Oct 29, 2010 - 9:20 pm
After undergoing an open partial nephrectomy 5wks ago for RCC, my results have just come back from pathology, and the tumour was found to be benign! Praise God- I can hardly believe it..
It has been identified as a Metanephric Adenoma, believed to be the benign adult equivalent of Wilm's Tumour as both develop from embryonic kidney cells. It is a rare tumour (around 0.2% of cases) and is indistinguishable from malignant Papilliary RCC ( and causes the same symptoms) except at the molecular level- which is why it had to be removed. There were positive margins (ie they did not get it all).Rarely, this tumour will metastasise or develop malignancy. Therefore follow-up is similar- scans every 6 months, blood tests etc. And of course there's the recovery from surgery, the 16" incision and adjusting to life with most of one kidney gone- but this is such a small price to pay for the relief of the diagnosis.
Don't give up hope that your outcome will be good! As many on the forum have pointed out, if caught early Kidney Cancer itself is 100% curable, and there IS a chance that your tumour is benign. It may be a small chance, but it is still possible. And as painful and temporarily debilitating as nephrectomy is- whether your tumour is malignant or not- there is an end in sight to the pain.
Thank you all for your support- I still feel part of this community and at least I can still contribute to any "recovering from nephrectomy" topics!