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NEXT PHASE OF TREATMENT

luv4lacrosse's picture
luv4lacrosse
Posts: 1408
Joined: Jul 2010

Hello all, hope things are good with everyone.

I met with my Radiation Doc last week and met with my Chemo Doc today. We have the final plan and am ready to do some serious battle with Mr. C.

I am having both sides of my neck radiated starting Sept. 8th. 6 weeks M-F. The Chemo portion will be 3 doses of Cisplatin over the same 6 week period of time. On the 10th I will go back to the hospital to have a Hoen Catheter inserted.It is a double lumen subclavian line to adminster the chemo and other fluids through. Each dose of chemo will be given and 2 additional days spent back at the facility receiving large amounts of IV fluids and other drugs to fend off nausea and vomiting as well as to help with mouth sores. These will be 3 very long days hooked up to the tubes. I will pick up another drug called Flucoazol(hope i spelled that right) to try to finally get rid of the thrush. The nystatin did nothing. Lastly i will also take a drug called Caphasol Mouth Solution that I can swish and spit up to 8 times a day if needed to combat the mouth sores.They will also set me up for a hearing test to monitor any potential hearing loss I may have. My Doc did tell me that 1 in 3 of his patients that receive Cisplatin cannot finish 3 treatments due to the side effects and would have to finish with a different drug. I am currently taking a once a day injection of Lovenox for my newly diagnosed DVT's i have in both legs for the next 90 days. I know they said i would bruise easy, but you should see the bruise on my AC vein on my left arm after I was stuck with the smallest Butterfly Needle available. It looks like I have been stuck in the same site a hundred times or more.
I have decided not to focus on what side effects I may have to go through, but to do as much prep work in advance to allow for my body to be in the best shape to deal with what ever side effects decide to try and take me down. I will just deal with them as they happen. I am willing to take whatever side effect(s) are thrown at me no matter how bad they are in exchange for living my life to the fullest and for along time.

Thanks to all of you people who have replied with allot of good usefull information as well as just to lend an ear so I could vent.

Good health and long living to each and every person on this site.

BEST!!

Mike

Jimbo55's picture
Jimbo55
Posts: 572
Joined: Jun 2010

Mike, best of luck to you with this treatment. Hope things go more smoothly for you. Cheers

Jimbo

Dragons7-7-2010's picture
Dragons7-7-2010
Posts: 79
Joined: Aug 2010

Mike, Stay positive and find the funny in things at least that is what everyone tells me and so far I've had a tough time with my mouth sores and throat pain after round one of Chemo. But trying....to focus on the positve. I've lost 15 lbs since 8/4 from tonsillectomy and now from mouth pain.

I went to doctor today for mine and in addition to thrush he said it is called stomatitis: inflammation of the mucuous lining of the mouth, lips, cheeks, and I am having dryness in my nasal passages. Though I thougth i did everything suggested drank my water, mouth rinses, biotene rinses good oral hygene. My new (wonderful) medical oncologist said because of my chemo drug 5FU there is no way to 100% prevent the mouth sores / stomatitis side affect. But he did prescribe some very relaxing pain medication. My mouth still hurts but I am not going to take off anyone's head. That is a good thing. Mind you normally I am not a fan of taking lots of pain meds but I really need some sleep so I hope this helps.

You're an inspiration about being positive. especially love your statement "I am willing to take whatever side effect(s) are thrown at me no matter how bad they are in exchange for living my life to the fullest and for along time."

I may have to make that my new mantra.

EileenCibil

luv4lacrosse's picture
luv4lacrosse
Posts: 1408
Joined: Jul 2010

I figure staying positive is one of the few things I can control I too often find myself joking about having cancer, or poking fun at my situation. This seems to have helped my 2 sons since my diagnosis along with my employees.

Lastly, this disease has made it real easy for me to think and focus into the future regarding why it is so important for me to keep living.

I want to see how my 2 sons grow and become successfull young men, start a family, experience the joys of being a grandparent, (but not too quick) playing a role in my grandchildren's lives and being to enjoy the company of my wife for many years to come.

All the besy for you Eileen

Mike

Hondo's picture
Hondo
Posts: 5881
Joined: Apr 2009

Being Positive and having faith is the best medicine I know of

luv4lacrosse's picture
luv4lacrosse
Posts: 1408
Joined: Jul 2010

Right on Hondo.

Much more comfortable being positive VS being a whining miserable jerk.

Thanks

fisrpotpe's picture
fisrpotpe
Posts: 1343
Joined: Aug 2010

Yes, that is what I believe... PMA is 80% of beating cancer.

charles55's picture
charles55
Posts: 87
Joined: Aug 2010

Mike, I want so much for you to see this through all the way to that no evidence of disease pronouncement. There have never been enough good people on this earth. We all need you.

luv4lacrosse's picture
luv4lacrosse
Posts: 1408
Joined: Jul 2010

Thanks Charles. I have too much to live for to give up.

Best to you and yours as you make the journey.

BEST!!

Mike

charles55's picture
charles55
Posts: 87
Joined: Aug 2010

And that is exactly what is going to get you through this; smiling all the way (between the infrequent cussing fits).

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