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espohagus update

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

I had a barium swallow today that confirmed the stricture that has completely closed off my esophagus preventing any food or liquid from entering. The good news from this is that it pretty much ruled out a mass that's causing the problem. Also I have a new speech pathologist who *wants* to help which was encouraging. She thinks she can help open this up with exercise.

Next is another endoscopy with a smaller endoscope and possibly a dilation. The test showed that the esophagus is *completely* closed. The test wasn't bad at all; I had expected it to be intolerable.

So I'm a bit discouraged by this, but I also realize this is a long road. I know about Sweetblood's experience and Joe's - anyone else have any ideas or thoughts?

Best,

Mick

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Mick,

No help here, but wanted to let you know I'm pulling for ya Bro'! Hope the speech pathologist can help out. I went to one and she was a great help. Hoping your stricture goes away soon and you get back your bite!

Positive thoughts

Greg

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Mick,
If they could figure out how to shut down that leaking oil pipe miles down in the ocean, there has got to be away to open up your esophagus. I am wishing the best for you and believing they will find a way. "Find a way or make a way." (words that have pushed me through some tough times).
Kim

Just a little aside...I had to go to dictionary.com to make sure I was spelling esophagus correctly, which I wasn't...can't we get a spell check on this site? We are using all this medical lingo and drug names...I have always had spelling issues...and not having spell check makes me anxious.

miccmill's picture
miccmill
Posts: 247
Joined: May 2010

I'm hoping a good speech pathologist can help. Just having one say they thought they could is encouraging.

Is dilation out of the question?

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Hey. Yeah they want to first see what's there with the endoscopy then decide if they can do the dilation. They will weight the risk of perforation vs more time for healing. The Rad Dr told me that this happens in about 3% of cases and of than number 70% dilation fixes the problem. He also said if it didn't work from the mouth there was an option to go in through the PEG hole and up! It made me laugh when he said "maybe they can go in from down below". I said to do that they might need a 40 foot endoscope and a navigator. He didn't get it.

Best,

Mick

johnlax38's picture
johnlax38
Posts: 136
Joined: Aug 2010

I'm glad you found a doctor that is willing to help. That must be a big boost in your confidence to move forward. I hope the new doc can help and I hope you are able to swallow soon :)

miccmill's picture
miccmill
Posts: 247
Joined: May 2010

I'm picturing a small submarine with balloon dilators attached, controlled by tiny Gastroenterologists.

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

Hey Mick, I'm sorry this is ongoing for you. I'm glad to hear it's not a mass though, but remains a stricture which is close I figure to a swelling. Speech pathologist sounds good to me, if by exercise you mean movements or stretching in the area to encouage the swelling to recede. Just hang in, it sounds like the stricture has nowhere to go but down at this point so I'm hoping it'll start to turn around soon.

Hal

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