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lady4darknight's picture
lady4darknight
Posts: 90
Joined: May 2010

Hi all,
I met with the ENT yesterday and had my PET repeated this morning. The ENT has said that he did not like seeing the new mess on the CT in my nodes, left tonsil and soft palate. He agreed that the PET did need to be repeated. But he also said he didn't feel that my tumor(on the BOT) would shrink much more. Said it would definitely have to be removed the rest of the way with surgery. He also stated that if the least little thing looks suspicious on the PET I would also be having surgery to remove as much as possible and have it all biopsied. Then of course it will be a matter of what it all shows as to the course of treatment. OMG I just feel like I am starting all over again. I am praying that my PET shows nothing. If and he said a big if...if it is all clear he would consider pulling my trache if I could maintain my o2 levels and letting me go 3 months before going through anything else to let my tongue and throat heal since I have had issues with my throat bleeding with my trache. This is the game plan I want..lol. So now I will be hoping and praying that everything looks good. I am prepared for the worse and hoping for the best. Would like to be able to go swimming. Something I haven't been able to do for 2 years. I hope you all have an excellent weekend.
Debbie

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I am so sorry that you have to go through all of this again. I hope the next PET is clear and you will be able to have the trach removed.

I will keep you in my prayers.
Glenna

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

Debbie, I'll be saying a prayer for you, and hoping for the best with you.

Hal

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

Debbie,

I am praying and hoping the best for you. I truly hope you do not have to go through it all again.

The praying Steve

Skiffin16's picture
Skiffin16
Posts: 8088
Joined: Sep 2009

You're in our prayers as well.....good PET to come.

Best,
~John

greg from pa
Posts: 86
Joined: Jun 2010

Sorry the news from the ENT was not that great. I think I know a little how you feel, when we go trrough all this grueling treatment,and we want and expect good results. I am 2 weeks away from finishing 7 weeks of radiation and chemo and I am hoping and praying for the best. But at the same time i suppose I have to prepare myself if the next PET is not the one I am hoping for.I just want you to know I will be praying for you.I know you have alot of good peolple here pulling for you, Debbie. Take care Greg

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Hi Debbie, Sorry to hear this news but we are all hoping and praying all will be OK for you.

Scam

miccmill's picture
miccmill
Posts: 247
Joined: May 2010

You're in my prayers. So sorry you are possibly facing more treatment.

You will come through.

Hoping every scan and test shows nothing.

debbiejeanne's picture
debbiejeanne
Posts: 2454
Joined: Jan 2010

Debbie, the waiting is the hard part. I'm sending you lots or positive thinking and even more prayers!!!! I can only imagine how you feel but please try to be strong and hang in the. WE'RE PRAYING FOR THE BEST!!! I am sorry that you have to play the waiting game again.
God bless you friend,
debbie

lady4darknight's picture
lady4darknight
Posts: 90
Joined: May 2010

Hi all,
Thank you for all the prayers and positive support. It has been a very long weekend but I will have answers tomorrow. Joey and I have talked and if the results are bad I am going through with the surgery regardless of how wide spread or how much needs removed. My throat has been very sore again. Kind of feels like strep, but I know most of you understand that. I have my fingers crossed and am hoping for the best. My appt. is 11:00 cdt tomorrow and will post as soon as I get back to the center with my results. I couldn't do this without you all.

Debbie

miccmill's picture
miccmill
Posts: 247
Joined: May 2010

We're praying for you. Sending our most positive energy your way.

Good luck tomorrow.

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Know that we are all waiting with you to hear the word; and we are behind you all the way through with what you decide. Good energy being sent your way...in Texas, right?
My Best,
Kim

debbiejeanne's picture
debbiejeanne
Posts: 2454
Joined: Jan 2010

Debbie, you have my thoughts and prayers. Lets be positive and not let any negative thoughts in our mind. I'm rooting for you.
God bless you friend,
debbie

CajunEagle's picture
CajunEagle
Posts: 361
Joined: Oct 2009

I'm not sure how it's possible, but we'll all be holding your hand tomorrow. You'll feel it.

(Kim....I think Debbie's treatment takes place in Tulsa, OK..)

staceya's picture
staceya
Posts: 702
Joined: Jan 2010

We all will be holding your hand!!

rozaroo
Posts: 667
Joined: Apr 2010

I will keep you in my prayer's. Positive thought's sent your way also!
Hugg's Roz

rozaroo
Posts: 667
Joined: Apr 2010

I will keep you in my prayer's. Positive thought's sent your way also!
Hugg's Roz

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

Debbie, waiting and hoping to hear from you, hope all goes well, we all feel for you, and are hoping for positive news. Lets both get rid of our trachs, what a pain. Dennis

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Debbie, I am joining the circle of friends who will be holding hands and praying for you.

Stay strong,
Glenna

Hondo's picture
Hondo
Posts: 5812
Joined: Apr 2009

One thing about being here we all know what you are going through, and will keep you in our thoughts and prayers that your PET comes back clean.

Hondo

kimmygarland's picture
kimmygarland
Posts: 313
Joined: Aug 2009

Thinking of you and praying for good results.

wifeforlife
Posts: 189
Joined: Feb 2010

also praying for you...

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