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Recently diagnosed, need advice from survivors

thumper501's picture
thumper501
Posts: 2
Joined: Sep 2010

I was diagnosed with prostate cancer on August 7th, 2010 after going through a prostate biopsy. I'm 59, with recent biopsy results showing 1 of 12 positive, with 8% of the core tissue involved; Gleason of 3+3=6, previous PSA was 2.9 in Dec 2009, last PSA was 4.1 in June 2010, nothing on DRE, no family history with PC, Stage is T1c. General health is good, other than having to take Pravachol for cholesterol.
I have already met with an open surgery advocate (my urologist), a robotic surgery advocate (another urologist within the same practice); I am meeting with a specialist in (ProstRcision) brachytherapy (Radioactive iodine [I-125] prostate seed implant) along with IMRT radiation. I am also scheduled to meet with the Director, Uro-Oncology from major medical center here in Metro Atlanta to get another opinion on treatment options. So as you can see I am in the early stage of learning, understanding and exploring my treatment options. I want to ensure what ever is done is right for me, not just because it worked effectively on someone else or just because the numbers indicate a specific treatment option. I'm beginning to see that there is a lot to be considered, I've already spoken to several friends who had prostate cancer, were treated and doing fine but their cases were very different from mine, in fact much more severe situations. There are opinions, facts, suggestions, papers, clinical studies and more to read and understand when it comes to treating prostate cancer. A wealth of information to the point it can be more than you can effectively comprehend, I would just like to be able to sort it out for me. If anyone can provide any advice or suggestions let me know, especially if you were previously diagnosed in your 50's as I am, how are you doing today, what was the most effective treatment for you. I also understand that treatment therapies have changed and evolved too over the last 10 - 15 years and new ones are on the horizon. Being located in Metro Atlanta I have access to numerous medical resources, I am just trying to ensure I make the best and most effective medical decision with the help of my doctor that will work for me.

bdhilton
Posts: 759
Joined: Jan 2010

Thumper,

Yes you are right there are lots of choices including doing noting at all. I live in Atlanta and my Urologist sent me to Chicago to have Dr. William Catalona perform open surgery and this was the right choice for me…

At the end of the day when you make your decision make it based on what you truly believe is best for you and once you make that decision never doubt that you made the best decision you could for yourself. Most professionals you will see from my perspective are “snake oil salesmen” so it is your job to weed through it all…All treatment options have side effects and if anyone says anything else they are not being honest.

My oncologist urologist is out of St. Joe. Where is your’s out of?

The only thing I press with anyone are the two things you have 100% control over with fighting this beast and that is diet and exercise. If you are interested, I will give you my perspective in diet and exercise as well as how to goes through the decision process…Beware of folks that push their agenda as this is your fight…

Best to you in your journey-B

thumper501's picture
thumper501
Posts: 2
Joined: Sep 2010

Hello BD,
So far no one has tried to push me into anything, everyone has been quite informative and they understand that I'm an informed and educated patient when it comes to managing my prostate cancer, plus learning more every day. Right now Dr David Schmidt is my primary urologist/surgeon from Urology Associates in Marietta, I have a appointment scheduled with a oncologist urologist from Emory University Medical Center (they have requested my entire medical history, doctors notes, biopsy slides & prostate imaging slides), plus I have asked for a consult with doctor from RC Cancer Centers in Decatur, who can also give me a 2nd opinion on the prostate biopsy. Yes I am interested in your perspective in diet and exercise as well as how it goes through the decision process. I am also working with Dr Kevin Vinzani in East Cobb, he is my Chiropractor and is a resource on diet, nutrition, supplements, plus I get my monthly NMT massage treatments at his office. I am acutely aware of side effects on anything I consider, my eyes are wide open as is my mind. In the final outcome I hope by reaching out like this, learning more about the cancer, meeting with medical professionals and praying to God for his help and guidance that I will make the best decision for me.

Thumper

bdhilton
Posts: 759
Joined: Jan 2010

I live in east cobb… I for sure have opinions on Emory and RC. I would recommend Dr. William Nabors for a 2nd or 3rd opinion. He is one of the senior partners of Urology Specialist of Atlanta next to St Joe. He is also an oncologist.

Yes prayer is a great thing…If you want to talk send me an email at bdh@bdhilton.com

Peace

NM
Posts: 214
Joined: Jul 2009

Hi, I chose Davinci to get rid of my cancer. I am 53. Did i chose right.after 1 year no cancer no incontinence but also no erections. Its a tough choice and I am second guessing myself constantly.

Sorry there is no cure all. all treatments have trade offs. Please get a second opinion and realize whatever choice you make you alone have to live with the results. No one else does so research pray and whatever your decision enjoy your life as it is now.

Cancer is gone so far (1year clean psa) but well all choices have edges.

Sorry I did not endorse anything but I ask you to research pray and make your decision based on whats important to you and yours.

Nick age 53

alfmik50
Posts: 3
Joined: Sep 2010

Nick, did you opt for the radiation treatment? I am recently diagnosed with prostate cancer, I am 53, and was leaning toward the radiation and want to discuss it with people who have gone through it. Mike

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Thumper,

Welcome to the forum, and we’re sorry that you’ve joined our club but I’m confident you will receive much good advice and empathy from those who have traveled a similar road to the one you are just starting.

I too was diagnosed at 59 (last March) with a very similar pathology as yours. One of the things you will soon realize, if you haven’t already, is that despite having prostate cancer you are extremely fortunate to have discovered it very early while it is at a low risk stage giving you the advantage of choosing among a wide variety of treatment courses that promise to be very effective in defeating your cancer. Many men are not nearly as fortunate and are faced with much more difficult choices.

Like you, I met with an open surgery advocate (my urologist) and a robotic specialist who was a close colleague of my urologist. I also met with an oncologist with a prostate cancer specialty, and my GP who referred me to the urologist to begin with. All of these consultations recommended surgery although in the end I went in another direction. I also consulted with Loma Linda Medical Center in Southern California about proton treatment and met with two different SBRT specialists that used different methods to deliver very precise hypofractionated radiation to the prostate. I also did a phone consultation about active surveillance.

In addition to the consultations, I downloaded eight books on prostate cancer to my Kindle, bought three or four more hardbacks that weren’t available for download, and read dozens and dozens of studies and papers. I found that understanding the terminology in the papers was much easier after I had read the books about prostate cancer. I also found a medical dictionary and a Gray's Anatomy from a used book store to be useful when reading the studies and understanding the anatomy of the prostate and surrounding area.

After I felt I had gathered enough information to make an informed decision, I built a matrix where I compared each of the treatments on the basis of likely outcome, side effects, convenience, time to recovery, out of pocket expenses (like travel), and so forth. I then color coded the choices based on what was most important to me. Going through this process forced me to prioritize what was most important to me enbaling the decison process to be more focused and justifiable, at least from my point of view. In the end I ended up with two choices that were very similar all around and at that point I pretty much went on gut feel and what I was comfortable with. I was fortunate to have excellent medical coverage that would have handled any treatment course I chose to pursue.

For me, quality of life was the most important consideration, even over an eventual cure although that was the #2 item of importance. As I studied, I realized that just about any of the treatment methods offered a very high likelihood of success in my case and at that point it became a matter of choosing the procedure that minimized side effects on my lifestyle.

If you haven’t already done so, you will want to create a detailed medical file with all of your records, medications, medical history, notes from consultations and so forth. You may also want to consult some nomograms (available online at several sites) and calculate your PSA density, PSA velocity, and PSA doubling time…all of which can be useful in judging the potential efficacy of treatment in your particular case. Having your wife or significant other with you during consultations is also helpful to gather all the information which tends to come at you like a fire hose on solid stream.

Hope this helps. It sounds as if you have a handle on the process of sorting it all out and you have plenty of time to do the research you need and make an informed decision.

You will find lots of good advice in this forum from many well meaning men (and sometimes women) but at the end of the day you have to make your own choices based on your own priorities.

Good luck and keep us posted on how you progress.

=========================================
Age at Dx: 59. PSA @ Dx: 4.3 but dropped to 2.8 before treatment after eliminating dairy. 1 of 12 biopsy cores positive at 15% involvement. Gleason 3+3=6. DRE normal. No symptoms or history of PCa in family. Sage T1c.

Treatment: SBRT monotherapy using the CyberKnife system June 2010. Side effects at 2.5 months: None

steckley
Posts: 100
Joined: Aug 2009

Thumper,

Welcome and sorry you are here.

The others have given you good advise. I don't think it was mentioned, but you may want to consider getting a second opinion on your biopsy.

You asked about new procedures. It has been my impression that new procedures, and acceptance of the procedures, have been advancing at a rapid rate. I feel that since my RALP 1.5 years ago there has been great progress in AS, CyberKnife, and Protone. There is also cryo and all of the other indirect radiation techniques. HIFU in the States should be just around the corner. There are members of this forum who know alot about each of these techniques. If you ask for a specific I am sure you will get a good response.

You seemed to be interested in side effects. A video presentation titled "Sexual Problems in the Male Cancer Patient", concerning Erectile Dysfunction by Dr. John Mulhall of Memorial Sloan Kettering and author of the book "Saving Your Sex Life" may be of interest. It consists of 4 parts, total time of about an hour and a half.

www.mskcc.org/mskcc/html/94910.cfm

hopeful and opt...
Posts: 1364
Joined: Apr 2009

like the rest of us , we understand that you are going thru shock , depressive feeling which will go away in a few months......Believe it or not you are fortunate to have a early diagnosis, and you have time to make the best decision for you.

There are various support groups for prostate cancer that you can attend where you can gain a wealth of information and support....some support groups are better than others.

As previously mentioned it is a very good idea to get a second opinion on the pathology from your biopsy from another institution. Basically is is very difficult to determine the gleason levels, and there are a few institutions where there are experts who can do a more effective pathology analysis....this is very important for you in determining a treatment option.

There a test that is an excellent one, probably the most important test that I have taken..You can get this test a some of the major institutions where there is better MRI equipment, specifically a Tesla machine and skilled medical personnel.

The test indicates if there is any nodule involvement, if there is involvement in one or two lopes , wll show size of prostate, any evidence of extracapular extension, will stage your disease

This test is an MRI scan for prostate cancer that is done with a special coil in the rectum. This are certain major hospitals that have a Tesla magnet. There is a 1.5 Tesla magnet, the effective resolution is limited to tumors 0.5cc or larger. There is also a 3 Tesla machine which may have a bit finer resolution.

The most effective MRI for the prostate is called a MRSI (MRI/MRS) and includes the ability to identify cancer metabolites using spectographic analysis.....Basically using the spectoscopy with the MRI provides more accurate results, both the MRI and the spectroscopy are done at the same time.

The MRI is generally covered by insurance, however the spectroscopy is considered investigational and is not covered by medicare which I use.

Ira
Active Surveillance, diagnosed age 66

buzzz
Posts: 26
Joined: Aug 2010

There is another choice to be made, but it comes at a $$ cost, because it is not FDA approved in the USA as of yet. It is approved in every other country, and is standard care in France, Italy, and others. It should be FDA approved in the USA soon, a year, I hear, so in your case you could possibly wait. Cost is $25,000. and you must travel to Burmuda or the Bahamas for treatment (insurance rarely pays). An American doctor also travels to meet you, along with his staff of nurses, anesthiesologist and a mechanic for the machine. You get treatment at a great hospital, they put you asleep and the procedure takes just two hours. If you google HIFU you will find lots of stories in newspapers, Nightline had a show on it and wikipedia has a write up, plus much more. There is a business that books us, International HIFU, very caring, very professional. I am extremely glad that I scraped up the money because it was painfree and no side effects. Happy to help if you have any questions.

bdhilton
Posts: 759
Joined: Jan 2010

International HIFU was created by one of the manufactures of the equipment …Please

buzzz
Posts: 26
Joined: Aug 2010

It didn’t matter to me who owns what, but I looked it up and it appears that Misonix, who makes the Sonablate HIFU machine, sold distribution rights to US Hifu. Here’s a story I found to make it clear:

By HospiMedica International staff writers
Posted on 07 Jun 2010
Misonix Inc. (MSON; Farmingdale, NY, USA), a leading developer, manufacturer, and marketer of ultrasonic surgical devices, has agreed to sell its “Focus Surgery” related assets plus its European distribution rights to US HIFU LLC (Charlotte, N.C., USA), a privately held healthcare company focused on treating primary and recurrent prostate cancer using HIFU, for US$5.8 million.

The transaction entitles US HIFU with rights to acquire Sonatherm 600, a laparoscopic HIFU system used in the ablation of certain soft tissues. Furthermore, US HIFU will hold distribution rights for Misonix’s SB500 console, with Misonix retaining intellectual property rights to the three HIFU patents, which were acquired from ProRhythm in June 2009.

The agreement allows Misonix to focus on minimizing additional operating costs and in developing its own proprietary medical devices such as the HIFU transducers and lens technology. Misonix’s President and CEO, Michael A. McManus, Jr. commented on the deal “Going forward, we will be a dedicated ultrasonic surgical device company developing, manufacturing and selling only devices we own outright."

The acquisition of the Sonatherm 600 is a major step for US HIFU; this being the company’s first significant device, which has received the mandatory US Food and Drug Administration (FDA; Atlanta, GA, USA), clearance, for commercialization in the United States. Sonatherm is a high intensity focused ultrasound (HIFU) treatment of soft tissue, developed by Misonix after it acquired worldwide rights for the product from Focus Surgery, Inc. in July 2008.

The addition of Sonablate HIFU (a minimally invasive medical device used for the treatment of prostate cancer) will add momentum to the US HIFU’s plans for a Pan European initiative to showcase the enhanced efficacy of Sonablate HIFU. This device, which is authorized and commercially available in more than 30 other countries, is in its final phase of the FDA’s clinical trials.

“This transaction brings Sonablate manufacturing, and research and development together again under one roof… allowing for increased efficiency operationally and an expansion of our HIFU product portfolio," said US HIFU’s CEO Steve Puckett, Jr.

bdhilton
Posts: 759
Joined: Jan 2010

I am not confused on anything...Best to you

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Buzz,

Thanks for the post and welcome. Since I first began reading this forum, you are the first one that I can recall who has completed the HIFU treatment and posted here. There was one wife who used to post severall months ago but she tended to have such controversial posts that it was hard to take her seriously. Would you mind sharing with us (perhaps it would be best if you started a new thread) the details of your diagnosis information and the decision process you went through to eventually choose HIFU as your course of treatment?

When I studied HIFU I was frankly wary of a procedure that had not yet received FDA approval although I knew it was in use in Canada and some European nations and was likely to eventually be approved here. I was also looking for a medical team that would be there with me for the long haul not just for a quickie weekend in the Caribbean. I would be interested in how you decided to go the HIFU road and how much the fact that it wasn't approved in the US was a factor in your decision process, what your statistics were, how will they follow up with you, and your total out of pocket expenses beyond the $25K or so for the actual procedure.

Glad you have had a good experience with your treatment.

Thanks.

ghdeaver
Posts: 16
Joined: Sep 2010

Thumper,
One other consideration is that the biopsy can over or underestimate the cancer that is present. THe biopsy involves collecting very very small cores which can easily miss the cancer that is present. My biopsy identified cancer in only one of 10 cores with a Gleason 3+3. No external nodules were present and the prosate was not enlarged. When my prostate was removed it was determined that the cancer was contained but was present throughout the prostate. The readings were now a Gleason 4+3 and a Gleason 3+3. Much different than what everyone considered to be present based on the biopsy. My only point in this is to note that the biospy results are useful but may not give you the full picture. I decided to have a my prostate removed and am glad I did as I know that the cancer was contained and was not present in the lymph nodes or seminal vesicles.

vinyl4ever
Posts: 6
Joined: Sep 2010

Thumper, i've read thru the string & it seems that u have enuff data to qualify for "overload"!
3 yrs ago, my decision was for EBR...42 treatments that were totally painless & with few side affects during treatment. all PSA's since then have been 1.0 or less.
however, in the past 2 months i have had 2 episodes of: radation cystitus. perhaps u are aware of it (?) it is a pretty severe case of blood in urine, including quite a bit of clotting & has very painful bladder contractions. the 1st episode landed me in the hospital for cathiterazation & the old bladder camera!!! not much fun.
in all of my data gathering prior to my decision, this particular side effect was never mentioned?
i am still going to my Dr's to try to figure out how to deal with it.

i am telling u this as a surviver & not to scare u away from the treatment choice. this could very well never happen to u, as it doesn't happen to every EBR patient. i'm one of the unlucky ones, i guess.

BTW, i know one person who elected RP 4 yrs ago & is doing very well now... i also know a person who elected Proton Beam 5 yrs ago & he again is doing well.
so, we CAN beat this thing, it just ain't much fun!!!!

hope this testimony helps you & good luck to you

bdhilton
Posts: 759
Joined: Jan 2010

Amem…Depending on your beliefs you are either predestined to your outcome or it is just luck of the draw after treatment…

Best to all

buzzz
Posts: 26
Joined: Aug 2010

Personally I found HIFU through a doctor friend who had heard of it from France, he was very enthusiastic, and I also had a friend who had gone conventional treatment and he wasn’t happy. My scores were low, Gleason was 6, cancer in only 3 cores. International HIFU’s doctor examined my data and I was told I was a perfect candidate, since then I have heard of men being treated who had higher scores and I sent a friend who was turned away, his data wasn‘t right for HIFU and I don‘t really know why.. My out of pocket was hotel and air, and a great vacation. Hotel was $130. per night and air was $325. I spent some small money on detrol and Cipro for insurance against troubles. My doctor’s nurse phoned me the night after I was treated to check on me and my doctor asked that I email him every 3 days to keep in touch, sure he doesn’t live anywhere near me, but he has a list of doctors who support HIFU in my area of which I could phone if something had come up. Nothing did, yes, the catheter was a pain in the belly, but a small price to pay. Frankly, I think I relished the thought of doing something off the main road. I travel quite a lot, and I’ve been to hospitals around the world. I had no trouble deciding on HIFU and am very happy that I did. BTW, it was a quickie weekend in the Carribean, I thank God for that, I couldn’t have coped with any more. Erections are great and no leakage ever.

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Thanks, Buzz for sharing your HIFU experience and I'm glad it worked well for you. We all have to find the right treatment that works for us as we each have an individual cancer and unique personalities and no single treatment is best for everyone. I think until HIFU becomes approved in the USA it will take an adventurous spirit to follow the course you did and ignore the naysayers who tend to always look for fault in new treatment in this area.

Hope your recovery continues to go smoothly.

Swingshiftworker
Posts: 658
Joined: Mar 2010

I'm not a survivor yet, but I hope to be shortly and went through a very quick and intensive 3 month learning process early this year that you're just starting now.

I chose CyberKnife (CK) -- an intensity modulated radiation treatment (IMRT) methodology that is suitable for early stage PCa patients like you and that significantly minimizes the side effects of treatment -- that I'm scheduled to begin day after tomorrow. It involves only 4 radiation sessions over a week and results have been equal to Brachytherapy (without the seed implantation) and Proton Beam Therapy (PBT), which is also an IMRT methodology, but requires 40-45 daily treatments and other things that are more inconvenient than CK. The main problem in getting CK or PBT will mainly be in getting it paid for by your medical insurer. BT is universally accepted by medical insurers.

The important thing to note is that surgery is often touted as the "gold standard" for PCa treatment, but it comes with the greatest potential NEGATIVE side effects, including extended bouts of ED and urinary dysfunction which, in the best cases, usually lasts a year or so (think diaper pads and no woody for a year) and in the worst cases can require a penile or urinary sphincter implant down the road. CK, PBT and BT do not present that kind of risk.

So, in your research and discussions w/physicians, you should ask them about these other therapies. More likely than not they will NOT know anything about CK or PBT or, if they do, may dismiss them as "untested" treatments, which is not the case. Such responses should compel you to do further research on these treatments to see if they better meet your needs than surgery or BT.

BTW, surgery and BT were the only treatments offered to me at Kaiser (where I was previously a member) and my research led me to CK and my subsequent change to Blue Shield so that I could receive the treatment at UCSF in San Francisco.

JR1949
Posts: 230
Joined: Jun 2009

Hello Thumper,
I am a survivor. I was 60 when I had radical prostatectomy open surgery March 2009.
My PSA was 22 Gleason with all 12 pins positive for cancer. Post op PSA <0.02 and <0.008 on all other PSA including last one on July 23, 2010. My case was more serious than you and I chose quantity of life over quality of life. I still have some incontinence using 3-4 pads per day and situation is improving. I have found kegels do help. I have no erectile function and plan to further discuss this with uro on Monday followup visit.

I agree with NM, you have to decide for yourself weighing all of the options and decide what is best for you. I strongly suggest you and your wife talk to the urologists and doctors because this effects her too and with both of you there, one may think of something that the other does not. Pray, ask for God's help. My wife who is a cancer survivor also and I can vouch for the power of prayer.

Whatever you decide I wish you the best. You will be in my thoughts and prayers.

JR

muttsrule
Posts: 52
Joined: Sep 2009

Hi, Thumper. Our numbers* are somewhat similar, so for what it's worth, I decided to go with cryoablation (freezing). Worst post-op experience was 5 weeks on catheter, but since then, no problems. My 1-year checkup yesterday showed a PSA of 0.01. You're right--the amount of information out there is intimidating. My uro. gave me a book, which I found very useful in helping me get organized: 100 Questions and Answers about Prostate Cancer, 2nd ed., by Pamela Ellsworth, MD.
One bit of advice I received: all the current treatments are good, and sometimes you just go with the doctor whom you like the most.
Best of luck, and remember there's no need to hurry to a decision. John in Seattle, Georgia boy who grew up in Atlanta.
*Me: age 68, PSA then 4.2, up from 4.0. Stage T2A, Gleason 3+3=6. No evidence of cancer near edges of prostate. Good health other than ulcers and pre-hypertension.

tarhoosier
Posts: 189
Joined: Aug 2006

Thumper:
The choice for your situation that is clear and unequivocal is...Active surveillance. This is not doing nothing. This is monitoring your condition for as long as it takes before you move to another option. Perhaps a very long time with no regret, no side effects, no cost other than the monitoring you should be doing and that you would be doing after any invasive treatment. Listen, you cancer has been in your prostate for some time before it was identified and you did just fine, right? Your numbers are well within the limits for active surveillance at all top cancer centers. No one is pushing you to treatment now so just lay back and enjoy your life now. Wait until your body tells you something, do not respond with your emotions.

hopeful and opt...
Posts: 1364
Joined: Apr 2009

talk about Active Surveillance which I am on......if you click my name you will find information from a survey that shows why AS is a excellent choice....additionally there are currently some threads about active surveillance on this site that you can read.

I've been doing active surveillance for a year and a half so far.....and hope to do it for the rest of my life, but, if I have problem , I feel that I can treat with no adverse effects from waiting.

Active Surveillance is considered a valid treatment option...I am monitored at ucla, that is a highly ranked institution for prostate cancer treatment.

Be aware that there are many, many docs out there that are financially motivated to treat with their specialty, and in addition some are incompetent and will try to steer you away from AS..they are very slick...I've been posting on this site for a long while, Advised several men to have AS, however the vast majority if not all decided to , in my opinion, overtreat and suffer the side effects of these treatments. I think that many of these decisions were emotionally based, since these men have had a fear of having a cancer in their bodies, eventhough the cancer is very slow growing, and can in my opinion based on a studies that I have read be effective monitored.

Anyway, I believe that I am the only man who posts at this site who is doing AS.

I don't think that I have ever ranted here before.....but this is my time.

Ira

guards
Posts: 72
Joined: Aug 2010

I finally saw someone here chose actice survelance. I had Brachy about 32 months ago at age 63. I was fine for the first 15 months or so psa down to 0.2 from 11.2 no problems etc. However the last 17 months have been not fun. Developed a BAD infection. Had to have 2 turps and numerous catheters installed in emergency room as my spincter closed completely. Last foley cath. was in for 2 months. Then I started self cath to avoid the emergency room and in Jan. this year finally became totally incontinent. Now I Go in thursday for my next sugery to install a stint ,that will hopefully allow me to have a artificial spincter installed if the stint heals correctly. If I had it to do over I would have chosen the watchful waiting and availabe treatment to try and lower the psa. I used to have a fairly active life ,had a membership at the local public golf course, rode the bike path near my house almost daily. Even bought a recumbent bike after the infection to try and stay riding but I would wet through everything with in a few blocks so I gave up. So I now set home and change my pads and gain weight. My Diabeties got totally out of control and I'm back on insulin ,I had the diabeties in control h1ac of 5.8 down from 12 till this mess. Given my choices I would have preferred the 5-10 years I had left to the life I now live. Please consider quality of life if things go wrong. I know so many locally that have so many problems that would have certainly proceeded much slower. Yes the PC won't kill me but this lifestyle may do it quicker seriously conside active waiting please. My neighbor had external radiation and he and I agree. He had more problems than I do.

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Guards, sorry that your quality of life has deteriorated so much after treatment. Your example for us makes a strong case for weighing the potential side effects of any course of action when we receive our diagnosis.

I hope that the course you are now following results in some relief that enables you to return to the lifestyle you had before all of this happened.

I am wondering if you could share with us your statistics at diagnosis and whether or not you had any urinary issues before brachytherapy.

Your after the fact endorsement of AS makes is understandable given your results but had it gone the other way you would likely be a strong supporter of your procedure. I am curious as to whether or not you felt your doctors gave you a balanced perspective on AS BEFORE you elected brachy. I think that many of the treatment courses men eventually choose are largely a function of how their options are presented to them and it isn't until something goes wrong that we go back and start second guessing. Just wondering if that happened with you.

Best

Feb2010
Posts: 51
Joined: Mar 2010

Proton Radiation is another option you might want to take a look at.

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