Mark had his tube removed today. Took it into his own hands and made the appointment without any recommendation from his docs. They had to scramble to get his ENT to say it was ok. He has not used it in four weeks and his weight is on the rise. Looks like he has been shot in the stomach.
Never thought we would be here. I remember in April I would read all the posts about people finishing treatment and PEGS removed and thought we would never be THERE. To those of you just starting out, it is a one day at a time process and time does move forward even though sometimes it does not feel like it. There are mile stones, but there is no end.
Love to all of you,