The results are in and the findings are not good. The tumor shrunk from 2.5cm to 1.9cm which is a minor improvement. The right palatine tonsil appears within normal limits. But, Asymmetric enhancement involving the left palatine tonsil with extension into the soft palate, scattered cervical adenopathy, and irregularity of the left torus tubarius.
So now it appears the rads did the job with some shrinkage of the tumor and right tonsil, but where it was clear on the left side, I now have been redx as having squamous cell carcinoma which the doctor tells me was probably there all along but the size of the tumor of the base of my tongue was so large(almost 5 cm before surgery)it was hiding everything. I am completely destroyed. No chance of trache being removed because epigillitos is still laying flat.
The onco is repeating my PET on Friday and I mean with the ENT tomorrow for his decision. I have been told looks like surgery, chemo, and rads this time. But the doctors have to get together after the PET and decide. I am just so angry that all of this wasn't able to be found during the last 2 years. But I saw the scans from 3 months ago and the left tonsil and nodes on the left did not look nothing like they do now. And I only had rads to the right tonsil and BOT.
Wasn't what I wanted to hear. Not sure what I want to do now. My fiance told me to keep planning our wedding because he doesn't care how many extra parts I have or whether I can speak, have hair, my trache or not, he just wants to marry me. I think those were probally the sweetest words I could have heard. I am just mad and want to kick something..lol. My faith is taking a hit but i am really trying to understand this.
Sorry for the vent. Most of you have had it worse and I don't mean to fall apart. Thank you all for your strength and understanding.