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side effects from radiatiaon after being a survivor 10 year

sly
Posts: 3
Joined: Feb 2009

i am a cancer survivor of neck and throat cancer. I had a tumor removed from my neck in 2000. I had 37 radiation treatments. I had a feeding tube for three months til I could swallow again. I went back to work as a nurse with this feeding tube. I lost and regained taste. I have permanent dry mouth. Now after 10 years i still have so many side effects----but i am alive. I am a nurse and my favorite paients are ca patients. I know the pain and anquish that cancer brings--but i do know that you do not give up. Thats the only waay I made it this long.

Hondo's picture
Hondo
Posts: 6215
Joined: Apr 2009

I am 9 years from the first treatment and 5 years from the second, like you said I am still here and life is still good.

Thanks for posting and welcome to CSN

abbimom's picture
abbimom
Posts: 82
Joined: Sep 2010

I am also 10 years post treatment. I was diagnosed with stage IV tongue cancer when I was 21. I'm also having problems right now with my throat and my teeth from radiation side effects. I complain but I know I'm lucky to be here. Best luck to you!
Linda

D Lewis's picture
D Lewis
Posts: 1564
Joined: Jan 2010

So very happy to hear from all of you! I look forward to being a long-term survivor, myself!

In fact, some time ago I posted about planning to be a very very old woman with a really bad temper, and that is STILL my plan.

Deb

forme's picture
forme
Posts: 1161
Joined: Aug 2010

Hi Deb,
I like your plan. Sounds a lot like mine.
First cancer in 77, second in 96 and third and forth in 2010.
Three daughters and three grandkids during that time span....
Still surviving
Lisha

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

of survival and living life. This cancer in our lives (me and Mark) has been a nasty thing...but I must admit there is a tremendous amount that we have gained. One thing for me is a restored HOPE. I had lost hope in a lot of things. Your stories remind me that all things are possible...that is HOPE.
Thank you,
Kim

fisrpotpe's picture
fisrpotpe
Posts: 1345
Joined: Aug 2010

Lisha, that is amazing 33 years... that is wonderful.

John

Hondo's picture
Hondo
Posts: 6215
Joined: Apr 2009

That is remarkable that you have been and still are a survivor all these years, All the best to you

Pam M's picture
Pam M
Posts: 2193
Joined: Nov 2009

Sly,
Sounds like your cancer patients are lucky to have you. Sorry you can relate to them, but glad they have a pro who can relate. Always glad, of course, to see "old timers" post here. Us "younguns" can benefit from your experience.

fisrpotpe's picture
fisrpotpe
Posts: 1345
Joined: Aug 2010

All those fighting the fight are so grateful to have you with them on their long journey into survivorship life.

Congrats on 10 years! Looking forward to seeing your post at 20 years.

John

Pat in SC
Posts: 5
Joined: Oct 2010

I'm now out 15 years and considered cured from cancer of the tonsil. I also had radiation. My treatment was with the University of Md. They saved my life. I had an expermental treatment in that they did radiation first followed by a modified neck desection. I moved to SC two years after and we opened a business which were our plans before I was diagnosit. Tomorrow I start Hyperbaric Oxygen treatments due to the fact that the condition of my lower teeth has now reached the stage that needs care. I also have the usual side affects and have learned to tolerate them. Please take care of your teeth.

fisrpotpe's picture
fisrpotpe
Posts: 1345
Joined: Aug 2010

Pat
I will anxious to hear how your HBO treatments go. I had two teeth pulled back in early may, and the bone is barely covered over with skin. I will be 15 years in Jan. Teeth are extremely poor/bad, dry mouth, no taste, trach two years ago from scar tissue damage.

After HBO two years ago my first show of cancer was 5 months later on my tongue. The only option is/was surgery. Please make sure they watch very closely for many months after.

Congrats on your 15 years. My doctor's do not ever feel your cured, they say they just can not find it and keep having fun. I look forward to middle Jan. and hitting 15 years.

I have a paralyzed left vocal cord with extremely horse/raspy and sometimes missing voice. How is yours?

John

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

January 2011 be my first year out past chemo and radiation, still fatigue, depressed yes, eat like HORSE, no weight gain, I relive a year ago, of doctors, i feel better at times, but find it hard to go everyday, reading your storys have shed how lucky i am, not a great voice, but can vocalize, i still have hope, Why where we chosen? I force myself to work, come home and drag myself out of the car to get to the bed. sounds pitfiul doesn't it...I'm honest, thanks John and everyone for sharing you stories. Dennis P.S..they say I'm still out...am I waiting for more to happen, or is this it?

fisrpotpe's picture
fisrpotpe
Posts: 1345
Joined: Aug 2010

Dennis,
If I was to ask you is it better than when you finished treatments you would say yes. You and all of us survivor's from head and neck cancer have extremely long recovery's. Mine took almost two years to feel comfortable with my new normal yes you have a new normal to look forward too.
Short answer Dennis is yes it will get better and along the road you will hit road bumps that your will look at and say "What?" then say "So What!' and finally say " Now What?". Knowing what you have been through there is not much you can not handle.

God is great and he is there for all of us.

John

sportsman
Posts: 97
Joined: Feb 2010

I am going on four years now as a survivor of pharyngeal cancer. Radical neck dissection with thirty five radiation treatments and chemo once a week for seven weeks. Almost every day is a new struggle but I keep up the hope and faith that the days will get better. I have as many of you do, burned up saliva glands, a burned up thyroid and other side effects from my treatment. I have problems with my teeth, severe swallowing problems (have now been dilated five times), do not sleep well because of dry mouth, problems with my speech at times and other side effects. Bottom line is that I am still alive and able to enjoy my family and friends. I must admit that sometimes I dwell on all the problems I have but I find if I can put this aside that the days are not all that terrible. My advice to everyone who is just starting this journey, after your treatment has ended is to stay busy and don't focus on how you were BC, just focus how you are going to handle life AC. God's word tells me that the pain and suffering I have on this earth is only temporal and the day I meet him this will be the day all this is gone. God Bless everyone on this site and everyone suffering from this dreadful disease.

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