Oct 14, 2010 - 7:14 pm
Let me give a little background. 13 years ago I was treated for tonsil cancer, standard chemo and radiation. I suffered all the symptoms that I see here and after time I got used to the dry mouth and the constant need for water. About two 1/2 years ago my chin became totally numb. I went to a neurologist and he said I'd probably had a TIA, put me on asprin and started watching blood pressure more closely. Last year I had to have a spur removed from my shoulder which required anesthesia and the passing of a tube down my throat. Shortly after that my voice suddenly became very raspy, I attributed it to the anesthesia. I went to a local ENT and he told me I had a paralyzed left vocal cord but offered no explanation or treatment. I failed to mention that all this time I am having more difficulty swallowing and lost a significant amount of weight. My GP Dr scheduled me to go to UAB in Birmingham where they ran all sorts of tests (all that did was show me how to hold my head when swallowing to get maximum swallowing capability - looks dumb but did help). I had a peg inserted and all was going as well as could be expected. Two weeks ago I mentioned that I was getting numbness in my lower right neck area and a tingling in the lower lobe of my right ear. While I wasn't all that concerned about it the Dr was. He hdd told me earlier that the numbness in my chan and the lost vocal cord was a side affect of the radiation, one that normally shows up around the seven year point if it is going to happen. He is also certain that the tingling is being caused by scar tissue on the trigeminal nerve (or a tumor)not the results of a TIA and he scheduled me for an MRI which I had done this past Friday.
Now the good news - bad news. Good news is there is no tumor or scar tissue. The frustrating news is that once again I don't know what is causing this. I was totally prepared for the affects of nerve damage (which is not pleasant) and now I'm back to wondering and not knowing. The tingling in my neck is becoming more constant and just this past weekend the end of my tongue started getting numb (Dr doesn't know this yet)
Any past experience, thoughts or recommendations appreciated. I'll be going back to see the Dr next week if they can get me on his cal;endar.
Sorry for the long post but it really depressed me and thought I'd ask.