Oct 18, 2010 - 2:58 pm
I'm new here, and it's my mom that has Stage IV TN. She was originally diagnosed in October 08 with stage 2a TN, had a lumpectomy with sentinel node disection (all nodes were clear), went through 4 rounds of chemo (Cytoxin and Taxotere) and 33 rounds of radiation - after which she was good for almost a year and a half. This past June, she had a seizure, and come to find out, the cancer is back and had spread to her brain, lower spine at L4, soft tissue in the shoulder and lymph nodes in the chest. Talk about a shock! We knew that TN was more aggressive, but no one ever thinks that its going to come back, much less all over.
She's undergoing chemo now - Abraxene - and has had two treatments of Zometa for bone support. She had Avastin at first, but due to a surgery that she had to have, she's not able to take the Avastin any more. We're now at 8 chemos, with really no end in sight, however, the tumors are shrinking, which is fabulous news!
I definately need some success stories, or something that gives me hope that she can beat this. All you read on TN is the horror - I want to hear positive stories so I can share them with mom. You certainly don't hear of a lot about TN - no one I have encountered has ever heard of it.
My mom is 61 and I just turned 40. Neither one of us have been tested for the gene mutation - but of course I'm terrified that I'll be next. I've been able to read some of the posts here, and this sounds like a wonderful group of people who offer great support - I would be honored to partake of your knowledge and wisdom to help get me and my mom through this tough time.
Thanks so much!