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Ex-TUBE-ation

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Mark had his tube removed today. Took it into his own hands and made the appointment without any recommendation from his docs. They had to scramble to get his ENT to say it was ok. He has not used it in four weeks and his weight is on the rise. Looks like he has been shot in the stomach.
Never thought we would be here. I remember in April I would read all the posts about people finishing treatment and PEGS removed and thought we would never be THERE. To those of you just starting out, it is a one day at a time process and time does move forward even though sometimes it does not feel like it. There are mile stones, but there is no end.
Love to all of you,
Kim

rush1958's picture
rush1958
Posts: 197
Joined: Jul 2010

Congrats!

Getting rid of that thing is a great feeling.

Rush

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

Glad to hear for Mark, Kimba. He's done a super job recovering, and I know your support has been one of his strenghts throughout.

best, Hal

GraceLibby's picture
GraceLibby
Posts: 88
Joined: Jul 2010

That is totally awesome! As someone who is just beginning this journey, it is inspiring to hear the progress from those who are on the other side. Congratulations!

staceya's picture
staceya
Posts: 700
Joined: Jan 2010

Congratulations!! It is truly a path we all walk together celebrating milestones!
Stacey

Skiffin16's picture
Skiffin16
Posts: 8053
Joined: Sep 2009

Great news...

I can't wait to be port-less... mine comes out in February - two years with it.

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

Excellent, Kim. Another obstacle left in the dust by you and Mark. Excellent.

kcass

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

I remember how much I wanted to get rid of that doggone tube and how happy I was when I finally did.
And you have to admit, it leaves a really cool scar. I call mine my old war wound.
Congratulations!

--Jim in Delaware

kimmygarland's picture
kimmygarland
Posts: 313
Joined: Aug 2009

I'll bet he is so happy to have that out. Glad to hear he is gaining weight. Happy Day!

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Great news Kim for you and Mark. Nice for him to be able to do a full 360 when he is lying down now. Amazing how simple things in life are completely compromised with this blasted 'C', but Mark is now another big step in the right direction.

Scam

PS: If he tosses and turns at night, don't worry Kim, he is doing it because now ' HE CAN'.

Hondo's picture
Hondo
Posts: 5608
Joined: Apr 2009

That is great news, one more positive step in the healing process.

D Lewis's picture
D Lewis
Posts: 1518
Joined: Jan 2010

Mark

Welcome to the "second belly-button" club!

Deb

dogsrule's picture
dogsrule
Posts: 96
Joined: Apr 2010

I second the second belly button club to. So glad to hear the good news that Mark is doing so well. All of us have had some big, big challenges to overcome, but hearing the great progress Mark has made is very hopeful for us all.
Jo

CajunEagle
Posts: 353
Joined: Oct 2009

Kim, you have been one truly strong person during this whole journey. Mark is quite fortunate to have you around to get as far as he has. In fact, we are all fortunate to have you around to make us think and question our ability to carry on.

Go look back to 4-14-2010 8:24am and read your initial post on here......"Newly Diagnosed, Need Help". Even then you "seemed" as though you had your act together. Congradulations to Mark, and hope the healing continues.

Larry

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Terriffic. I am glad that Mark is doing well. I hope I can get rid of mine someday.

Jimbo55's picture
Jimbo55
Posts: 572
Joined: Jun 2010

Wow that is such good news to hear. I am so glad for both of you. Cheers

Jimbo

Lena Rose
Posts: 73
Joined: Apr 2010

So happy to hear that Mark lost an extra appendage! Wishing you both continued healing and blessings.

miccmill's picture
miccmill
Posts: 247
Joined: May 2010

What great news. Mark has done so great. His progress has been an inspiration.

I know Glenn will be really happy to get rid of that tube. It's really an annoyance to him especially now that he's starting to feel better.

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

Hi Kim,

It was a milestone moment for me, so I know it is for Mark also. Hoping for continued success!

Best,
Steve

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Great news Kim. Mark will really start to feel like his new "normal" now with that tube out of the way.

Stay well,
Glenna

RushFan's picture
RushFan
Posts: 217
Joined: Aug 2010

Now the culinary experimentation begins. Have a great weekend.

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