Sep 29, 2010 - 3:16 pm
After meeting with the radiation oncologist yesterday it looks like I'm starting radiation and chemo the 11th of next month. I had just finished up 3 rounds of Cisplatin and Gemzar and had a clean PET scan at the end of August so I was hopeful that I might be done. But the protocol calls for the 35 rad and Cisplatin regimen now even though the scan was clean. I really felt like I did well through chemo; exercising every day, eating all organic, taking my supplements. I even gained 17 pounds. My side effects were fairly minimal except for some major blood clotting, mild nausea and of course heavy fatigue. The doc told me I won't go through the next round as smoothly so I'm prepping myself and my family for the worst but honestly believing that it won't be as bad as he says. I'm supposed to get the PEG in but my platelets are still too low so I'm really just waiting as always. The doc is setting me up with some Biotene but I've read about many other things that help with the radiation side effects on these boards. Any suggestions anyone has would be helpful as I can start getting those things together now while I have the time. I'm also interested in using a vegan/organic supplement for the PEG instead of the weird chemical concoction the nurse showed me yesterday. Does anyone know of a product like that or a way to make my own? It's nice to know you're all here while going through this. I have yet to find a better resource/support system. I'm a bit freaked about the radiation and the PEG but trying not to show my friends and family as they're already freaked. Somebody's got to be consistently calm and cool. Right? My best to all of you. I read about your lives and lift you up in prayer often.