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PRCC- no! Metanephric Adenoma

Von55's picture
Von55
Posts: 57
Joined: Aug 2010

After undergoing an open partial nephrectomy 5wks ago for RCC, my results have just come back from pathology, and the tumour was found to be benign! Praise God- I can hardly believe it..

It has been identified as a Metanephric Adenoma, believed to be the benign adult equivalent of Wilm's Tumour as both develop from embryonic kidney cells. It is a rare tumour (around 0.2% of cases) and is indistinguishable from malignant Papilliary RCC ( and causes the same symptoms) except at the molecular level- which is why it had to be removed. There were positive margins (ie they did not get it all).Rarely, this tumour will metastasise or develop malignancy. Therefore follow-up is similar- scans every 6 months, blood tests etc. And of course there's the recovery from surgery, the 16" incision and adjusting to life with most of one kidney gone- but this is such a small price to pay for the relief of the diagnosis.

Don't give up hope that your outcome will be good! As many on the forum have pointed out, if caught early Kidney Cancer itself is 100% curable, and there IS a chance that your tumour is benign. It may be a small chance, but it is still possible. And as painful and temporarily debilitating as nephrectomy is- whether your tumour is malignant or not- there is an end in sight to the pain.

Thank you all for your support- I still feel part of this community and at least I can still contribute to any "recovering from nephrectomy" topics!
Love,
Von

rae_rae's picture
rae_rae
Posts: 267
Joined: Oct 2010

Wonderful news! I am very happy for you. :)
Rae

Von55's picture
Von55
Posts: 57
Joined: Aug 2010

Thank you Rae_Rae, that's very kind of you :)
By the way, that's a beautiful cat you've got there!
All the best,
Yvonne

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Fabulous news to say the very least. Wonderful.

I was interested in the word 'metanephric' because it was my metanephron numbers that were wondky and that is why I am on this board doing some digging. The last results came back better than the first but haven't seen the doc again to discuss it all.

Where you aware of your metanephron numbers being out of whack before diagnosis?

Thanks and again great news for you.

Blessings, Bluerose

Von55's picture
Von55
Posts: 57
Joined: Aug 2010

Hiya Bluerose!
Thank you so much for good wishes & support. How are you? No, the metanephron numbers wern't even mentioned (mind you, this is Australia so maybe we're a bit behind, haha!) and until I saw your initial post about them I'd never actually heard of them!
My urologist is a forbidding sort of person who doesn't take kindly to questions (yeah, there's a lot of them around) but when I get back to my GP I'll ask him to investigate.
What is happenning with you- have you actually been diagnosed with a specific type of tumour/cancer? Is there confusion about the treatment? Sorry, I meant to look back over your postings before I replied to you.
I was diagnosed with a Bosniak 111 complex cyst, indistinguishable from RCC. I had all the usual symptoms- flank pain, palpable mass (but not blood in the urine) plus polycythemia and extreme fatigue. They had no choice but to operate.
Let me know how your doing, and all the best to you,
Von xx

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Still waiting on results from borderline numbers in the 48 hour urine test that set all of this scare off a month or so back. Had a repeat of the test and apparently the numbers are much better but a tone in the message about this from my general doctor seemed concerned so I see her in a couple of weeks to find out why. Still coming up on a pelvic ultrasound for another issue they are concerned about and that is they need to biopsy some of the lining of the uterus - out of the blue it got thick for no reason. Sheeesh. I can't take invasive testing anymore so they will have to put me out and my health is on the edge so they dont want to do general anaesthetic so don't know what will happen.

My daughter is coming home for Xmas for the first time in 5 years so I don't want surgery before Xmas and they have it scheduled for Dec so I am going to postpone it to January. I deserve some fun and I am taking the rest of the year off to have it, so take that medical community, lol.

I had non hodgkins lymphoma 22 years ago and again a year and a half after that but have been considered cured for years and years now. Still have alot of side effects and late effects of treatments though that keep me down. The second diagnosis of NHL I opted for a bone marrow transplant with total body radiation so harsh stuff indeed. There is a price to pay for the cure, for me anywho but hey I got to see my kids grow up and start lives of their owns so you can't complain too much.

Anywho playing the waiting game now, yet again, that's the story to date.

Again, glad all has turned out well for you and hope that continues. Blessings, Bluerose

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