Oct 14, 2010 - 12:41 pm
Hello to everyone. My wife after three neck surgeries(laryngipharynx & others (see my profile).Today we were told that surgery didnt remove all the tumor in the last surgery.ie Biopsy +ve for secondary tumor.
They are now recommending Radiation against all previous recommendations, (Four of nine Fanconi Anaemia patients didnt survive the RT itself.Chemo is considered too toxic) I know you did sweetblood !Thank Gd!!!! .
It will be left side of neck and aesophog area(which in my wifes case is close to her stomache as she had a gastric pullup after aesophogectomy removal). The Onco approach would be to do the side of the tumor and aesophog area only. Even if RAD does work there it wont cut out high probab of additional primary tumors(something characteristic of FA)
Previousely she was on Erbitux only which she stopped owing to severity and two months later a three week acceleration to 3.5 cm tumor. It is uncertain as to weather Erbitux helped or not.I cannot express how fearful we are.
On sunday we are meeting the Onco.
1-What questions should we ask next week re RAD treatment.
I would be indebted for your responses. I dont have much of a support circle.