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Issue after surgery

beccabee
Posts: 3
Joined: Oct 2010

Hi,...I was diagnosed with wilms tumor when I was 15 months old. I had a nephrectemy(spelling?) and was on Chemo thereapy for 6 months. I was on achtinamiacinde and vencristine, and was allergic to achtinamiacinde so they put me on adrianmiacin(an older drug)

I am cancer free now, but ever since I was little I've had this thing I call a "fat pad" it's a mass in the middle of my abodmen under and surrounding my belly button. I loose and gain weight under it.I have had it my whole life, but in the past month it's grown and I know it's not me gaining weight because I've lost weight. Even when I lay down it is clearly visible and you can see my pulse in my stomich. I've been to three or four doctors about it and no one has been able to figure it out and nothing shows up on an ultra sound.

Has anyone else had this problem? Please let me know!

amurillo63
Posts: 29
Joined: Sep 2010

Hi beccabee,
I would suggest that you ask for a ct scan. It is vital to be agressive in your care. If you don't feel comfortabel with what your doctors are doing or not doing. Ask for a second opinion. If you still don't get the attention that you believe you require ask to speak to a case manager. They are available when you have concerns about the care that you are receiving. It is very effective in getting things done. Don't be affraid to disagree with your doctor no one knows your body like you do and it is your life!
I wish you all the best! Please keep me posted on your status. I will keep u in my prayers!

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