going in to folfiri+avastin on Wednesday and scare by reading in the Internet
Cheers every body.
Pepe.
Comments
-
Pepe
I am not sure which testimonials you have been reading, but I have been on folfiri + avastin since September 2009 + I have found it manageable. I have had fatigue, some diarrhea + hair loss but I deal with it. I lost most of my hair but then it started growing back, + now I have a short hairdoo with my whole head covered. It is powerful + effective; good luck. I hope you have minimal side effects. Take good care.0 -
anne tks for your prompt response !AnneCan said:Pepe
I am not sure which testimonials you have been reading, but I have been on folfiri + avastin since September 2009 + I have found it manageable. I have had fatigue, some diarrhea + hair loss but I deal with it. I lost most of my hair but then it started growing back, + now I have a short hairdoo with my whole head covered. It is powerful + effective; good luck. I hope you have minimal side effects. Take good care.
the loosing of your hair was it sudden ?0 -
You are welcome!pepebcn said:anne tks for your prompt response !
the loosing of your hair was it sudden ?
Not everyone loses their hair on this chemo cocktail. My hair loss was kind of gradual, + mostly at the sides of my head. I had chin-length hair, + for awhile I just wore a hat or scarf. Then in Feb/10 I asked my daughter to cut my hair that was left really short. She did + soon after that I noticed the new growth. I bought a wig when I started treatment but never wore it. For a few months now I have just gone with the "short hair" look. I actually don't mind it, + it is very low maintenance - wash + go. Good luck!0 -
Pepebcn -
Re:
"l been 9 rounds on folfox with very little effects "
We all make our own choices, but if it were me?
I think I'd get another opinion regarding my treatments from
an oncologist that isn't part of the same group or organization
as my present physicians.
No-one should fear cancer so much, as to disregard their own
common sense. If something isn't working, why not move on
to something that might?
Wishing you a very long life!
John0 -
Anne tks for your answer !John23 said:Pepebcn -
Re:
"l been 9 rounds on folfox with very little effects "
We all make our own choices, but if it were me?
I think I'd get another opinion regarding my treatments from
an oncologist that isn't part of the same group or organization
as my present physicians.
No-one should fear cancer so much, as to disregard their own
common sense. If something isn't working, why not move on
to something that might?
Wishing you a very long life!
John
l know is Sealy but is not a cosmetic question , just that l don't want to see my self seek, also when l was on folfox doctors told me to don't have sun ! lt was Sumer and l was on the beach! l asked them what was the real danger, and they told me that if l would take sun l would probably have permanent spots on my skin ! l assumed the risk and l started to take the sun ,little by little first and testing what happen and at the end l had a wonderful tanned color far away of the grey face l had on the begging ! now body was aware that l had a cancer stg 4 even when l told them they cut not belive me and it make me feel stronger. ln such a good shape it was impossible to loose the battle!
thks0 -
john l mean side effects , and lots of positive effects!pepebcn said:Anne tks for your answer !
l know is Sealy but is not a cosmetic question , just that l don't want to see my self seek, also when l was on folfox doctors told me to don't have sun ! lt was Sumer and l was on the beach! l asked them what was the real danger, and they told me that if l would take sun l would probably have permanent spots on my skin ! l assumed the risk and l started to take the sun ,little by little first and testing what happen and at the end l had a wonderful tanned color far away of the grey face l had on the begging ! now body was aware that l had a cancer stg 4 even when l told them they cut not belive me and it make me feel stronger. ln such a good shape it was impossible to loose the battle!
thks
unfortunately l am on reccurency now but first treatment shrank the tumor in a 50% and it allowed me to be operated few months later!
cheers!0 -
Hey Pepe - I'm starting
Hey Pepe - I'm starting Folfiri tomorrow. I don't think we have anything to be afraid of as far as side effects are concerned. I expect it to be pretty crappy, but entirely manageable. My only fear is that it will not kill the bastards the same way folfox did.
Take care - Roger0 -
hi RogerCrow71 said:Hey Pepe - I'm starting
Hey Pepe - I'm starting Folfiri tomorrow. I don't think we have anything to be afraid of as far as side effects are concerned. I expect it to be pretty crappy, but entirely manageable. My only fear is that it will not kill the bastards the same way folfox did.
Take care - Roger
Tomorrow ! Wohh! l make a proposal , the first to be declared NED will pay a dinner to the other in the best restaurant of its city!
Ok? jejejeje.
Good luck to both! And keep me informed about your news l will do too!0 -
I hear you!pepebcn said:Anne tks for your answer !
l know is Sealy but is not a cosmetic question , just that l don't want to see my self seek, also when l was on folfox doctors told me to don't have sun ! lt was Sumer and l was on the beach! l asked them what was the real danger, and they told me that if l would take sun l would probably have permanent spots on my skin ! l assumed the risk and l started to take the sun ,little by little first and testing what happen and at the end l had a wonderful tanned color far away of the grey face l had on the begging ! now body was aware that l had a cancer stg 4 even when l told them they cut not belive me and it make me feel stronger. ln such a good shape it was impossible to loose the battle!
thks
I know what you mean when you say you don't want to look sick. I don't think I really have, even when I wore a scarf or hat. And you may not even lose your hair or only a minimal amount.0 -
It's a deal. Except let'spepebcn said:hi Roger
Tomorrow ! Wohh! l make a proposal , the first to be declared NED will pay a dinner to the other in the best restaurant of its city!
Ok? jejejeje.
Good luck to both! And keep me informed about your news l will do too!
It's a deal. Except let's eat in Barcelona either way. There really ain't much going on in my little town.0 -
by the waypepebcn said:hi Roger
Tomorrow ! Wohh! l make a proposal , the first to be declared NED will pay a dinner to the other in the best restaurant of its city!
Ok? jejejeje.
Good luck to both! And keep me informed about your news l will do too!
which state are you from?0 -
Roger!!Crow71 said:North Carolina. I live
North Carolina. I live outside of Winston-Salem. We are known for barbeque and Reynolds Tobacco Co. (Camel, Winston, Salem etc.)
I wonder if that had anything to do with . . .
jajajaja search for a good lawyer may be you get billionaire!
Cheers.0
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