CSN Login
Members Online: 12

Triple positive sistahs

survives
Posts: 255
Joined: Feb 2010

The other day, Jo Jo asked an interesting question that asked if any of us had two types of cancers in our breasts. A number answered.

I have a second part to the question that started my mind whirling. Here it is;

How many of you are triple positive (hormone + AND HER2 neu +), had very small tumors, and did not receive Herceptin?

And aside from the question about Herceptin, just how many are 3+?

Just curious!
Jennifer

BlownAway60's picture
BlownAway60
Posts: 833
Joined: Nov 2009

I am 3+. My tumor was 1.5 cm. I had a lumpectomy in Sep 09.
I am also taking Herceptin for a year.

Hugs

Donna

Marcia527's picture
Marcia527
Posts: 2731
Joined: Jul 2006

I'm not sure if I am 3+ but I am positive. I had large tumor (6cm and 3cm) and they did not give me Herceptin. I was diagnosed in 2003. Wish I would have known about this board then and I could have questioned the docs but maybe Herceptin is fairly new?

Bella Luna's picture
Bella Luna
Posts: 1572
Joined: Aug 2009

I tested positive all across the board( ER, PR, HER2+). I am completing a year of Herceptin and will be getting my port removed come September. I have one more infusion to go and I will be done- Hooray!

From what I understand, Herceptin is for those who tested positive for HER2. It can also be given to those who have metastasized cancers.

Best of luck on your journey. God bless.
BL

JanInMN's picture
JanInMN
Posts: 149
Joined: Jan 2010

< 2cm tumor, l breast, no nodes, bilat mastectomy, Carboplatin, Taxotere, Herceptin, Tamoxifen. :-) Jan

Sher43009's picture
Sher43009
Posts: 601
Joined: Nov 2009

2+cm tumor, lumpectomy, 4 Adriamycin/Cytoxan and 1 Taxol (bad reaction had to stop). On Herceptin for 1 year. My last on is on Oct.6th. Still being watched as my mamogram/ultrasound came back with lots of calcifications in both breasts now.
Sher

MomMichelle's picture
MomMichelle
Posts: 93
Joined: Jun 2010

I was triple positive with my DCIS, but had an invasion. ER-, PR slighly+, and HER2+++. I will be starting TC and then having herceptin for a year. Invasion was only 4mm, two doctors said no to chemo, 1 said definitely chemo (he said he was not concerned with the size of the cancer but the biology of it). After that 1 opinion was placed in my mind, I knew I had to because I would always wonder what if. Hate the what ifs!

MomMichelle's picture
MomMichelle
Posts: 93
Joined: Jun 2010

I was triple positive with my DCIS, but had an invasion. ER-, PR slighly+, and HER2+++. I will be starting TC and then having herceptin for a year. Invasion was only 4mm, two doctors said no to chemo, 1 said definitely chemo (he said he was not concerned with the size of the cancer but the biology of it). After that 1 opinion was placed in my mind, I knew I had to because I would always wonder what if. Hate the what ifs!

jo jo's picture
jo jo
Posts: 1175
Joined: Jun 2010

Im ER+/PR+ but not sure about the HER2...it says 1+ on my path report but not sure what that means ...so if anyone could tell me that would be great.
My tumor was 1.2 cm and i dont have to take Herceptin.

lillith's picture
lillith
Posts: 29
Joined: Jul 2010

It must mean you are HER2 negative if you don't have to take Herceptin. the HER2 gene on the tumor makes it really aggressive and Herceptin blocks this gene.
however, each tumor can have its own expression so make sure all the tumors are HER2(-).

survives
Posts: 255
Joined: Feb 2010

Looks like I'm odd duck out here, too!! My tumors together were less than 1cm. One IDC, one DCIS. Because I had a mastectomy, my doctors felt that I was aggressive enough, and that chemo and herceptin se's outweighted the good effects of each.

Was wondering if I'm the only one...look like it!!

Jo J0, Her2 (1+) means that you are weakly Her2 positive, and maybe your doctors didn't think the risk of Herceptin was warranted....maybe...not sure. Something to ask about when you go next.

Best wishes ladies!

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I am HER2 negative, but, I thought the HER2+ always took Herceptin. You should ask about it Jojo as I thought all positives took it.

Good luck everyone!

Hugs, Angie

jo jo's picture
jo jo
Posts: 1175
Joined: Jun 2010

wow ladies now im confused...i think i will ask my new onc about this.

survives
Posts: 255
Joined: Feb 2010

However, there are exceptions to this rule still. And the battle for us early bc-ers is still being debated. In MY case (and, Jo Jo...do talk to your onc., as I am certainly NOT familiar with your case, nor am I a doctor), I was told that Herceptin is not a stand alone drug. Since I had a mastectomy, had clear margins and no nodes, both my former and present oncologists decided that I had been aggressive enough, and did need chemo or rads. Remember, this was 4 years ago. NOW, everyone gets it. BUT, there isn't enough proof that it helps with the earliest of earlies, such as myself. So, you see, I do fall between the cracks. Also, there was a formula that my present onc. did for me, and said that I fall within the less than 10% chance of reoccurance in the next 10 years. Someone may know what it's called....I don't remember.

I did fight the fight and argue for chemo and Herceptin, but it didn't happen for me. I have 3 doctors that are telling me that I should be fine, therefore I have to trust. So, after 4 years out, I think I will have to trust in light of the fact that next year I will come off of Femara.

Annette 11
Posts: 381
Joined: Sep 2010

NOW I'M CONFUSED. I AM TRIPLE NEG. I THOUGHT YOUR ARE TN ALSO JOJO? IF I'M WRONG DON'T MIND ME...I'VE GOT SO MUCH OF MUMBLE JUMBLE IN MY HEAD I DON'T KNOW WHATS GOING ON.

jo jo's picture
jo jo
Posts: 1175
Joined: Jun 2010

Annette
if you scroll up more you will see everyone is confused on this as i am....so its not just you!
my path report reads im ER+/PR+ and HER2 (1+) I have not been to my onc yet to ask but i go next week...we assume the 1+ is a week positive??
Sorry for all the confusion...were all just one big confused group of people...hehe!

jo jo's picture
jo jo
Posts: 1175
Joined: Jun 2010

Annette
Maybe your right i went back to see what i wrote and i did say i was tn ...it should of said POSSIBLY TN and also i said it was my left side that i had nodes removed and its my right side...wow so many mistakes in that post...i wonder what was going thru my head then...im sorry!

Annette 11
Posts: 381
Joined: Sep 2010

CHEMO-BRAIN! SERIOUSLY, MISTY JO YOU HAVE SO MUCH ON YOUR MIND AND ALL THAT YOU JUST WENT THROUGH IT'S UNDERSTANDABLE.
HUGS :)

Katz77
Posts: 598
Joined: Sep 2009

Im quadtriple. HER2,Er,PR and mentally. lol Had the Herceptin. Last treatment Sept. 2, yahooo!
Had a 5.3cm and 18/20 nodes posi. All better now. Course I don't want to sound cocky, but truely feel in my heart, " been there, done that." Love to all. Katz

pms
Posts: 1
Joined: Sep 2010

CAN'T DECIDE ON CHEMO .45 , ER PR+ HER2+ NO NODES

tgf's picture
tgf
Posts: 955
Joined: Mar 2009

I was also triple positive ... 1.5 cm ... had lumpectomy, chemo (taxol and herceptin) and continued herceptin for a year) and then had radiation... and have been on tamoxifen for about 6 months. So far so good ... NED.

hugs.
teena

Katz77
Posts: 598
Joined: Sep 2009

Stage3c, HER2+, ER and PR+, 18/20 nodes+ and 5.3cm tumor. Ima sooo positive I can't even think negative. Smiles and hugs, Katz =^..^=

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network