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Another bump in the road
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Aug 25, 2010 - 3:25 pm
Hi, I'm 3 months post treatment, I just had my first p e t , which did not see any cancer left, but the doctors want to do a biopsy to make sure. I am fine with all of that, butI now have swollen lymph nodes in the lungs. They were going to do a needle biopsy but now want to do an open biopsy because it is not safe to do it with needle.They think it might be sarcoidosis. I asked if this was nessasary and the doctor sais yes to make sure. Cancer has not been mentioned, I had asked if any cancer showed up anywhere on pet and she said no. I am not sure what to do. I would like to have biopsy on anal area and port removed, but not sure about the lung. Any opinions? |
Joined: Jan 2010
Hi Lisa--
If it were me, I would probably seek a second opinion. Sarcoidosis is a granulomatous lesion of unknown origin. Every time I have a PET scan, they note granulomas in my lungs that are calcified, calcified being the key word here. That means they are old lesions and are not growing or changing. Mine are most likely due to histoplasmosis, a disease often found in people who live in agricultural areas. I grew up in the midwest. The disease is caused by spores in the soil that are released into the air with cultivation of the soil. They are breathed in and can form lesions in the lungs. I never knew I had this until my first PET scan--no symptoms or anything. In my case, I would certainly not jump into getting an open biopsy and would want to get a second opinion if that had ever been suggested. I'm not saying that your lesions are the same thing, just ask lots of questions before having this done.
Joined: May 2009
Hi Lisa,
I'm 1 year post tx and I have a nodule in my lung. As of 8-11 it is 11mmx9mm. I will be seeing a pulmonologist on the 27th, to see what his recommendations are. I will see a Thoraic surgeon on the 31st. With the nodule they will more than likely want to remov