COMING HOME

marines911
marines911 Member Posts: 68
edited March 2014 in Breast Cancer #1
My wife will be coming home tomorrow, and we decided on hospice. Unfortunately Lesley's mental status is poor, so I had to make the decision based on what the ONC and RAD ONC recommended. Any treatment at this point would only create more suffering and would not extend her life much further. There was in fact 3 spots on the brain 1cm or larger, cancer in the spinal cord and the spot on the liver has increased as well. I did explain the situation with Lesley, but she was in and out of consciencous and I don't think she understood me, but I tried and tried. I really wanted to do treatment, but knew that would be selfish of me and to put her through anymore pain is not fair to her.

I really appreciate all the advice and I only wish I had the courage to discuss this matter with her earlier. I don't know what I'm going to say to my girls or my boys that their mommy is dying and that she will probably not make it more than a month.

I will keep everyone posted and THANK YOU all for your prayers, love and support.

Thomas
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Comments

  • Marsha Mulvey
    Marsha Mulvey Member Posts: 597 Member
    so very sorry
    Thomas, I am so very sorry that you and your family are having to endure this suffering. Often times it is the caregiver who has to make the hardest decisions and this fell into your LOVING hands. Lesley seems like a lovely lady and I'm happy you had each other in your lives. Prayers will continue for Lesley, you, and your children. God bless us all.
    Marsha
  • Alexis F
    Alexis F Member Posts: 3,598
    What has happened to you and
    What has happened to you and your family just breaks my heart Thomas. Explaining to your children will be hard, but, you can do it. I don't know their ages, but, I am sure they will be sad and upset, but, it will also give them time, hopefully, to tell their Mom anything that they want her to know.

    I will continue to pray for Lesley and know that I am supporting you and will help in anyway that I can.

    Take care of yourself too,


    Lex
  • heidijez
    heidijez Member Posts: 441
    i feel so sad reading your post. . .
    thomas, there are no words. . .just know that you and lesley and your family are being showered with tons of prayers and love. heidi
  • ladyg
    ladyg Member Posts: 1,577
    I am so sorry
    for all of you. I am sure that your wife knows how lucky she is to have you by her side. Explaining to the children will not be easy but the fact that will have you to lean on will be a great comfort to them. And I think they will be a great comfort to you as well. You, your wife and your children will be in my thoughts daily.

    Hugs
    Georgia
  • Aortus
    Aortus Member Posts: 967
    You've done everything right
    You've also done everything you could do. You did your best to explain the situation to Lesley, and no matter how it hurt you to make this decision, I really believe it is the best of the choices available to you (all of which were awful). We pray that Lesley stays as comfortable as possible during this time, and that you and the children can be there not only for her, but for each other. And again, Thomas, I really do believe that you have done absolutely everything absolutely right.

    Joe
  • Megan M
    Megan M Member Posts: 3,000
    Aortus said:

    You've done everything right
    You've also done everything you could do. You did your best to explain the situation to Lesley, and no matter how it hurt you to make this decision, I really believe it is the best of the choices available to you (all of which were awful). We pray that Lesley stays as comfortable as possible during this time, and that you and the children can be there not only for her, but for each other. And again, Thomas, I really do believe that you have done absolutely everything absolutely right.

    Joe

    I am so sorry too. And once
    I am so sorry too. And once again, Aortus is right. You have done everything you could and you did it right. My prayers for you and your family. Please keep us updated Thomas.

    Hugs, Megan
  • tambow
    tambow Member Posts: 42
    Thomas
    So sorry to hear this.
    My thoughts and prayers are with your family.
    Peace be with you.
  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    Thomas I am so very sorry.
    Lesley's, life being cut short seems so unfair. Telling your children will be hard. but at least they do have time to say goodbye and talk to Mom. My heart breaks for you and your kids. You all remain in my prayers everyday. Stay strong Thomas, I know it's hard. We are all with you. Thank you for including us Kay,
  • fauxma
    fauxma Member Posts: 3,577 Member
    Thomas,
    My heart just breaks

    Thomas,
    My heart just breaks for you and your children. I am sitting here reduced to tears. You cannot beat yourself up for any should have, could haves. As for discussing this early, how does anyone ever know when it is time to talk about that part of this disease? You have done everything that you could to be by her side, to help her in these decisions, and to ease her through this journey. Now is the time to be by her side and with your children and help them through this as a family. You have nothing but my greatest admiration. I think you epitomize the good husband. My love, prayers, and gentle thoughts are with you all.
    Stef
  • MomMichelle
    MomMichelle Member Posts: 93
    Prayers, hugs and love
    Thomas,
    Please know that you will be in our thoughts and prayers as well. The decisions you have had to make are very difficult and I do believe you have done everything in your power to make the best decisions for your wife. She is lucky to have you as I am sure you have felt blessed to have her in your life as well. Come here when you need someone to listen and know that we are with you.
    Michelle
  • shy violet
    shy violet Member Posts: 167
    Thomas, This is beyond sad.
    Thomas, This is beyond sad. It is going to be very important now to be sure you get the support that you yourself will need. You have been solid for your wife and children, and have been through so much. I hope that you will find comfort from the wonderful people at hospice. God bless, shy
  • pinkkari09
    pinkkari09 Member Posts: 877
    Thomas, I'm so sorry, you
    Thomas, I'm so sorry, you and your family are in my prayers. When I had to put my Mom in hospice it broke my heart, knowing it was the end of the road for her was devastating. I can only imagine what you are going through and it has got to be the most difficult time in your life but you can rest assured hospice is very good at what they do and your wife will be comfortable and out of pain. I pray that you find the strength to talk to your kids and that you as a family lean on each other through the toughest time in your lives. You are such an amazing husband and your wife is blessed to have you!! Stay strong and keep coming here, the prayers for you and your family will be thousands.
    Big hugs,
    Kari
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    I am so so sorry. You are
    I am so so sorry. You are an amazing husband. If it is consolation, you are doing exactly what I would want you to do. Hospice is a blessed thing to have and I would much rather be home (if possible).
  • Heatherbelle
    Heatherbelle Member Posts: 1,226 Member
    Thomas,
    Blessings to you,

    Thomas,
    Blessings to you, and praying that you get the courage and stretngh to discuss this with your children. My husband and I have first hand experience on dealing with cancer and young kids. I know there are no words to console you, but I had seen a post somewhere earlier about the angels that are hospic nurses -i know from experience on caring for my grandma along with hospice nurses when we had brought her home from the hospital (not from BC, but my parents & i did have hospice education & training from the nurses who would also be coming in to care for her).
    My heart literally aches for you and your family. I could go off on the unfairness of all this...I hope that you have a good support system of friends and family for yourself, Thomas, with everything you're going through taking care of your wife..i cannot imagine the toll it's taking on you. I'm praying that you have the strength to keep going on for your children's sake Thomas, and that you have love & support for yourself to deal with this, that your wife & family are surrounded in angels and love and comfort.
    *hugs and hugs*
    heather
  • chenheart
    chenheart Member Posts: 5,159
    There truly isn't much any
    There truly isn't much any of us can say at this point...I do hope you can feel the love and sorrow and yes, even thankfulness that you are the man, husband and father you obviously are. There is not one of us here on the boards who hasn't become emotionally attached to you and Lesley and the decisions you now have had to make. Our hearts remain with you and the children as you bring your darling wife home.

    Hugs,
    Claudia
  • cavediver
    cavediver Member Posts: 607
    so sorry
    My heart is heavy for you and your family....no words can express. Be strongl and my prayers are with all of you
  • RE
    RE Member Posts: 4,591 Member
    Thomas you are a good and
    Thomas you are a good and loving husband and father, I am sure you will find the wisdom needed to help your children through this. I am deeply sorry that Lesley is in such a state, my heart goes out to you and yours! You will all continue to be in my prayers! Please give your lovely Lesley a gentle hug from all of us.

    (¯`•.•´¯) (¯`•.•´¯)
    *`•.¸(¯`•.•´¯)¸.•´ ♥
    ☆ º ♥ `•.¸.•´ ♥ º ☆.¸¸.•´¯`♥RE
  • New Flower
    New Flower Member Posts: 4,294
    RE said:

    Thomas you are a good and
    Thomas you are a good and loving husband and father, I am sure you will find the wisdom needed to help your children through this. I am deeply sorry that Lesley is in such a state, my heart goes out to you and yours! You will all continue to be in my prayers! Please give your lovely Lesley a gentle hug from all of us.

    (¯`•.•´¯) (¯`•.•´¯)
    *`•.¸(¯`•.•´¯)¸.•´ ♥
    ☆ º ♥ `•.¸.•´ ♥ º ☆.¸¸.•´¯`♥RE

    Thomas my heart breaks
    it isa very sad news. You have done everything you could. I hope she will be in good care.
    You and children can visit her there.
    You and your family are in my thoughts and prayers.
    New Flower
  • 2Floridiansisters
    2Floridiansisters Member Posts: 384 Member
    I am so sorry.
    Life is so unfair. Your family will be in my prayers.
  • Miss Murphy
    Miss Murphy Member Posts: 302
    Eloquent
    Thomas, everyone on this board is always so eloquent. My own thoughts echo all the previous posts. I will only add that my experience with my mother with Hospice was a very positive one. They kept her very comfortable and they were supportive of her as well as my sister, brother and I. If I remember correctly, they have info available that would be able to help you tell your children and answer questions they may have.

    Your family is so very lucky to have you. Sally