Aug 09, 2010 - 10:27 am
Hello, my name is Bill and my mother (WCG=World's Greatest Mom!!) was recently diagnosed with stage 4 tongue and base of mouth cancer. Lymph nodes look like they might not be affected but not 100% sure of this. Our first DR. took a week for this, a week for that and time is passing which has me stressed. We waited a week after finally getting the diagnosis to see a surgeon at a big NYC cancer hospital near where I live and they recommended the full surgery (1/2 tongue, neck dissection, jaw bone). Mom said no way she wants to go through that. She's concerned about not being able to talk, swallow, etc...
So now the pressures on to find someone good who is more likely to go the chemo/radiation route over surgery...organ preservation. I have no experience with cancer and the internet is not giving me any clear answers on who to see in the NYC area. I want to get this treatment started as the damn C is spreading. It doesn't seem like anyone any sites names names of hospitals and DR.s and not sure if that's some protocol I'm not aware of...
Also, for anyone who has gone through the surgery, obviously it sounds pretty awful and its understandable why she would want to avoid it at all costs. But I have a feeling its her best chance as the Dr. said. Is it that bad? For those who went through it, are there positive stories I can share with her about your ability to talk and swallow?
Thank you in advance. I'm over the shock and just want to get her into good hands quickly and get on with the battle ahead of us. She has a wonderful family around her, we just want to take the best steps right now and get her into the best situation as quickly as possible. It's the least we can do for her after all she's given to us.