To all my new family,
As promised I would update as soon as the results were in...I do have another tumor. This one appears to go from the left tonsil into the soft palette. The ENT wanted it to be that the spot showing on the PET was hot from my rads but no such luck. The radiologist confirm another mass and when scoped, this new mass is visible as soon as the scope leaves my sinus cavities. The good news was that the original tumor has shrunk and appears to be dying but this new one seems to be growing as fast as the first. This one also appears to be in the nodes. Surgery is being scheduled for Friday as the doctor wants to go in and remove as much as possible and get the biopsies done so that we can decide the best course of treatment. My family and I want to personally thank each of you for prayers and support and words of encouragement. We know we are not alone.
For the newbies coming on here and reading this...DO NOT let this discourage you. Keep up the fight and think positive. Fighting this is like riding a roller coaster. Full of ups and downs. I might be down but I ain't out. I fought this once and I can do it again.
I think the hardest part of this was having to tell everyone I have to start over. Poor Joey..he is so strong but I could hear his voice when I broke the news and I think it broke his heart. But he said we will prevail. We have battled for 2 years and he would rather we find this out now instead of finding out a month or so down the road when I couldn't swallow or something. My kids were devastated to say the least but they are strong and are trying to coordinated schedules for being with me..hard to do with school starting and Max..well he isn't moving out for school. He said he will just commute so he can be with me while everyone else works. But I told him that he will go to college and I expect no less that what his GPA was at his high school graduation. His response was gee mom thanks..lol.
As always I will be faithfully staying in touch thru here and the chat. I love you all and thank you.