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Round 3 in the bag!

allmost60's picture
allmost60
Posts: 3173
Joined: Jul 2010

Hi all,
Home from chemo and all went fine. Got to the clinic at 9 and was home by 4. Met my new doctor and he seems ok...I need a little more time with him than 1/2 hour to give a solid opinion yet. They cut my benedryl down from 50 mg to 25 which eliminated the restless leg, and still didn't have any adverse reactions from getting a smaller dose. Works for me! They took blood again this morning and all of counts had gone back up from Friday's lab report. Don't have a clue why, but just happy they were good enough for chemo to be given. So...now if I can get through the next 4days of "you know what"...I'll be good to go again. Hyper Sue will back until Sunday folks!...ha!..Love Sue (FNHL-2-3A-6/10)

Grade of Lymphoma...
For Leslie...The web site is Lymphomation.org Under the Topics: Click on Grading and Cell Type. Also check out the info under Related Topics: click on GRADES. Hope this helps.
Love...Sue..(FNHL-2-3A-6/10)

Good luck to everyone getting tests done, tests results back or treatments this week! Please check in when you feel up to it..Thinking good positive happy thoughts for all of you. Lot's of prayers also!!...Love to all, Sue

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Sue,
CONGRATULATIONS!!!!! If you are anything like me you should be ok after #3 with the usual up and down days. It really started to hit me after round #4. I started with more down days than up ones. Round #5 was a real knock downer. Round #6 was Whew!!!! I guess the body could only take so much before it all started to catch up. You are almost 1/2 way there. Doesn't things go fast when we are having so much fun? John

miss maggie
Posts: 929
Joined: Mar 2010

Hi Sue,

So glad everything went well with your treatment. I am also making a note of the site you included in your post to leslie.

Maggie I have no idea how to shorten my DX. Marginal, low grade, stage 1,Lymphoma of the small bowel.

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

Set them up and knock em down Sue! Vinny

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Amazing how we get used to being poisoned. LOL.

So glad #3 went well, and 1/2 done! Woo Hoo!!

Take care,
Beth

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Hi allmost 60. I am so glad all went well tyesterday for you. I had my rituxin maintance 5th round given every 12 weeks today. Diagnosed NFL IN Jan 2009 and have been in remission since June 2009. I am having a PET scan on the 21st of Oct. Haven't had one in 14 months. I feel good and my exams and blood is good. My doctor is 38 and HOT. I asked the nurse what is the next stage up. from being a cougar(You know older woman thinks a Dr is good looking). She said the next stage is SICK. My husband and I laughed. I'm 63. God bless you and I hope things keep going well along your journey. God is good.

allmost60's picture
allmost60
Posts: 3173
Joined: Jul 2010

Hi Joanie,
Thanks for the laugh...my new doctor is definetely "NOT" a hottie! I have a good friend who is "sort of" a cougar..she's 65 and been single for the last 12 years. She's been known to date a few guys wayyyyy younger than she is, but she doesn't go out "prowling" for guys. Live and let live!...ha! Yes...God is good indeed! Love..Sue (FHNL-2-3A-6/10)

yesyes2
Posts: 462
Joined: Jul 2009

Thanks for the laugh Joanie. I have to say I have one doctor who is very young and very very good to look at. Also very kind and caring and intelligent. All the nurses are gaga overy him and he is completely unaware. My husband is aware of my crush and we have had several ha ha over it. But man is he a hotie!!!!

Now I can't sleep, LOL.
Leslie

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Mine is pretty nice too, and he gives WONDERFUL hugs LOL. At least when I go get felt up he's pleasing to the eye haha!

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

LOL!!!!!!!!!

allmost60's picture
allmost60
Posts: 3173
Joined: Jul 2010

Hi Beth,
It would be an "all day job" for a doctor trying to feel me up...it would take that long just trying to find them...ha!ha!ha! My youngest son damn near starved to death when I breast fed him!! Your too funny Beth!...Love...Sue

allmost60's picture
allmost60
Posts: 3173
Joined: Jul 2010

How do we go from a 3rd round of chemo post to hottie doctors, cougars and getting felt up....We arn't all on the pred are we?...ha! I have an excuse..ha!ha!ha!...Sue

truckingalong
Posts: 444
Joined: Aug 2010

LOL!! I got one hottie doctor but unfortunately he is not an oncologist.... You are all so funny!! I will be thinking of your stories and jokes when I get my chemo this Tues. I need that! AND I am not going to be on the pred. Ha ha.

Liz

allmost60's picture
allmost60
Posts: 3173
Joined: Jul 2010

Hi Liz,
Good luck tomorrow with your chemo. Sure wish we didn't have to take the pred with our treatments...makes all of us a little goofy! I will keep you in my prayers and hope this week goes really fast for you. The pred week seems to go so slow for me even though my mind races 100 miles an hour.UGH! Check in when you feel up to it and let us know how your doing.
Love...Sue (FNHL-2-3A-6/10)

truckingalong
Posts: 444
Joined: Aug 2010

Sue,

I am on chemo right now resting. Little out of it but not too bad. This center is out of one of the meds - the Bleomythycin so after I am done with AVD I have to go to another town to get the Bleomythycin because all over the country the manufacturer is having problem producing it for some reason but hopefully will have enough in few weeks. Luckily, they have it for me today!!

Gotta go now!

Liz

allmost60's picture
allmost60
Posts: 3173
Joined: Jul 2010

Hi liz,
That seems absolutely crazy that your cancer clinic would be out of the medicine you need. I would think instead of making the patient drive to another town to get the medicine the clinic would have had the forethought to have it sent to them "BEFORE" your appointment. We can put men on the moon and get information in a nano second, but a cancer clinic can't keep enough medicine on hand.....C-R-A-Z-Y!!! Just my humble opinion... I'll keep you in my prayers for a good evening after treatment! Love...Sue (FNHl-2-3A-6/10)

truckingalong
Posts: 444
Joined: Aug 2010

Got the Bleomythcin just in time before it ran out. Now having tummy bloating and some aches. Seems more like that in last 2 tx. AND gained 2 pounds. Don't know what that means but it is good for me to gain weight as I have been 102 - now 104 (used to be 128). I don't expect to gain much till after the treatments.

7 treatments to go - I feel like running a long "marathon". I have issue with my heart rate - it is always 97 beats per min. - will try to walk - have not walked much... the onc. ordered me to have EKG this Monday.. well, Mary is right - I gotta be gentle to myself and not do too much!!

Hugs,
Liz

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Sue and beth,
You are 2 wild and crazy guys,but I love it!!!! The humor and smiles will be the biggest help in getting thru this stuff. Just keep it comin'. John
(FNHL-1-4A-5/10)

miss maggie
Posts: 929
Joined: Mar 2010

Good morning Sue,

I am thrilled to read your day was especially good. Glad to hear your blood work went well.

I took advantage of the website you posted. Great site, thanks.

Prayers for continued good news. DX 09/09 stage 1, low grade, marginal B cell of the small bowel - Perhaps someone would post how to shorten DX, LOL

Maggie

allmost60's picture
allmost60
Posts: 3173
Joined: Jul 2010

Maybe this would work Maggie...
M-Bcell-of SB-G1-S1-9/09...If anyone should get confused, then I'm sure they would just ask what it ment. Maybe someone else has a better way and they can post. The next 16 days should be good for me now that I'm off the prednisone.."Yes"...hate that stuff!
Love...Sue (FNHL-2-3A-6/10)

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

Hey Sue,

Sorry I've been off board for quite a while. Lots of good news while I was gone. It was good to hear that you have done well on your third infusion. I think that I'm just one infusion ahead of you. I had my fourth last Thursday. Wow, what a difference. I started getting hit before I even got off the chair. Most of my problems have been related to tiredness, neuropathy and coughing. (They think that the coughing is due to tumor activity in and around the pleural? cavity.) Up till now I start feeling these side effects a day or two after infusion - but this time they all started hitting before I even left the center. Tonight is my first night without the pred, and frankly, I'm not looking forward to it. I think the pred really helps keep some of these things at bay, and they are hitting hard this time.

BUT, I am not sick (as I define it), so all is actually well. I did have some nausea this morning while waiting to get a pneumonia shot, but I went ahead and took a med for it and didn't have any more trouble. So, that is the important thing for me.

How about a suggestion on how to write my dx. I don't even know all of the details of it yet, but most of it is: diffuse, large, B-Cell NHL, stage 4; July 2010. I'll try to get the rest of the details tomorrow when I can get into my account at Anderson. But give me a suggestion for a rational abbreviation if you can.
Thanks,
Tom

allmost60's picture
allmost60
Posts: 3173
Joined: Jul 2010

Hi Tom....Maybe this would work..
NHL-DLBcell-S4-7/10...I don't know..it's up to you really. Maggie suggested we write our cancer info to help folks remember what type of cancer each of us has. It's totally a voluntary thing. I read your other thread before this one and it makes me sad to hear you feeling so frustrated. However..I "really" do understand where your thinking is at though. Yesterday I told Steve I wouldn't blame him a bit if he wanted to leave me. He looked at me like I was totally nuts! I told him it wasn't fair to him to be stuck with me being not the same woman he married. I've always been very energetic and healthy, and now he's stuck with this woman thats constantly going to a cancer clinic for God knows how many more years to come. I feel like I've ruined our dreams of getting our little log home down on the river and it just seems so sad for him. I told him he deserves someone thats whole and able to enjoy fun filled fishing days with him. This has been a much tougher week for me for some reason..I'm not re-bounding as quick as before after stopping the pred. I felt awful yesterday, better today, but knowticed some sudden fatigue off and on after hardly doing anything today. Maybe thats why I got so darn emotional yesterday. Needless to say...Steve told me he wasn't going anywhere that didn't include me by his side and said we were in this together no matter what. I'm not a moody unsure kind of person, so I'm praying this is just a bad week and those kind of thoughts will not linger in my head. Funny how you are having emotional thinking also and we are close to same amount of rounds. Must be a midway crisis type thing..ya think? Sure is out of charachter for me...Take care and I'll keep good positive thoughts and prayers for you and all of us! Sue...(FNHL-2-3A-6/10)

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

Hi Sue,

Thanks for your your usual encouraging comments. Do you ever sleep? It shows that you wrote your comments at 2:24 AM!!
I was sorry to hear that you were having such a bad time yourself. You know, I think that much of that could be related to the pred. But how have you been today? I hope that it has gone better. I don't know how long you've been married, but I KNOW that Steve only wants to help you in every way that he can. I hope he helped you today. You are as "whole" as you've ever been - you just don't feel like it. THAT I can understand. And don't give up on your dreams.

Thanks for your help for my unwarranted self-indulgence yesterday.

Say hey to Steve for me. He and Connie are truly the best.

Tom (DLBCL,4a;7/10)

allmost60's picture
allmost60
Posts: 3173
Joined: Jul 2010

Hi Tom and Joanie,
I am much better today and made it through my CT scan just fine. I'm still unusually tired, but I'm just going to have to get use to it. Steve and I have been married for 32 years and he is just the best man a woman could have. We talked about how I'm feeling and he understands it's not him I'm up-set with, it's just this crumby run down feeling and not being able to be my old perky self. He told me it's ok if I don't feel like doing anything...he expects it, and has no problem with it. He also said it's his turn to take care of me and he'd appreciate it if I'd just chill out and let him do it...ha! Felt good to talk everything out...eliminated that 800lb gorilla thats been hanging around the house for the last 4 months. Anyways...onward and upward folks..better days lay ahead. Thanks for the support during a down period!
Love...Sue (FNHL-2-3A-6/10)

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Sue, You sound like you are saying things that I did when I was on chemo. I have been married 40 years and I told my husband I was not what he needed etc. He had been warned by my sister-in-law that the chemo would make me cry and not feel worthy of his love. He loved me through it all as I am sure your husband will. Cancer does not define you. We would love our husbands just as much if the roles were reversed. Take care and know this will pass. God will get you through this. Remember HIS strength not yours.

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