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asking for prayers again (results)

Marsha Mulvey
Posts: 597
Joined: May 2010

Last Monday I had my first scan since this flare-up started in mid August. There's some good news, the spots in the bones are stable, the lymph nodes have not become enlarged again, and my onc says we have lots of options available. The bad news however is that there is growth evident in the liver, both on the existing tumors and some new (if very small) lesions. The tumors in the breast have continued their growth too. After extremely significant shrinkage between Feb. and July, they are now larger than they were at diagnosis. What was the larger area in Feb (6cm) is now 5cm and the tumor that was 5cm in Feb is now 7cm.

So...on Friday we replaced the Taxotere with NAVELBINE, weekly. I'll continue Herceptin weekly and Zometa once every 4 weeks. If anyone has experienced Navelbine, please share your knowledge with me.

Please keep me in your thoughts and prayers as I do you. Best wishes and God bless us all.
Marsha

weazer's picture
weazer
Posts: 440
Joined: Mar 2010

Sorry, I have'nt heard of Navelbine before, but you are in my prayers and thoughts.
Take care sister and I hope someone will share with you there experience.
Karie

dee1962's picture
dee1962
Posts: 99
Joined: Oct 2010

no experience with this but i will keep u in my prayers....

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

You are in my thoughts and my prayers.

Big hugs,

Diane

CypressCynthia's picture
CypressCynthia
Posts: 3874
Joined: Oct 2009

Marsha, You are definitely in my thoughts and prayers. I do not know much about navelbine except what I read. Here is some info and links:

http://www.breastcancer.org/treatment/druglist/navelbine.jsp
Navelbine
Brand name: Navelbine

Chemical name: Vinorelbine

Class: Vinca alkaloid chemotherapy. Vincristine is another vinca alkaloid.

How it works: Vinca alkaloids kill cancer cells by interfering with genes and stopping the cells from reproducing themselves.

Uses: Navelbine is used to treat advanced-stage breast cancer.

How it's given: Navelbine is given intravenously.

Additional information: Navelbine is made from the periwinkle plant.

Side effects:

low white blood cell counts
numbness and tingling in the hands and feet
nausea
vomiting
hair loss
mouth sores
hair changes
diarrhea

Here is another link with info: http://www.chemocare.com/bio/vinorelbine.asp

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Praying for you! Keep us updated!

♥ Noel

CypressCynthia's picture
CypressCynthia
Posts: 3874
Joined: Oct 2009
sea60's picture
sea60
Posts: 2601
Joined: May 2010

and keeping you in my thoughts.

Keep faithful and positive throughout this. With Christ all things are possible.

Please keep us posted.

carkris's picture
carkris
Posts: 4513
Joined: Aug 2009

you are in my prayers. hope the new med is easily tolerated and works well.

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Sending positive thoughts and prayers for you Marsha!

heidijez's picture
heidijez
Posts: 441
Joined: Mar 2010

positive thoughts your way. hang in there, we are all rooting for you!

DebbyM's picture
DebbyM
Posts: 3295
Joined: Oct 2009

Praying for you Marsha. Please keep us informed as to how you are doing.

Hugs, Debby

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

Marsha, I will keep you in my prayers and send positive thoughts. I have seen Navelbine listed on other boards, for example, breastcancer.org. You might check other sites then for comments and others' experiences with this chemo. It seems to be a common treatment in recurrences. Wishing you excellent results with the treatment also.

Katz77
Posts: 598
Joined: Sep 2009

You know how I feel. Prayers, hope and positive thoughts are with you. katz

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fauxma
Posts: 3531
Joined: Dec 2008

Good thoughts and prayers coming your way.
Stef

VickiSam's picture
VickiSam
Posts: 8220
Joined: Aug 2009

of information.

Stef: Best of luck .. prayers and the power of strength coming your way. Warriors - on your side and besides you during each and every treatment.

Vicki Sam

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Positive thoughts and prayers for you Marsha!

Heatherbelle's picture
Heatherbelle
Posts: 1218
Joined: Jun 2010

Keeping you in my thoughts and prayers Marsha. I've never even heard of Navelbine, but I'm sure hoping that it kicks a*s for you and doesn't give you any nasty side effects. Sending big big hugs your way :)
*hugs*
Heather

Double Whammy's picture
Double Whammy
Posts: 2260
Joined: Jun 2010

The part of your message that was the most positive is that your oncologist said you still have lots of options. I hope the new chemo does its job and knocks those nasty spots into oblivion and that you tolerate it well.

Suzanne

MyTurnNow's picture
MyTurnNow
Posts: 2694
Joined: Aug 2009

Sending strength and courage your way!! You go pink sister and kick its arse!! We are all rooting for your success.

survivorbc09
Posts: 4378
Joined: Jun 2009

Marsha, I will keep you in my prayers.

Hugs, Jan

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

I think Cynthia explained it very well. I will keep you in my prayers Marsha,
Take care Kay.

chenheart's picture
chenheart
Posts: 5182
Joined: Apr 2003

((((((HUGS))))))) to you, sweet sister! I also do not know about Navelbine; however, it seems to me that so many treatment options are now available, and I am pleased that your oncologist has one for you!!!! I send you all if the courage, strength and determination you need to beat back this beast.

Keep us posted~ we are with you as you walk this path.

Hugs,
Chen♥

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meena1
Posts: 1005
Joined: Oct 2008

DANG! I am so sorry for this news, I go to the doctor tomorrow and i think he will be sending me for a scan soon. Our stories really are so similar. i am feeling good so i really believe things are going well. I do not know anything about Navelbine, but i saw it mentioned on another site. Take care

sausageroll's picture
sausageroll
Posts: 415
Joined: Dec 2008

Just caught up on this Marsha. You are very much in my thoughts....it's good that they say you have lots of options. Take care.

Eil4186's picture
Eil4186
Posts: 967
Joined: Dec 2007

Marsha, I am sorry about this news. You must continue to be strong and fight the good fight. There are so many treatment options now and one will work for you. It sounds like your onc is feeling poditive too.

Hang tough, and know that you are in my praters and we are all here for you Love Eil

ms.sunshine
Posts: 710
Joined: Mar 2010

We are here for you. Stay strong, and persistant.

New Flower
Posts: 3917
Joined: Aug 2009

Sending positive thoughts and prayers your way.
new Flower

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Praying for you Marsha! We are all supporting you!

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Offering my prayers for you Marsha also.

Kristin ♥

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Always thinking and praying for you!

iowasignterp's picture
iowasignterp
Posts: 55
Joined: Aug 2010

so sorry to hear that it has come back worse. They keep coming out with new meds so maybe it will prolong this until the next new treatment comes out. Think positive, right. Enjoy what you can for now. P.S. I hope I have not lost you as a friend for anything I might have said.

cahjah75's picture
cahjah75
Posts: 2623
Joined: Jun 2010

I will keep you in my thoughts and prayers for continued progress in your treatment. Hope all goes well.
{{hugs}} Char

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Kylez
Posts: 3765
Joined: May 2009

Sending prayers, hugs and positive thoughts.

Hugs, Kylez

Rosiethomas1138
Posts: 1
Joined: Oct 2010

Hello there,

I live in the UK and have inflammatory breast cancer HER2 positive. This is a recurrence after 6 1/2 years.

WHen it recurred back last year I was put on Taxotere which got rid of some spots on my lung. They tehn put me on to Xeloda for a few months thinking it was going to keep me stable but unfortunately it didn't and now I have spots on both lungs, liver and lymph node. So now I am on Navelbine which apparently is having good results. I have had five doses so far - one dose each week for two weeks and then a week off. I am having a CT scan on 18th November to see if it is kicking these cancer cells into touch.

I am usually unwell on the day I take the Navelbine (it is in tablet form) which lats about 8 hours. I feel nauseous, although no sickness, and very tired and I suppose as if I have a dose of flu.

If there is anything else you would like to know about it or if I can be of help, please contact me on my e mail address Rosiethomas1138@aol.com as I find these discussion boards very difficult to find the messages. Hence taking so long to write to you.

All the very best.

Sandra Thomas

skipper85's picture
skipper85
Posts: 231
Joined: Sep 2010

There are so many new drugs out there to help you. Apparently you've got part of the right combo. It is just trial and error to see what combination will kick the cancer's butt.

Hang in there. Don't give up. Be positive. Be the warrior you are.

(((Hugs))) & Prayers

Skipper85

Lighthouse_7's picture
Lighthouse_7
Posts: 1566
Joined: Jan 2010

Dear Marsha,
You're in my thoughts and prayers. Stay strong my friend.
Hugs,
Wanda

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Thinking of you and sending more prayers.

Leeza

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Did I miss an update Marsha? How are you doing?

Marsha Mulvey
Posts: 597
Joined: May 2010

You didn't miss an update Alexis. So, here it is. Today was my 4th week of treatments with Navelbine along with Herceptin. It appears as though the tumors in my breast are shrinking again - YEAH! They grew so rapidly that it was scary! Now I have some peace of mind and am feeling good physically too! Last weekend was a little different as on Sunday I felt like I had been hit by a Mack truck. That Friday was the first time I had Zometa with Navelbine and it was probably the combination that caused it. Thanks again for asking and thanks to everyone for all the positive thoughts and prayers - please don't stop! God bless us all.
Marsha

waffle8
Posts: 232
Joined: Mar 2010

Glad to hear your tumors are shrinking....keeping you in my prayers...

carkris's picture
carkris
Posts: 4513
Joined: Aug 2009

so glad the Navelbine is kicking cancer butt. Will it be better the next time you receive the two together or are they going to split it up? Sending positive thoughts and prayers.

Mama G
Posts: 764
Joined: Nov 2009

Dear Lord, please protect and help ALL of us fight this battle and WIN!!!! Amen.

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