I do, however, get on Facebook more regularly than here. I am friends with many of you on Facebook already, but would love to have more of my CSN family as friends. If you would like to friend me, just send me a private message with your e-mail, or I can send you a private message with my e-mail address, so that we can be friends on Facebook.
TaTa for now! Jean
Comments
-
Not "out" on facebook yet
Because Donna hasn't posted about bc on facebook, I haven't acknowledged it either. She actually wants to change her profile pic to a "topless" one holding her survivor t-shirt from the making strides walk, but we haven't gotten that far yet. After she does (hopefully this week), I will "come-out" of the breast cancer closet. My close family knows, but the more distant family, high-school friends... all those other people that you are friends with on facebook have no idea of what we have been going through. If anyone wants to find me on facebook can send me a private message, or I am friends with chen, so you can scroll through her friends and find me.
Anyone else not posting about breast cancer on facebook?
Bob0 -
I'm already friends withHubby said:Not "out" on facebook yet
Because Donna hasn't posted about bc on facebook, I haven't acknowledged it either. She actually wants to change her profile pic to a "topless" one holding her survivor t-shirt from the making strides walk, but we haven't gotten that far yet. After she does (hopefully this week), I will "come-out" of the breast cancer closet. My close family knows, but the more distant family, high-school friends... all those other people that you are friends with on facebook have no idea of what we have been going through. If anyone wants to find me on facebook can send me a private message, or I am friends with chen, so you can scroll through her friends and find me.
Anyone else not posting about breast cancer on facebook?
Bob
I'm already friends with both of you awesome ladies on FB:)
Bob - I kind of did the opposite with Facebook - my friends & family have been on this journey with me since day one. I haven't made breast cancer the entire focus on my posts & updates on there, though. I've found it was a very convenient way to keep everyone informed on my surgeries, treatment, progress, etc. From the beginning, though, I've said that I'm going to be a loudmouth when it comes to breast cancer, get involved with whatever i can, raise money, raise awareness, talk in front of crowds if i have to, do the walks - whatever i can do to help out other women & their families going through breast cancer. I also use FB to send all my girlfriends monthly reminders to check their boobies
If anyone would like to add me on FB I'm under Heather Kaylor Grontkowski & am always happy to add CSN sisters!
*hugs*
Heather0 -
Bob,Hubby said:Not "out" on facebook yet
Because Donna hasn't posted about bc on facebook, I haven't acknowledged it either. She actually wants to change her profile pic to a "topless" one holding her survivor t-shirt from the making strides walk, but we haven't gotten that far yet. After she does (hopefully this week), I will "come-out" of the breast cancer closet. My close family knows, but the more distant family, high-school friends... all those other people that you are friends with on facebook have no idea of what we have been going through. If anyone wants to find me on facebook can send me a private message, or I am friends with chen, so you can scroll through her friends and find me.
Anyone else not posting about breast cancer on facebook?
Bob
I was a very reluctant,
Bob,
I was a very reluctant, actually kicking and screaming member of FB for a few years. I would join and then not, and then join and then not. I had this idea that I didn't care if you ( or anyone else) had mac and cheese for dinner, or watched an old movie, or had a fight with your nieghbor about his cat...you get the idea. And I especially didn't care about those things when they happened to people I didn't know who just happened to be the co worker/friends of my sister or my niece. Actually, it also put me in a not so good place to see on FB that Reggie's 19 year old daughter is the queen of jello shots making them and drinking them...she either isn't smart enough or not caring enough to have her FB settings private. I am not a FB friend, yet I can read her wall daily and find out what she's up to. UGH
I was happily posting here ( and I still am) until I had the emotional rug pulled out from unfer me in May~I had my gall-bladder removed and didn't heal well. Only to find out it was because, after an almost 8 year remission, I now have liver cancer, and a few other places this damnable BC has decided to take up residence in.
What does this have to do with FB? I simply realized I didn't have the emotional fortitude to email or call all of my non CSN family and friends with my worst possible news. But I could post it on FB...and here. That pretty much covered all bases. And whereas I don't write about every fear, nuance, up or down of this latest journey, it does keep me connected with those who I have become close to. Many of those kindred spirits have gone on to Life Without Cancer, and don't pop in here any longer. If not for FB, they perhaps wouldn't know.
On the flip side of that, I absolutely get your reasons for NOT having the FB family know of you and your wife's journey. Back in 2004, just as I was finishing reatment, an old b/f found me via the internet. It was wonderful to re-connect with him! We caught up on "what have you been doing since I last saw you in 1972!" We talked about our families, our jobs, everything!!!! Except one thing~ I didn' tell him I was battling the beast! I live in California, he is Colorado, we had no plans/desire to meet. There was no need for him to know! I absolutely loved being able to NOT have to have cancer play any part of this trip down memory lane. It probably would have stayed that way , but one day he emailed about his weekend, and that he, his wife and daughter participated in the Susan G Komen Race For The Cure. Dang!!!!! So, he found out and has supported me emotionally and financially ever since~ well as far as cancer fund-raising is concerned! LOL
I have come to know that there is practically no right or wrong here...we do what we can do best fight this war and win!
Hugs,
Claudia0 -
♥ Hi to everyone! ♥chenheart said:Bob,
I was a very reluctant,
Bob,
I was a very reluctant, actually kicking and screaming member of FB for a few years. I would join and then not, and then join and then not. I had this idea that I didn't care if you ( or anyone else) had mac and cheese for dinner, or watched an old movie, or had a fight with your nieghbor about his cat...you get the idea. And I especially didn't care about those things when they happened to people I didn't know who just happened to be the co worker/friends of my sister or my niece. Actually, it also put me in a not so good place to see on FB that Reggie's 19 year old daughter is the queen of jello shots making them and drinking them...she either isn't smart enough or not caring enough to have her FB settings private. I am not a FB friend, yet I can read her wall daily and find out what she's up to. UGH
I was happily posting here ( and I still am) until I had the emotional rug pulled out from unfer me in May~I had my gall-bladder removed and didn't heal well. Only to find out it was because, after an almost 8 year remission, I now have liver cancer, and a few other places this damnable BC has decided to take up residence in.
What does this have to do with FB? I simply realized I didn't have the emotional fortitude to email or call all of my non CSN family and friends with my worst possible news. But I could post it on FB...and here. That pretty much covered all bases. And whereas I don't write about every fear, nuance, up or down of this latest journey, it does keep me connected with those who I have become close to. Many of those kindred spirits have gone on to Life Without Cancer, and don't pop in here any longer. If not for FB, they perhaps wouldn't know.
On the flip side of that, I absolutely get your reasons for NOT having the FB family know of you and your wife's journey. Back in 2004, just as I was finishing reatment, an old b/f found me via the internet. It was wonderful to re-connect with him! We caught up on "what have you been doing since I last saw you in 1972!" We talked about our families, our jobs, everything!!!! Except one thing~ I didn' tell him I was battling the beast! I live in California, he is Colorado, we had no plans/desire to meet. There was no need for him to know! I absolutely loved being able to NOT have to have cancer play any part of this trip down memory lane. It probably would have stayed that way , but one day he emailed about his weekend, and that he, his wife and daughter participated in the Susan G Komen Race For The Cure. Dang!!!!! So, he found out and has supported me emotionally and financially ever since~ well as far as cancer fund-raising is concerned! LOL
I have come to know that there is practically no right or wrong here...we do what we can do best fight this war and win!
Hugs,
Claudia
♥
♥
♥
I haven't been to this site for almost a year, and, I am totally lost as to what is going on. For those that don't know me, I had a second battle with breast cancer in 09. My first one was in 1985. I have had 3 lumpectomy's since Jan. 09, with the latest one just this past September. All cysts, lumps and bumps were benign in the last 2 lumpectomy's. The first one in Jan. 09 removed the tumor and we got clean margins! Followed that with 37 rads, 25 regular and 12 boosters. I haven't been back to work, may just retire. lol My husband David likes me at home. I think he just likes being able to call me 100 times a day to check on me. lol Gotta love him!
♥
Life after cancer, even after having cancer twice is good, no, it is GREAT! I just put the past behind me and look forward to each and everyday. Hanging on to fear or what has happened does no good, but, to drag you down and keep you there. I plan on living a very long and healthy life and cancer is not going to stop me!
♥
Anyway, I saw the post on Facebook and wanted to say that I have a lot of you already as my friends on there, and, I play Farmville with most of you. That is where a lot of the "old" CSN'ers went. So, come on over to Facebook and play Farmville or just keep in touch with us. Would love to see you there.
My name on Facebook is Jeanne On Here. So, add me as a friend and just let me know that you are from CSN.
Praying for all that need it and saying hi to all of the ones that I knew on here a year ago!
Love, Jeanne ♥</♥</font>0 -
I never joined Facebook,heidijez said:me too!
i am friends with some of you on facebook, but would love to have more of my CSN buddies on facebook too! please PM me with your email address so i can add you! thanks!
and thanks jean, for thinking of this!
I never joined Facebook, but, I know many from here are there now and don't come here. I should join.
And, it is GREAT to see you here Jeanne D! You have been missed! And, we always loved your floating hearts!
♥ Noel0 -
facebook
Private message me with your email address so I can request you ladies on facebook. thanks!0 -
♥ Chris ♥chriskaput said:facebook
Private message me with your email address so I can request you ladies on facebook. thanks!
♥
Hi Chris! I just accepted your request on Facebook. Or, I think it was you...lol</♥</font>
Love, Jeanne ♥</♥</font>0 -
Love the hearts Jeanne D!chriskaput said:facebook
Private message me with your email address so I can request you ladies on facebook. thanks!
I tried to join facebook when the CSN California reunion pictures were floating around, but, it wanted my cellphone number to join and I wanted that to be private. Did that happen to the rest of you when you joined?
Thanks!0 -
Those spammers are at itheidijez said:me too!
i am friends with some of you on facebook, but would love to have more of my CSN buddies on facebook too! please PM me with your email address so i can add you! thanks!
and thanks jean, for thinking of this!
Those spammers are at it again Jean? It has been quite awhile since the last one. I think it is great that so many of you from here are on Facebook. I know many that never post here are there now.
Hugs, Diane0 -
Cell phoneAlexis F said:Love the hearts Jeanne D!
I tried to join facebook when the CSN California reunion pictures were floating around, but, it wanted my cellphone number to join and I wanted that to be private. Did that happen to the rest of you when you joined?
Thanks!
Hi Alexis, I didn't put my phone numbers down when I joined Facebook.0 -
Awwww come on Claudia....chenheart said:Bob,
I was a very reluctant,
Bob,
I was a very reluctant, actually kicking and screaming member of FB for a few years. I would join and then not, and then join and then not. I had this idea that I didn't care if you ( or anyone else) had mac and cheese for dinner, or watched an old movie, or had a fight with your nieghbor about his cat...you get the idea. And I especially didn't care about those things when they happened to people I didn't know who just happened to be the co worker/friends of my sister or my niece. Actually, it also put me in a not so good place to see on FB that Reggie's 19 year old daughter is the queen of jello shots making them and drinking them...she either isn't smart enough or not caring enough to have her FB settings private. I am not a FB friend, yet I can read her wall daily and find out what she's up to. UGH
I was happily posting here ( and I still am) until I had the emotional rug pulled out from unfer me in May~I had my gall-bladder removed and didn't heal well. Only to find out it was because, after an almost 8 year remission, I now have liver cancer, and a few other places this damnable BC has decided to take up residence in.
What does this have to do with FB? I simply realized I didn't have the emotional fortitude to email or call all of my non CSN family and friends with my worst possible news. But I could post it on FB...and here. That pretty much covered all bases. And whereas I don't write about every fear, nuance, up or down of this latest journey, it does keep me connected with those who I have become close to. Many of those kindred spirits have gone on to Life Without Cancer, and don't pop in here any longer. If not for FB, they perhaps wouldn't know.
On the flip side of that, I absolutely get your reasons for NOT having the FB family know of you and your wife's journey. Back in 2004, just as I was finishing reatment, an old b/f found me via the internet. It was wonderful to re-connect with him! We caught up on "what have you been doing since I last saw you in 1972!" We talked about our families, our jobs, everything!!!! Except one thing~ I didn' tell him I was battling the beast! I live in California, he is Colorado, we had no plans/desire to meet. There was no need for him to know! I absolutely loved being able to NOT have to have cancer play any part of this trip down memory lane. It probably would have stayed that way , but one day he emailed about his weekend, and that he, his wife and daughter participated in the Susan G Komen Race For The Cure. Dang!!!!! So, he found out and has supported me emotionally and financially ever since~ well as far as cancer fund-raising is concerned! LOL
I have come to know that there is practically no right or wrong here...we do what we can do best fight this war and win!
Hugs,
Claudia
Awwww come on Claudia....you know you love hearing about our farms and pupz on fb! LOL!!
I, for one, am very glad you are there!
Hugs,
CR0 -
Not me! Still in the closet (mostly)Hubby said:Not "out" on facebook yet
Because Donna hasn't posted about bc on facebook, I haven't acknowledged it either. She actually wants to change her profile pic to a "topless" one holding her survivor t-shirt from the making strides walk, but we haven't gotten that far yet. After she does (hopefully this week), I will "come-out" of the breast cancer closet. My close family knows, but the more distant family, high-school friends... all those other people that you are friends with on facebook have no idea of what we have been going through. If anyone wants to find me on facebook can send me a private message, or I am friends with chen, so you can scroll through her friends and find me.
Anyone else not posting about breast cancer on facebook?
Bob
I finally gave in and joined facebook. Never posted BC - I never told my parents because of their precarious health. But, I thought would give it a try.
It has a life of it's own, suddenly there are pictures up, quotes on my wall that I would never post and etc. I want to get that stuff OFF! But computer illiterite (sp).
Anyway, a resounding no to Facebook.
Sue0 -
i know this sounds dumb, but
i know this sounds dumb, but i'm still not sure how to send a private message! i'm on facebook all the time 0 -
PScarriesoup said:i know this sounds dumb, but
i know this sounds dumb, but i'm still not sure how to send a private message! i'm on facebook all the time
i'm ok with anyone sending me a friend request! it's probably easier anyway. my name on fb is carrie sue smurkowski. feel free to friend me 0 -
So, this is where you areJean 0609 said:Cell phone
Hi Alexis, I didn't put my phone numbers down when I joined Facebook.
So, this is where you are all hiding? On facebook? lol I don't think I would want my phone number out there either. Are you sure Alexis it asked for it? Maybe you don't have to give it to them.
Sue 0 -
AlexisAlexis F said:Love the hearts Jeanne D!
I tried to join facebook when the CSN California reunion pictures were floating around, but, it wanted my cellphone number to join and I wanted that to be private. Did that happen to the rest of you when you joined?
Thanks!
you don't have to put your number if you don't want to. you can just skip that part. my number isn't on facebook either.
carrie:)0 -
I have thought about joiningsbmly53 said:Not me! Still in the closet (mostly)
I finally gave in and joined facebook. Never posted BC - I never told my parents because of their precarious health. But, I thought would give it a try.
It has a life of it's own, suddenly there are pictures up, quotes on my wall that I would never post and etc. I want to get that stuff OFF! But computer illiterite (sp).
Anyway, a resounding no to Facebook.
Sue
I have thought about joining it ever since awhile back when there was a post about a lot of our sisters in pink being on there and playing the games. It sounded like fun. Maybe I should rethink it and join. Is it hard to join?
Jan0 -
Coming outchenheart said:Bob,
I was a very reluctant,
Bob,
I was a very reluctant, actually kicking and screaming member of FB for a few years. I would join and then not, and then join and then not. I had this idea that I didn't care if you ( or anyone else) had mac and cheese for dinner, or watched an old movie, or had a fight with your nieghbor about his cat...you get the idea. And I especially didn't care about those things when they happened to people I didn't know who just happened to be the co worker/friends of my sister or my niece. Actually, it also put me in a not so good place to see on FB that Reggie's 19 year old daughter is the queen of jello shots making them and drinking them...she either isn't smart enough or not caring enough to have her FB settings private. I am not a FB friend, yet I can read her wall daily and find out what she's up to. UGH
I was happily posting here ( and I still am) until I had the emotional rug pulled out from unfer me in May~I had my gall-bladder removed and didn't heal well. Only to find out it was because, after an almost 8 year remission, I now have liver cancer, and a few other places this damnable BC has decided to take up residence in.
What does this have to do with FB? I simply realized I didn't have the emotional fortitude to email or call all of my non CSN family and friends with my worst possible news. But I could post it on FB...and here. That pretty much covered all bases. And whereas I don't write about every fear, nuance, up or down of this latest journey, it does keep me connected with those who I have become close to. Many of those kindred spirits have gone on to Life Without Cancer, and don't pop in here any longer. If not for FB, they perhaps wouldn't know.
On the flip side of that, I absolutely get your reasons for NOT having the FB family know of you and your wife's journey. Back in 2004, just as I was finishing reatment, an old b/f found me via the internet. It was wonderful to re-connect with him! We caught up on "what have you been doing since I last saw you in 1972!" We talked about our families, our jobs, everything!!!! Except one thing~ I didn' tell him I was battling the beast! I live in California, he is Colorado, we had no plans/desire to meet. There was no need for him to know! I absolutely loved being able to NOT have to have cancer play any part of this trip down memory lane. It probably would have stayed that way , but one day he emailed about his weekend, and that he, his wife and daughter participated in the Susan G Komen Race For The Cure. Dang!!!!! So, he found out and has supported me emotionally and financially ever since~ well as far as cancer fund-raising is concerned! LOL
I have come to know that there is practically no right or wrong here...we do what we can do best fight this war and win!
Hugs,
Claudia
Actually my reason for not posting was that Donna didn't want me to, and I wasn't going to put it out there without her approval. But... she updated her profile pic last night. After giving her exclusivity for 24 hours, I will upload some Making Strides photos to my page and put it out there.
I'll see what happens. On one hand not being "breast cancer husband" is sometimes a relief. On the other hand, I think this will give me the freedom to post again. I haven't really posted much in since April 1st.
Hugs back
Bob0 -
I'm glad to hear that yourHubby said:Not "out" on facebook yet
Because Donna hasn't posted about bc on facebook, I haven't acknowledged it either. She actually wants to change her profile pic to a "topless" one holding her survivor t-shirt from the making strides walk, but we haven't gotten that far yet. After she does (hopefully this week), I will "come-out" of the breast cancer closet. My close family knows, but the more distant family, high-school friends... all those other people that you are friends with on facebook have no idea of what we have been going through. If anyone wants to find me on facebook can send me a private message, or I am friends with chen, so you can scroll through her friends and find me.
Anyone else not posting about breast cancer on facebook?
Bob
I'm glad to hear that your life is getting back to normal Jean. Praying that it only gets better with each day!
Hugs, Debby0
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