Oct 03, 2010 - 3:15 am
I am on my first treatments, and this really sucks. How can I be suffering from just one week under my belt? I am sitting her drooling down myself, my trache is a mess. The peg tube is very painful and leaking what appears to be alot more than it did last week. I went up 7 lbs, so I am wondering if that is the reason it hurts, can it get too tight? Can i try to move the band that holds it in place, just a bit to get some relief. I don't want to stop using the tube. I was not expecting any of this this soon. It can only go down from here real fast...that scares me.....It feels like my skin is burned undeer the trache? I cnnot see it and as I live alone, i cannot tell what is going on. Is all this normal for just one week? How are the rest of you doing this for so much longer???? This is just going to be really hard.....