I have been reading the posts here for a bit, and decided to finally sign up and ask some questions and get some support from people who know what I am going through. Just reading your posts have helped a lot.
A little of my story: I was scheduled to have a partial thyroidectomy July 14th, due to a multinodular goiter that had been bothering me for 2+ years. During the surgery, they found it to be cancerous (papillary carcinoma) along with several other nodules on both lobes of my thyroid, so it turned into a total thyroidectomy. I got to find out it was cancer when I was in the fog of waking up from surgery and heard the nurses asking who I was and what surgery I had done, and heard them reply that she had just had her entire thyroid removed for cancer. It was a kind of an unsettling way to find out. It has been quite the roller coaster and a lot harder to deal with (especially emotionally) than I thought. (As many of you probably agree, years of being told that thyroid cancer is not a big deal can make finding out you have it even harder to deal with emotionally since then you feel like everyone thinks you're making a big deal out of nothing.) I am a mom of 4 kids under 10 and my hubby is in dental school and my parents live 2 days away. I asked my mom to come out and help, which at first she said she would do, then it was excuse after excuse which made me feel really unloved and unsupported, and she has caused me more stress than anyone else. She's still coming to take care of the kids when I go through the RAI (mostly because I have no other options), but she's told me that she's leaving as soon as possible after the scan is over the next week and I can safely be home. Right now, I am just dealing with everything pretty much on my own. My hubby and I had a few rough spots, and I know he's having a hard time with it too, so we are just make sure to talk out our issues and he's been good when he can be here, but life doesn't stop even when you don't feel good, so he can't be here all of the time. Thanks to the thyca website (not my docs, go figure) I found out about the thyrogen shots, so I brought them up at my doc appts and my insurance approved them, so I don't have to be completely hypo right now, but my endo wouldn't put me on a very high dose (or it just hasn't really kicked in yet, I don't know), so I'm still tired and emotional a lot, but at least somewhat functional thank goodness. The LID is going ok, other than my body feeling really weird and I figured out my calcium levels were getting low and I had to find a supplement that was allowed (again, something my docs didn't clue me into). My treatment is Aug 25, with the shots on Aug 23 and 24. We live in a tiny 3 bed 1 bath house, so there's no way to stay at home (I think it's insane that they send you home, by the way) so I am staying in the Hospitality House for a week (better safe than sorry). My question is for all of you that has been through this. How long after the RAI were you able to get back on your meds and start to feel normal? Did it take a few weeks (like it says on the meds) to feel "normal" again, or was it faster? I am just trying to figure out how much help I am going to have to try to find. I would appreciate any feedback anyone might have, and I apologize for being so long winded! I guess I had more to vent than I thought. Thanks in advance!