Oct 30, 2010 - 11:02 am
Just diagnosed yesterday.
A year ago I started having a burning sensation in both of my eyes. I was treated for dry eyes and then 5 months into treatment I started having double vision. They did a CT scan and found a 2.8 cm tumor behind my left eye. A biopsy was performed and it was confirmed as lymphoma.
Yesterday I was told that I had "marginal zone" lymphoma, and indolent straing that has a 5-10% risk of transformation over time. They found 5-10% infiltration of the bad cells in the bone marrow so they are calling it stage IV, although they are saying for marginal zone lymphoma that the staging is not really that applicable.
I also had a full body scan that revealed that my spllen is about 20% enlarged. Blood work is normal and the lymph nodes are normal at this point.
They are telling me I can live a long time with this disease (some have lived 25 years they said).
They also told me that this is like having a chronic disease. That I would be in for treatment off and on the rest of my life.
I was wondering if anyone else has been diagnosed with "marginal zone" or a similar indolent type of lymphoma and can tell me if the information above sounds correct.