As I am in recovery phase, even though I have two chemo sessions to go Aug 9 and Aug 30, I have some questions about what to expect in the future. Finished my 40 rads about 6-7weeks ago.
I have a port surgically inserted into the upper left portion of my chest just below my collar bone / shoulder socket. I heard and read these can stay in for years. When did you get yours taken out? I know I'm jumping the gun but I'm just curious. I may wait a year just in case of any re-occurrence of my NPC.
When this is taken out how does it feel? My doc said when you are ready you just tug it out. The only thing that is discomforting is the flange that lays under my skin to hold it in place. Do the stomach muscles collapse of the hole? Does my stomach leak? How well and fast does the external hole heal? What should I be aware of? Kinda been on my mind. I have only seen this doc once so I haven't had a chance to grill him on these types of questions. He just put my port and feeding tube in, thats all I used him for.
Learning to Eat
What did you do? I can already feel my phlegm changing for the better. I use to cough *stuff* up every 5 minutes it felt like, now I'm doing it maybe once or twice an hour. I feel real fortunate I am able to drink normally and eat soft foods normally. I am very competitive and judgmental with myself and I am taking this battle on like a challenge. I feel as I have progressed because I can eat soup and soft fruit, canned pastas, etc.. but I want to take that next step and just don't know how. I still depend on my feeding tube for all of my caloric intake. How did you get back into eating 3-4 meals a day? I could do grits in the morning, but thats only 90 calories versus my 350 canned food. Again, am I jumping the gun and pushing to hard? I'm not sure how to gauge myself and I feel as if I am behind in my eating recovery. I have pending therapy for speech and swallowing but these have yet to start. I'm trying to do a lot on my own before that process starts. I can talk fine but my jaw doesn't move much.