CSN Login
Members Online: 17

Question: Remission - Ned

Dan620
Posts: 213
Joined: Dec 2009

Can some one tell me what the difference is between remission and Ned? Thanks Dan

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I would love to know what the difference is also. My doctors, both rad and med onc, will not say NED, they just tell me I am in remission. After my last scan I asked my doctor if what they were (or weren't) seeing meant that it was gone and his response was "you can think that...for now". The last time I saw my med onc he said I wouldn't need to see him again "until" the cancer came back. NONE of my doctors have ever led me to believe that I will ever be "cancer free" but I'm enjoying my life now, 1 year post treatment,and feel great.

A very dear friend of mine had his tonsils removed last year because of cancer and his doctors told him they were sure they would be able to cure him...last month he had his appendix removed (cancerous tumor) and now they are scheduling him for surgery to remove part of his colon - another cancerous tumor. If they meant they could cure him why is he getting cancer in other organs??? I'll take my remission over his cure any day.

Is NED just a term the doctors use or does it just mean the same as remission??

Great question Dan, hopefully someone will be able to explain it more clearly.

Stay well,
Glenna

don09's picture
don09
Posts: 61
Joined: Dec 2009

Medical term meaning No Evidence of disease.

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

Hi, Dan,
I think it all depends on who you talk to. Remission, to me, has the connotation of something that went away with radiation and chemo, but probably will come back, while NED sounds more like it's gone for a lengthier period of time (or may not come back at all), as in surgery with clean margins. Some doctors use the words interchangeably. Here's a thread on another cancer site where I asked the very same question ;)

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Thanks for the link, I read all the responses to your question and am still a little confused...nothing unusual - lol

I, like many others, took NED to mean cured and remission meant it was no longer growing and/or shrinking. As I said, none of my doctors have ever told me it was gone but I am now one year post treatment and feeling pretty good and I can accept that ;-)

I think the only smart thing for me to do is wait until my next scan and ask my doctor exactly what he means when he says I'm still in remission and why he won't say NED.

Thanks again for your help Deb, hope all is going well with you and that you are still feeling great.

Stay well,
Glenna

Dan620
Posts: 213
Joined: Dec 2009

Thanks Deb, It looks like there is no clear cut answer, but im happy to be in remission, last treatment August 2008. Onc. Dr. says ct-scans are to catch it WHEN it comes back (not if) also thanks for the link. ... Dan

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

Unfortunately, I've been cut off from that site because I spoke my mind too loudly about some alternative therapies, so I don't know how well I could recommend it ;-(

Skiffin16's picture
Skiffin16
Posts: 8053
Joined: Sep 2009

Didn't mean to post here....

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network