I met with the ENT yesterday and had my PET repeated this morning. The ENT has said that he did not like seeing the new mess on the CT in my nodes, left tonsil and soft palate. He agreed that the PET did need to be repeated. But he also said he didn't feel that my tumor(on the BOT) would shrink much more. Said it would definitely have to be removed the rest of the way with surgery. He also stated that if the least little thing looks suspicious on the PET I would also be having surgery to remove as much as possible and have it all biopsied. Then of course it will be a matter of what it all shows as to the course of treatment. OMG I just feel like I am starting all over again. I am praying that my PET shows nothing. If and he said a big if...if it is all clear he would consider pulling my trache if I could maintain my o2 levels and letting me go 3 months before going through anything else to let my tongue and throat heal since I have had issues with my throat bleeding with my trache. This is the game plan I want..lol. So now I will be hoping and praying that everything looks good. I am prepared for the worse and hoping for the best. Would like to be able to go swimming. Something I haven't been able to do for 2 years. I hope you all have an excellent weekend.