Aug 25, 2010 - 9:57 pm
I had my first post visit with my surgeon today and he kind of rocked my world. He met with the Tunor Board and the consus was to re stage my cancer. I was originally staged T2N2BM0 42A P16+ restaged T3N3M0 42B P16+.
His explanation was a combination of the sizes of the tumors and the aggressive spread. he described the cancer in my mouth as looking like an "oil slick" that he peeled off. The original stage was described to me as the best type of Stage 4 and now the new stage is "middle of the road" stage 4. He thinks the long term prognosis is still very good but is reluctant to put a percentage on it.
HAS ANY ONE HERE EVER HAD THIS EXPERIENCE, AND HOW WAS IT EXPLAINED TO YOU??
My surgeon discussed with the Oncologist the need or benefit of now radiating both sides of my neck as the mouth cancer came up to the Midline portion of my mouth. This combined with how aggressive the cancer was,I have made the decision to radiate both sides of my neck along with Chemo.
I am pretty wigged out with the Doc's hesitation to not place a number or percentage towards my reoccurance and or survival. He has never said he thinks the cancer will come back or that this will take me down in the future. I am not sure what to think.