Venting and raving....a combination of too much 'Net surfing and another OVCA obit in this morning's

Hissy_Fitz
Hissy_Fitz Member Posts: 1,834
edited March 2014 in Ovarian Cancer #1
From the British Journal of Medicine, 2003:

The goal of second-line therapy in ovarian cancer is essentially palliative, and therefore factors such as patient convenience and comfort, toxicity profile and cost are primary concerns in drug selection in this setting (Gadducci et al, 2001). Accordingly, health-related quality of life (QOL) assessment has become increasingly important in gynaecological oncology (Pignata et al, 2001). For this reason, effective treatment options that do not compromise tolerability or patients' convenience are desirable.

I have to wonder how many patients got to weigh in on this. How many of you are concerned about the "convenience" of your Cancer treatments? No, thanks, I don't want to come in next week for my chemo treatment; it's not CONVENIENT. I have an appointment at the hairdresser's to get my head shaved and then I have to make a run to the helath food store, so I can stock up on mushrooms and asparagus. How does a week from next Thursday sound? Will that work for you guys? Yeah....right.

As for the very first sentence, that's news to me, too. I have never before read that anything after the first recurrence becomes "palliative" care. Tell that to the woman I know who has done NINE rounds of chemo, over an 11 year period, and is far, far from checking herself into Hospice. No wonder women get depressed at every turn with this disease.

I guess it's a good thing that all this information is available on the Internet. In fact, I am truly glad it is there. I am of the mind that information is power, and more information means more ammunition, more choices, and ultimately leads to better decisions. But it's still a big bummer to my delicate psyche, which is already on Cancer overload. Pretty soon those guys in the nice white jackets are going to come for me, I swear. Oh, wait.....they already have. No, false alarm. That was just the lab tech, come to draw more blood. And she didn't even bother to ask if it was convenient. What a rude b*&%h.



Carlene

Comments

  • leesag
    leesag Member Posts: 621 Member
    Dear God,I LOVE you
    Dear God,I LOVE you Carlene!

    If my doctor EVER suggests that I choose a CONVENIENT treatment option over an EFFECTIVE treatment option, I am switching doctors!

    BTW.. latest miracle: someone at work "knows" someone who "knows" someone who cured their cancer by eating nothing but carrots for a year.

    yah, right. sure. color me orange, but I have a hard time with that one!

    ;)

    Leesa
  • kayandok
    kayandok Member Posts: 1,202 Member
    leesag said:

    Dear God,I LOVE you
    Dear God,I LOVE you Carlene!

    If my doctor EVER suggests that I choose a CONVENIENT treatment option over an EFFECTIVE treatment option, I am switching doctors!

    BTW.. latest miracle: someone at work "knows" someone who "knows" someone who cured their cancer by eating nothing but carrots for a year.

    yah, right. sure. color me orange, but I have a hard time with that one!

    ;)

    Leesa

    Thanks ♬
    for the chuckle with my morning coffee gals!!!

    Yes, we are our own advocate, and beware of even the very nicest doctors because the majority think along these lines, Carlene. And this cuts to the core of why I am so "obsessed" with dosages. A lot of time the recurrent dosages are palliative or designed for "quality of life" and they don't tell you that. It is one thing if your body can't tolerate chemo, but I just happen to be on those that can, (I've never had a transfusion for blood booster in 26 doeses) so still want to treat what tumor/tumors are as agressively as possible.

    My latest miracle story is a friend who has a friend who was stage 4 cancer, but didn't have time to go in for treatment, so they just continued on with life, and when they went back to the doctor to start the treatment, the cancer was gone! The moral of the story is to continue doing what you LOVE doing and not worry about it! I think I like this one♣

    kathleen