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zinniemay's picture
zinniemay
Posts: 534
Joined: Mar 2009

I should have said
Greg Dx t4n2mo . He did the 7 weeks Radaition and Chemo Cisplatin, Then year later it was Metastic to both lungs, He is doing Carbosplatin, The first two rounds the tumors, one gone the other three shrink 30-40% this next two rounds nothing not bigger but not smaller. I am scared he is scared. We are in shock. What should we do? Think?

zinniemay's picture
zinniemay
Posts: 534
Joined: Mar 2009

Greg first dx was because of how big the tumor was and where it was that sugery was not offered. And As you know when the word cancer comes up you are not perpared or understanding what is going on, So they offer was Chemo and Radaition only , That went very well he could not talk only a course lost voice that hurt to speak. So We were glad for any help, Then Dec 09 they saw something on his lungs. and the rest is history!

zinniemay's picture
zinniemay
Posts: 534
Joined: Mar 2009

I know that you are going thru such a hard time. And for you to take time to help me you are so kind. My heart is with you and your family. I did hot think to ask if he was tested for that gene, I asked if he was tested for H.P.V. I was told since he did not drank or smoke all met bone of the systoms that this cancer would have , The assume he is positive for H.P.V.
Sherri If I could hug you I would in a heart beat. If I could help you anyway I would and will.

Jennie

sal314
Posts: 633
Joined: Jul 2010

Sorry things aren't going as planned. Seems a lot on this board have that happen. Not sure what to tell you, (my dad is going through the similar situation) you just have to keep trying new drugs if you can! As long as you can keep stable, like Sherri said, that's a good or in EC cases, GREAT!

I'll be praying for you and Greg.

Blessings,
Sally

zinniemay's picture
zinniemay
Posts: 534
Joined: Mar 2009

William See When the first time you wrote a post Was was like the others What the heck who does he think he is! How I turn you you for your and Loretta's wisdow in all these things I can not quit grasp and You have a way of lifting me up. When I see a cloud you give me the sun. I do not mean that in a godly way I mean as a wise person. Who has been down this road and speaks the truth. I seam now to know that you are the person I can turn to for answers you are meant to be here for people like me. I am sorry you even have to be here but I know that with out you so many of us would be lost in a dark sea of dispair.
THank you William and Loretta for you deep devotion to all of us. I have to run tell my husband!!!
Peace be with you both
Jennie

zinniemay's picture
zinniemay
Posts: 534
Joined: Mar 2009

William and all,
William When the first time you wrote a post. I was like the others what the heck, who does he think he is! Not understanding all that was going on. Now I turn you for your and Loretta's wisdom in all these things I can not quit grasp . You have a way of lifting me up. When I see a cloud you give me the sunshine. I do not mean that in a godly way I mean as a wise person. Who has been down this road and speaks the truth. I know that you are the person I can turn to for answers . You are meant to be here for people like me. I am sorry you even have to be here, but I know that with out you so many of us would be lost in a dark sea of dispair.
Thank you William and Loretta for you deep devotion to all of us. I have to run tell my husband!!!
Peace be with you both
Jennie

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Hello Jennie and Greg- As usual I am agreeing with William and Loretta! Definitely be jumping for joy that these tumors have shrunk and not grown any larger! It is just another bump in the road to this journey. I am thinking it is time to try a different type of chemo. A more aggressive one. Remember when life closes the door, God opens a window! God always keeps his promises. Rejoice in your good news, go to the drs. and ask about a different kind of chemo. Peace be with both of you. Keep in touch.
Tina

zinniemay's picture
zinniemay
Posts: 534
Joined: Mar 2009

That is what I am thinking that they will try a different type when he goes back, The 30th. I have been trying to read some reports on Erbitux and Taxotere but I am not sure what He is getting other than Caarbosplatin. So we will have to see. I am not jumping up and down but I am not beant over crying either. I am ttrying to learn and find as much as I can that will help Greg.
Thanks

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