your body. Prepackaged, highly processed sugar foods are not anybody's friend. calories are not all equal. you can thrive on a low sugar diet. I've seen it. So have you. Horses weigh a ton, literally, and they dont need carnation instant breakfast.

If learning about healthy eating and making informed choices strikes you as more burdensome than empowering thats you. It doesnt mean you dont actually have power in making choices, or that what you choose doesnt make a difference for your body. feel free to ignore the advice and Stayalive and her son can decide for themselves.

be well.

medi_2's picture
medi_2
Posts: 506
Joined: Aug 2009

Phelangelica, Have you ever felt like you had been chewing on metal? Or looked at your favorite food and wanted to puke? I sincerely hope you never do Dear. And do you know what? When I was being treated (very aggresively); Carnation Instant Breakfast tasted soooo good when nothing else did. Thank you for your advice but I follow my own path.
Stayalive, I am sorry to intrude on your thread. Please keep writing and keep us posted. I think you will find that reading about other's experiences makes you feel like you are not alone.
cheers
Medi

phelangelica
Posts: 17
Joined: Nov 2010

Youre experience is of course valid. i didnt think this thread was about what tasted good to you and the effect of chemo on your tastebuds.

I think the discussion was about what someone with a newly diagnosed son who is reeling with that terrible disempowered helpless feeling can do. What tools she can use to empower herself as a caregiver and support her son. I've been where she is. Right where she is. And you saying that carnation et al is "the only supplement" she should use, or that antioxidants feed cancer is not just scientifically untrue, but its a big bummer.

Sorry, i wont be guilt tripped into agreeing with those 2 statements. They arent true.

trft
Posts: 49
Joined: Jan 2006

Hi Stayalive, Oh man... you are in a real tough place. Your son must still be stinging from diagnosis. I also had Adenocarcinoma NSMLC, but my staging was much better. As to sugar or not sugar... I almost feel the discussion here is inappropriate, but you may feel the need to research the issue. It's a hard thing to do with lung cancer. Hang in there. Tim aka trft

stayalive
Posts: 24
Joined: Nov 2010

Yes, we are still trying to recover from the shock of the diagnosis. The first chemo with Cisplatin & Gemcitabin didn't work too much. Was in hospital & ICU for a week due to heart complications. Had a surgery. Now going for 2nd chemo with Cisplatin & Alimta next week. Hope it will go OK this time and that this combination will work better. Thanks for your support.

phelangelica
Posts: 17
Joined: Nov 2010

To supplement with Ginger starting 3 days before (see abstract below)
to wear acupressure wristbands 48-72 hours after - like seabands - especially if you have to ride in a car. Proper placement is important. Cannabis really helps appetite and nausea it helps a lot. I hope you have access to it.

for several days afterwards Avoid grease and anything else hard to digest. Hydration is more important than food. Tiny sips stay down, big gulps dont stay down. If he cant drink any water get him IV fluids, it will accelerate his recovery. Sugary drinks are to be avoided, if you want something like gingerale then dilute it with water.

Have a few kinds of broth around. eat what is craved within reason, nothing super greasy. chew it a lot. make life easy for your stomach.

Take Milk Thistle to reduce toxic burden on liver after chemo.

Get acupuncture if you can between treatments, and taking probiotics and enzymes before meals can help with rebuilding digestion and immune system after the nausea passes and foods can be eaten again.

ABSTRACT: Take ginger as a method to prevent nausea, according to a University
of Rochester Medical Center study that was funded by the National
Cancer Institute. The study involved 644 cancer patients who were
scheduled to have at least three chemotherapy treatments. Chemo
patients in the study were given either ginger or a placebo. Those
who received the ginger rated their nausea level at just two or three
on a scale of one to seven.

Patients took ginger three days before and three days after getting
chemo. They took three capsules twice a day. The most effective doses
were 1 g and 0.5 g a day, which equal 1/2 tsp. or 1/4 tsp. of ground
ginger. Ginger is available at most health food stores.

During the study, all patients also received a standard drug, such as
Zofran or Kytril, to prevents nausea and vomiting.

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

Medi I agree with you....that metal taste was the worst! I found anything creamy that had some fat content in it helped me the most. Crunchy salads with ranch dressing really hit the spot, as well as chicken pot pie! I also stumbled upon fresh coconut right from the shell helped. If I chewed a piece of fresh coconut it took the taste from my mouth for a bit. I did gain weight rather than losing during chemo because of my eating habits but my doctor was thrilled because it is easier to tolorate chemo if you don't lose too much weight. I am now doing VERY well and started a yoga class last night. Now that I am eating normally again my weight has settled back down to normal as well.

All the best to you and your son as you fight the fight!

medi_2's picture
medi_2
Posts: 506
Joined: Aug 2009

You will looove yoga! Let us know how it goes.
Medi

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

Yes, I've heard those acupressure wristbands can cure anything ;-) Does it matter what color they are? Is blue ok? Goes with my eyes.

Stayalive, I'm sure phelangelica believes she is doing the correct thing, but before you do anything please be sure to run it by your son's doctor, ask what she/he thinks. Best of luck and science to your son and to you!
•stayingcalm

NayPaul's picture
NayPaul
Posts: 231
Joined: Oct 2010

According to the abstract, the patients who received givnger rated their nausea at just a two or three on a scale of one to seven....

Do you know at what number those who took a placebo rated their nausea? I did not see that included here.

stayalive
Posts: 24
Joined: Nov 2010

Thanks to all for sharing all the useful info.

My son goes back for his 2nd course of chemo this Fri. He will have ultrasounds & tests before he starts the 2nd course. He reads about sugar and tries to avoid it though he takes Agave Nectar. He seems to continue to look skinnier though he has not lost his appetite completely. However, he is coughing alot more which worries me tremendously. If fluid continues to build up in his heart membrane, the doctors will have a permanent hole (sorry not sure what the medical term is for this procedure) to drain the fluid from his heart membrane to the stomach and I'm very worried that this will cause the cancerous cells to build up in his stomach & other organs.

My son is doing meditations and Qing-gong. There are different meditation & breathing techniques in Qing Gong that increases inner strength and inner oxygen level that we are hoping will help our fight against this disease.

We heard of a teacher who had Stage IV cancer and had gone thru 28 chemo courses with no success and the doctors basically sent him home saying there was nothing they can do. So this teacher for the next 1 year travelled to China to learn different Qing gong techniques and now he's in remission for 8 years. He's now a Qing Gong master inspiring other cancer patients to defeat this disease. We are inspired by this and my son goes to the Qing Gong sessions twice a week. Of course he's the youngest learner in the group but that does not discourage him.

We are hoping that we will get over this difficult challenge and that my son can continue to live his dreams.

havinghope
Posts: 9
Joined: Nov 2010

Hi Stayalive, my husband also have stage 4 lung cancer and had heard good things about Qing Gong. He too is following a teacher who had bone cancer about 30 years ago. Same like your son's teacher, he went back to Hong Kong did surgery and refused all chemo and radiation, instead he went to learn Qing Gong. He has other patients with other illness who are his students and all are looking more healthy than ever.

God bless and lets keep hope alive.

phelangelica
Posts: 17
Joined: Nov 2010

Do look up the studies on acupressure for chemo nausea. They are highly suggestive of efficacy and I know a lot of people who benefit from them. Pretty sure any color will help, Stayingcalm, if its correctly placed on the P6 point. Studies using "sham points" showed that the patient did not enjoy a placebo effect. It has to be correctly placed.

And do look at the study on ginger and hear my experience, im smart and observant and Im sharing my experience: that it works, it helps a lot with nausea.

That was also the experience of the participants in the double blind study funded by the National Cancer Institute. If that strikes you as quackery but you embrace the pharmaceuticals that are being sold to you by corporations that have a huge motive to move their product to you that is your lifestyle choice.

Keep in mind that Ginger and Acupressure are affordable and effective and easily available to everyone and theres really no harm in you setting aside your cynicism and giving these things a try.

I have no motive to mislead anyone: do what you can to improve quality of life and balance the toxic arsenal of pharmaceutical treatments with healthy lifestyle choices.

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

- post a link to the studies. And I'm also interested in the scientific proof for the efficacy of the wristbands, but I'll tell you, acupressure sits right up there with homeopathy for sheer silliness, in my book. Ginger for nausea, well...It's possible, but does it work better than Zofran or Emend or Kytril?
Thx for the info.

nanaof7
Posts: 121
Joined: Feb 2009

If sugar plays such an important roll in cancer then why after my LC surgery I was told to cut out all sugars, which I did I didn't even eat anything that turned to sugar no white potato's no dairy,no breads only chicken and vegs and fruits and within a year I had mets to the brain I don't think there is any one thing is an exact science we do the best we can I was very disappointed when I was told that if I didn't want my cancer to come back to follow this diet and it came back anyway so nothing is for sure to me it was just false hope

rubyb
Posts: 1
Joined: Dec 2010

Hi Stayalive!!

Just wanted to let you know that there is a tremendous amount of hope for your son. I was diagnosed with stage IV lung cancer in May of 2010 with mets to the lymph nodes of the mediastinum and the left hip. I don't have any professional advice to offer but I can tell you some of the things that I did. First and foremost I surrounded myself with a wonderful group of very supportive friends who only would believe a complete cure for me. They all prayed for me and asked several of their friends and needless to say before it was all said and done there were probably thousands of people praying for me. Whenever a person asked if they could pray for me I would stop and allow them to pray for me. These two things sustained me and gave me a great sense of peace.

Nutritionally I took high doses of vitamin D, a really good mega multiple, fish oil, co-Q10, and ate a really good diet of fresh fruits, vegetables and quality protein. I ate a lot of asparagus as this has been shown to shrink lung tumors. I drank lots of alkaline water and did yoga at least 3-5 times a week for strengthening body, mind and spirit...

I also did 6 rounds of chemotherapy at an excellent hospital here in Michigan, Henry Ford. I just knew I was going to be ok and on September 30, 2010 my doctor could find no evidence of cancer.

Is there hope for your son and can you expect a miracle??? Absolutely, expect it and accept nothing less!!

stayalive
Posts: 24
Joined: Nov 2010

Hi Ruby. Thank you so much for being so encouraging. It's thru stories like yours that give us strength and belief in a cure. I'm so happy to hear that they could not find any evidence of cancer. Thanks for sharing your great story.

have2believe
Posts: 135
Joined: Dec 2010

The diagnosis of stage 4 is so devastating. My hope is that one day advanced cancer can become a chronic treatable condition like diabetes. With so many new drugs that come out, it's the plan to be one step ahead of the game. People can stay in remission for a very very long time, and spontaneous remission does happen. As far as supplements, I would advise you to get the books written by PRACTICING integrative oncologists or do an in-office visit with one. Books like Life Over Cancer and Integrative Oncology. Most drs are not familiar with supplements, so they always err on the side of caution, not knowing its effects. Research on pubmed and also Sloan Kettering has an herb resource webpage. Dr. Keith Block based in Chicago is a widely known integrative oncologist and he does advise people on supplements and does in office visits and phone consults. You will hear a lot of people say, stop eating sugar, eat baking soda, eat asparagus...to the pt that it becomes irritating and offensive. Because unless you have personally cured yourself of advance cancer, I will rely on evidence based treatments and supplements. Stay up to date with info and don't hesitate to get a second, third, opinion. Most importantly, be there as much as you can for your son and have hope. Miracles do happen.

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