Oct 21, 2010 - 11:44 am
Hi, My name is jerri and I have been treated at local hospitals and have had 5 metastases.I have had 5 surgeries, much chemo, radiation and brachytherapy. I am just now doing adriamyacin and ifofsimide after my 5th surgery 2 months ago. I have another tumor growing in same spot as they just took off, from my ct we just did. I have one more round of chemo (4 day continuous infusion).If tumor is still there after this next round and lesions on thyroid and atrophied pancreas like thgis last scan showed, I think I need to find a better hospital/dr.
Through 5 years of this now, I have found that medical science just isn't there with cancer, let alone hi gr. spindle celled adenosarcoma W/ sacromatous overgrowth. Does anyone know of a facility that might have some knowledge on this cancer? I am in Florida. Moffitt looks at me like I'm a freak. They have told me they have never seen an adenosarcoma so I might as well stay in Orlando, as they would do the same protocol. Surgery, chemo, radiation. I saw Dr. D'Amato and a Dr. Apte, and Dr. Wynam. They all look so baffled and scared. I'm not sure there is anyone who knows what to do.